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	<title>GRACE :: News/Info</title>
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	<description>Expert-mediated discussion of cancer management</description>
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	<itunes:summary>Expert-mediated discussion of cancer management</itunes:summary>
	<itunes:author>GRACE :: News/Info</itunes:author>
	<itunes:explicit>no</itunes:explicit>
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	<itunes:subtitle>Expert-mediated discussion of cancer management</itunes:subtitle>
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		<item>
		<title>GRACE Upcoming Live Events: Come Join Us!</title>
		<link>http://cancergrace.org/general/2012/04/28/grace-upcoming-live-events-come-join-us/</link>
		<comments>http://cancergrace.org/general/2012/04/28/grace-upcoming-live-events-come-join-us/#comments</comments>
		<pubDate>Sat, 28 Apr 2012 18:10:55 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[GRACE events]]></category>
		<category><![CDATA[RACE for GRACE]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2662</guid>
		<description><![CDATA[We don&#8217;t have that many live events, but we&#8217;ve got two upcoming ones in different parts of the US that I wanted to invite members of the GRACE community to.  The first will be at the American Society for Clinical Oncology (ASCO), the biggest cancer care meeting of the year, in Chicago in early June. [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/04/28/grace-upcoming-live-events-come-join-us/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Thoughts on a New Way to Run the Forums, Sustainably</title>
		<link>http://cancergrace.org/general/2012/04/17/sustainable-forums/</link>
		<comments>http://cancergrace.org/general/2012/04/17/sustainable-forums/#comments</comments>
		<pubDate>Wed, 18 Apr 2012 05:04:44 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[GRACE Forums]]></category>
		<category><![CDATA[Site Functions]]></category>
		<category><![CDATA[forums]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2658</guid>
		<description><![CDATA[I want to thank the many people who provided very thoughtful and sensitive responses to my post from last week saying that the forums as they are have become unsustainable.  You have all been great about acknowledging the challenges, and many of you have provided some very workable suggestions about how we might be able [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/04/17/sustainable-forums/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>A Brief Radio Piece on the Value of Online Patient Forums</title>
		<link>http://cancergrace.org/general/2012/04/17/kirofm/</link>
		<comments>http://cancergrace.org/general/2012/04/17/kirofm/#comments</comments>
		<pubDate>Tue, 17 Apr 2012 19:52:52 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2648</guid>
		<description><![CDATA[Just a brief note that I was part of a brief radio piece this morning on KIRO Radio 97.3 FM in Seattle, discussing the growing relevance and value of online communities of patients in terms of their role in medical care, potential to accelerate research, and just to gain a better understanding of the tolerability [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/04/17/kirofm/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
<enclosure url="http://cancergrace.org/general/files/2012/04/KIROFMOnlinePtsWest.mp3" length="3207837" type="audio/mpeg" />
		<itunes:subtitle>Just a brief note that I was part of a brief radio piece this morning on KIRO Radio 97.3 FM in Seattle, discussing the growing relevance and value of online communities of patients in terms of their role in medical care, potential to accelerate research,</itunes:subtitle>
		<itunes:summary>Just a brief note that I was part of a brief radio piece this morning on KIRO Radio 97.3 FM in Seattle, discussing the growing relevance and value of online communities of patients in terms of their role in medical care, potential to accelerate research, and just to gain a better understanding of the tolerability of treatments and patient perceptions of their treatments.  We spoke for more than 20 minutes, but with probably less than 60 seconds of it included in the brief story, it doesn&#039;t do justice to the complexity of the issue.  Still, it&#039;s one more piece of momentum for the growing role of patients as more active participants in medical management and research.  
