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Author Topic: Some bad news, but still a lot of hope!  (Read 191 times)

KatieJo

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Some bad news, but still a lot of hope!
« on: February 04, 2012, 12:36:39 PM »
Hi everyone,
I haven't been on this board much in almost a year... reason being is because my Dad has been doing so well, and to be 100% honest I tried to stay away from everything cancer-related because it can be overwhelming and frankly, depressing!

From my signature you can see what my Dad's story is. He was stage 4 that was treated aggressively and seemed to be great until now. He has been going for scans regularly, every 3 months and a week ago they found several new brain mets. The doctors say looking back on the scans they can see that the spots were probably there for some time, but because they are so small it wasn't for sure. He is scheduled for radiosurgery next week, which was done before and worked very well. Still, this is a setback and setbacks are never good....

The good from his story is that since his lung radiation and one cycle of chemo, his chest CT scans have great. 15 months out and his oncologist said for the chest/body we can go to a 4 month schedule on that.

I guess my question for the doctors is, with this latest development would you still consider my Dad's case to be in the "indolent disease" category? He hasn't had WBR since January 2010 and at that time the primary tumor was not located and not treated, and wouldn't be treated until almost 7 months later. Do you think it is possible that these mets have been there for this long?

I sincerely appreciate your input.
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My 60 year old Daddy, never smoker diagnosed November 2009 with NSCLC Stage 4, mets to brain, primary on lingula of lung. January 2010 25 WBR, stereotactic radiosurgery to brain. Primary not seen until July 2010, then 37 lung radiation treatments with 4 cycles cisplatin/etoposide ending 10/2010. Tested negative for EGFR, KRAS and ALK mutations.

January 2012 brain MRI reveals new small mets. Radiosurgery and continue 3 month brain monitoring, chest CT clear, go to 4 month scan for chest.

Dr West

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Re: Some bad news, but still a lot of hope!
« Reply #1 on: February 04, 2012, 02:10:07 PM »
    Based on what you're telling me, I definitely would still consider him to have indolent disease. He's on a follow-up plan of every 4 months for checking outside of the brain, which suggests some confidence that he's doing very well and that the pace of his disease requires no more than that; and while there are new lesions seen, the finding that they're there in retrospect going back a ways also indicates a slow pace.  So yes, I think still plenty of reason for hope!

-Dr. West
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H. Jack West, MD
Medical Oncologist

Views expressed here represent my opinion, not those of GRACE or Swedish Cancer Institute.  This information does not constitute medical advice and is intended to supplement and not replace medical information provided by your doctor.

KatieJo

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Re: Some bad news, but still a lot of hope!
« Reply #2 on: February 06, 2012, 02:40:16 PM »
Thank you as always Dr West. I appreciate you and this website so much.
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My 60 year old Daddy, never smoker diagnosed November 2009 with NSCLC Stage 4, mets to brain, primary on lingula of lung. January 2010 25 WBR, stereotactic radiosurgery to brain. Primary not seen until July 2010, then 37 lung radiation treatments with 4 cycles cisplatin/etoposide ending 10/2010. Tested negative for EGFR, KRAS and ALK mutations.

January 2012 brain MRI reveals new small mets. Radiosurgery and continue 3 month brain monitoring, chest CT clear, go to 4 month scan for chest.
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