In the podcast I just posted that involved a discussion with Dr. George Blumenschein, medical oncologist at MD Anderson, Dr. Wally Curran, radiation oncologist at Emory University, and myself, we spoke a bit about the challenge of the art vs. the science of medicine. GRACE member David Fourer added a comment highlighting the importance of this acknowledgment, and I think this merits further discussion.
There is a fundamental difference between discussing a person’s situation in the abstract and actually working closely with the patient in the exam room, part of a patient/doctor relationship. The issues that I and the other faculty discuss focus largely on the evidence and the prevailing standards of care, but that only gets you so far. What strikes me is how much every oncologist I know, myself included, deviates from the data-driven standards — but that’s not a bad thing. It’s just that it’s not fair for one physician to comment impartially about the evidence while another is managing the actual patient and situation. That’s apples and oranges. We (oor patients) sometimes try to bridge the gulf by ending a case presentation with, “What would you do if it were your wife/sister/mother?”, recognizing that the evidence only takes us so far.
I run an annual lung cancer conference for cancer professionals in which I and my colleagues at my own institution present challenging cases that don’t have an obvious right answer to other experts. We describe what we did, which may not have a lot of evidence to support it, although it’s fair to say that in oncology we are faced every day with situations that don’t have any evidence and that require us to use judgment (what chemo to give someone with lung cancer after a kidney transplant? There’s never been and never will be a trial that gives us any insight.) Often, our guest colleagues from another institution may pontificate about what the evidence does or doesn’t support, but that can’t limit the real practice of real patients in the trenches. I happen to know that many of them (us) get very, very creative in their (our) own patient management, regardless of how cerebral we might all sound in discussing what the evidence demonstrates.
When I’m serving on the panel at a conference or sitting in on the tumor board at another institution, I’m the one making judgments in the abstract about the management of patients who have messier real life situations for the doctors working with them. It’s easy for any of us to get haughty about what the evidence does or doesn’t show when we’re looking from 20,000 feet. In fact, I’d venture to say that if we were to review the clinic charts from the actual clinic patients of any oncologist, whether generalist or academic expert, we’d find that they do plenty of cancer management that deviates from any evidence and is based on judgments by the doctor, by the patient’s perspective, or both. Of course, this isn’t a bad thing (except that I can’t just review other people’s charts, because that’s a HIPAA violation).
Everyone considers themselves a better than average driver, and most oncologists fancy themselves to very evidence-based, but that’s based on our abstract view of what we’re taught that we should be. Of course, the evidence should inform our recommendations, but I think it’s very important to realize that the abstract idea of what the data tell us is no substitute for managing patients in the real world.
By the same token, of course this also means that anyone reading our recommendations here should take them with a grain of salt, because there is always room for individualizing and good judgment on a case by case basis.
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I see this dichotomy in a different situation. I do workers’ compensation cases. The cases that generally are appealed from the Department to the Board of Industrial Insurance Appeals, are cases of injury to backs and necks where the objective studies, such as imaging, may not be indicative of the subjective pain felt by the claimant. Independent medical exams are used to gain objective perspective in a case, but the attending physician oftentimes does not agree with the findings of the IME panel. In these sorts of situations, the opinion of the attending is given more weight by the trier of fact than the opinion of the IME doctors. Sort of a “what if it were your daughter or father” situation codified in administrative regulations. I’ve chafed against this legal preference in the past, but I have a better appreciation for its basis these days.
If you really want to see the dichotomy between the evidence and practice based on a combination of judgment, emotion, and instinct, it would be instructive to look at VIP medicine as “what if it were your wife?”, but on steroids (figuratively only). Ted Kennedy was a great public servant who was dedicated to developing a national health care policy, but his own health care bore no remote resemblance to what would have been recommended for the poor huddled masses, and it took about 8 wild turns away from evidence-based medicine. I’d love to see what kind of health care the mother of the CEO of Aetna gets: I’m going to bet that there aren’t too many boxes that are required to be checked and pre-authorizations being denied.
I think the problem is that this may or may not be good for the individual patient, but it unquestionably leads to health care costs continuing to go up and up and up, along with insurance premiums, and budgets for schools and roads and many other competing potential recipients of funds go down. I’m not saying that I and other oncologists aren’t part of “the problem”, but the system is fundamentally set up so that the patient, the doctor, and the pharmaceutical company all benefit by treating with little or no regard for the cost of medicines and procedures (or, for the latter two, perhaps an incentive against cost-containment), and woe to any individual person or insurer who steps in and says that a treatment or intervention isn’t a good value.
Just at my last oncology visit I was complaining of vertigo. My onc said to me “My instinct tells me this has nothing to do with your cancer”. That is all he had to say to set my mind at ease. Don’t get me wrong. He did an MRI and ruled out mets and referred me to ENT to verify his “instinct” but as an RN myself, I know that I have made many judgements based on my “gut feeling” that frankly, saved lives. Evidenced based medicine is only enhanced by the experiences of the Provider that can apply his/her knowledge in an artful way to suit the individual and unique needs of each patient.