GRACE :: News/Info

laya d.

1/10 - My Mom (58) dx w/ NSCLC-Adeno 3a; 1 cycle of neoadjuvent Carbo/Alimta before finding out EGFR+ (Ex. 19), then switched to 7 wks of neoadjuvent Tarceva/150 mg (major shrinkage); 4/10 - right pneumonectomy; 6/10 started 3 rounds of adjuvent Cis/Alimta w/ concurrent chest radiation (7 wks); 8/10 - NED; 11/10 - small nodule in left lung; 1/11 - 3 small nodules in left lung, start Tarceva/100 mg; 4/11 - suspected sclerotic met to hip, continue w/ Tarceva, add XGEVA, brain MRI clear; 9/11 - solitary 3 cm met (adeno w/ T790m mutation) to cerebellum, surgery and gamma knife, up Tarceva to 150 mg; 11/11 - 2 left lung nodules growing, biopsy on 1 shows mutation from adeno to squamous (shocker!), brain MRI clear, continue Tarceva & Xgeva; 2/12 - brain MRI clear, CT scan, remaining nodule slightly bigger - - monitor for now, Tarceva (reduced to 100 mg) & Xgeva continued; 4/12 progression and rebiopsy (confirmed adeno), stop Tarceva, switch to Carbo/Alimta. . .Trying very very hard to take it one day at a time!

GRACE’s “Annual Appeal” is Underway

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Most of you who have been lurkers or contributors on GRACE already know just how much this website has helped and continues to help patients and caregivers dealing with a lung cancer diagnosis. For many of us, GRACE and its brilliant faculty serve as a lifeline in unchartered shark-infested waters. My own involvement began on January 28, 2010 – - the day that my beautiful 58 years-young mother was diagnosed with Stage IIIA NSCLC-adenocarcinoma. That day, my world (and my family’s world) collapsed and became unbearably dark. Through our disbelief, sobs, and screams, we begged, pleaded, and bargained – - with God, with the Universe, with anyone who would listen. We were confused. We wanted to just wake-up from the nightmare that had become our reality. We didn’t quite understand what the doctors were telling us or how to process the information that was being relayed. During this time, even the physicians in my family fell eerily quiet. They were petrified. We all were petrified.

For me personally – - as my Mom’s only child – - I needed to understand what was going on and I needed to get some control over the “information.” I spent my days and insomnic nights surfing the Net – - trying to collect information and to learn what exactly it was that we were dealing with. The information that I kept coming across either was written for a scientific/medically-trained audience (which I am not) or was outdated or was trite, broad, and gloomy. Instead of helping me, I felt that it was slowly suffocating me.

And then came GRACE. . .

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