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Denise Brock

Server Slowdowns and GRACE Update

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You may have noticed some frustrating server issues with GRACE these past few days.  Our true apologies – we are working diligently with our provider to solve these issues.  We ask you for patience, and we will be hopefully trouble free as soon as possible.  


Recent cancerGRACE.org issues have made me feel that it is a great time to give people a sneak peek at what we are working on behind the scenes.  GRACE is past due for an upgrade – and we have decided to give the site a shiny new coat of paint. Soon you will be seeing a new site when you log in to GRACE – and while change is always a little tough – we think you will like what you see.  

Our great development team at FUSEIQ based in Seattle has shown that they have a wonderful understanding of what we do and what we are trying to do.  They have worked with many nonprofits and have an excellent team who have been patient and understanding with our requests.  Their knowledge has been guiding us to develop a site that is intuitive, easy to navigate and much easier to find the important information that is so integral to the heart of GRACE.  We also will be implementing a new structure for our FORUMS – yes – many of the abilities that we have been promising since the last upgrade will finally be available.  Welcome back, personal messaging! 

Another very very exciting part of this rebuild is that we are giving you – our members – more control over what information you want to see.  When you have an account on GRACE, you will be able to personalize your dashboard so you see the information you want to see!  As GRACE grows, we hope to provide more and more information about different types of cancers.  We also know that not everyone – though it is all incredibly interesting and educational – wants to wade through new information on types of cancers that are not necessarily pertinent to them.  The new GRACE site will allow you to determine what feeds you get to see daily on your own dashboard.  You also can always default to the main page to see what is new, available site wide.  Here is a sneak peek! 

The GRACE main page mockup and design:

 Please feel free to offer comments and raise questions in our Discussion Forums.


Do you want to help us reach our goal?  

AS you know, GRACE is a nonprofit run solely on grants and donations from our users.   Funding is tight – and we hope to be able to launch the new site not only as a pretty new thing, but with our content and data migrated over successfully.  Operational tasks are always tough to find funding for!   

If you would like to help us reach our goal, you can donate HERE.  


 

 


Dr. Jack West – Social Media in Healthcare

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Buddy Scalera is a podcaster and Senior Director of Content Strategy in Global Health Science at the Medicines Company, and has been a member of the GRACE board of directors since 2011.   We are thankful to Buddy for his ongoing input to GRACE, and allowing us to share this interview with GRACE founder and president Jack West, MD.  


Recently Dr. Jack West made a special guest appearance on RxDM Storycast, with Buddy Scalera.  In this interview on the RX Digital Marketing Podcast, Dr. West discusses GRACE and topics related to storytelling in healthcare, the role of social media in healthcare, and the ways that the pharmaceutical industry can work effectively with non-government organizations.  

The full one-hour audio podcast and full transcript are available for free at the RXDigitalMarketing.com website, available here, or clicking the image below.

 “I think that oncologists and physicians, in general, have become enamored of statistics and evidence-based medicine, and of course that is really, has been in many ways, a benefit in the sophisticated way we think about treating patients,” explains Dr. West in the podcast, “but lost is the fact that everybody’s brain is really equipped best to think about narratives, about stories.”


The RX Digital Marketing podcast covers a wide range of topics, including ways that patients and professionals leverage social media for support. Dr. West spoke about early social networks during his TEDx talk in 2011. Buddy Scalera and Dr. West review key points from that presentation, as well. Dr. West’s TEDx talk can be viewed here


Please feel free to offer comments and raise questions in our Discussion Forums.


 

About Buddy Scalera

Senior Director, Content Strategy
Global Health Science, The Medicines Company

Buddy is a strategic thought leader in new media technologies with 16+ years of digital content strategy experience. He has written and spoken extensively about healthcare marketing, social networks, marketing storytelling, web technologies and multimedia. He is the author of five mass market books on content, creative techniques, and process. He launched and maintained award-winning health information websites and was one of the driving forces behind placing the first pharmaceutical brand on a social network. At The Medicines Company, Buddy is the Senior Director of Content Strategy in the Global Health Sciences division. 

Twitter: @BuddyScalera

Website: BuddyScalera.com


 


Denise Brock

End of Year Appeal 2016

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Jim and Laya continue to share with us their stories and heartfelt words in support of GRACE.  Watch now – the story of how Jim and Laya came to know GRACE, and visit our donate page to give in honor of someone, in honor of yourself, in honor of GRACE. 

 

You no doubt already have experienced the power of personal connection provided by the Global Resource for Advancing Cancer Education (GRACE).  We are two of GRACE’s earliest followers and the relationship we forged became a lifeline during dark times for each of us.
 
We found a network of support at GRACE – from the faculty who provided vital information to patients and fellow caregivers. When we found GRACE, we found a caring community of doctors who would patiently answer our questions. We found critical data to help us make informed decisions. We found new friends in one another – it’s a tremendous gift to know someone who can understand what you and your family are experiencing. Most importantly, what we think is amazing about GRACE – is that it has leveled the playing field for everyone. Someone who lives in Small Town, USA, may not have access to doctors who specialize in their cancer – and that isn’t right. When life and death are on the line, geography should not matter. Everyone should be able to get the same information about their disease, regardless of where they live.
 
The holidays are a time to connect and to celebrate the relationships that sustain us. We invite you to join us in honoring the incredible work of GRACE that has made life-changing connections possible for all whose lives are touched by cancer.  Thank you for being part of our community and Happy Holidays.

 

 
Thank you,



 


Denise Brock

Donate to GRACE this Giving Tuesday, 2016

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Many people from our GRACE community know very well two of our earliest followers, Jim Celebucki and Laya Dogmetchi. Jim and Laya join us today on Giving Tuesday to ask you to join them in supporting GRACE as part of this global day of giving. 

 

Cancer has played a pivotal role in each of our lives. When we found GRACE, we found a caring community of doctors who would patiently answer our questions, big or small. We found critical data to help us make informed decisions.

What we think is amazing about GRACE is that it has leveled the playing field for everyone. Someone who lives in Small Town, USA, may not have access to doctors who specialize in their cancer. But when life and death are on the line, geography should not matter. Everyone should be able to get the same information about their disease, regardless of where they live. 
 
GRACE provides access to a community of skilled practitioners, the latest research and data from the ever-evolving cancer field, and a caring network of support at no cost to ANYONE AND EVERYONE who needs it.
 
On this #GivingTuesday, help us honor the incredible work of GRACE that has made life-changing connections possible for all whose lives are touched by cancer. 
 
Thank you,



 


Denise Brock

GRACENotes Volume 51

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GRACENotes Volume 51 -The newest happenings on GRACE. 

GRACENotes Volume 51

Don’t miss out – receive the newest information from GRACE in your inbox every Friday. 

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