One on One Mentor/Support

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Jennicon
One on One Mentor/Support

Hello All!

My name is Jen and I work as a Patient Advocate. I currently a patient that I am working with that diagnosed with a Sarcomatoid Carcinoma of the lung. (Very Rare Cancer). I am trying to identify another individual or other individuals that have also been diagnosed with the same form of Cancer and connect with my patient as she feels this will be very helpful for her. If you know of some please feel free to message me.

Thanks!

Jen

JanineT Forum M...
Sarcomatoid Carcinoma

Hi Jen,

 

Welcome to Grace.  I hope your patient finds others to talk to.  If you haven't you might want to try the forum support group https://forums.lungevity.org/

 

Since PSC (Pulmonary Sarcomatoid Carcinoma) is such a rare type of mesothelioma I want to make sure you and your patient know about its connection with the MET mutation and possible treatment options.  From http://ascopubs.org/doi/abs/10.1200/jco.2015.62.0674 "Mutational events of MET leading to exon 14 skipping are frequent and potentially targetable events in PSC."

 

Best of luck,

Janine