The 3-minute piece is under the list of related posts, below.</itunes:summary>
		<itunes:author>GRACE :: News/Info</itunes:author>
		<itunes:explicit>no</itunes:explicit>
		<itunes:duration>3:20</itunes:duration>
	</item>
		<item>
		<title>Rethinking the Discussion Forums and GRACE Priorities</title>
		<link>http://cancergrace.org/general/2012/04/12/priorities-disc-forum/</link>
		<comments>http://cancergrace.org/general/2012/04/12/priorities-disc-forum/#comments</comments>
		<pubDate>Thu, 12 Apr 2012 09:39:41 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[GRACE Forums]]></category>
		<category><![CDATA[Site Functions]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2640</guid>
		<description><![CDATA[It was five and half years ago yesterday that I started OncTalk, which became GRACE.  Throughout that time, there have been two sides to the website: the &#8220;pushed&#8221; blog content, like written posts and podcasts, and then the &#8220;pulled&#8221; content of questions coming in from patients and caregivers on the discussion forum.  Over the years, [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/04/12/priorities-disc-forum/feed/</wfw:commentRss>
		<slash:comments>11</slash:comments>
		</item>
		<item>
		<title>Beautiful and Bald Barbie for Kids Undergoing Cancer Treatment, or Whose Mothers Are</title>
		<link>http://cancergrace.org/general/2012/04/02/beautiful-and-bald-barbie/</link>
		<comments>http://cancergrace.org/general/2012/04/02/beautiful-and-bald-barbie/#comments</comments>
		<pubDate>Mon, 02 Apr 2012 23:15:47 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[cancer stigma]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2636</guid>
		<description><![CDATA[I wouldn&#8217;t exactly call this hard news, but I think it&#8217;s great that Mattel is making a new doll as a friend of Barbie who is bald and comes with scarves, hats, wigs, and other fashion accessories.   It&#8217;s not going to be sold, because Mattel isn&#8217;t going to try to profit from the doll, [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/04/02/beautiful-and-bald-barbie/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>New posts Dr. Weiss&#8217;s Highlights Webinar, Blood Tests to Assist CT Screening for Lung Cancer, and the Basics of Radiation Dosing: Check Them Out!</title>
		<link>http://cancergrace.org/general/2012/03/29/recent-posts-late-mar/</link>
		<comments>http://cancergrace.org/general/2012/03/29/recent-posts-late-mar/#comments</comments>
		<pubDate>Thu, 29 Mar 2012 17:48:16 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2631</guid>
		<description><![CDATA[It&#8217;s probably easy to miss new posts spread out around the different sections of the website, but I wanted to highlight several new contributions.  The last part of Dr. Weiss&#8217;s presentation on the highlights in lung cancer from 2011 is available as a podcast, with the Q&#38;A Session that followed his presentation about to be [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/03/29/recent-posts-late-mar/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>The &#8220;Amazonification&#8221; of Medicine and the New Focus on the Patient</title>
		<link>http://cancergrace.org/general/2012/03/12/sxswi-future-of-med-is-amazonification/</link>
		<comments>http://cancergrace.org/general/2012/03/12/sxswi-future-of-med-is-amazonification/#comments</comments>
		<pubDate>Tue, 13 Mar 2012 02:24:34 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[digital]]></category>
		<category><![CDATA[Disruption]]></category>
		<category><![CDATA[medicine trends]]></category>
		<category><![CDATA[telemedicine]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2621</guid>
		<description><![CDATA[I&#8217;m on my flight back from Austin, TX, where tens of thousands of creative, smart people converge for the South by SouthWest (SXSW) festival that started as a huge live music festival, then added a film festival and an &#8220;interactive&#8221; (SXSWi) component that covers digital/tech advances, marketing, social media, and, in recent years, health care [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/03/12/sxswi-future-of-med-is-amazonification/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
		</item>
		<item>
		<title>Welcoming Dr. Quesnelle and her Lab-Based Knowledge</title>
		<link>http://cancergrace.org/general/2012/03/07/dr-quesnelle-intro/</link>
		<comments>http://cancergrace.org/general/2012/03/07/dr-quesnelle-intro/#comments</comments>
		<pubDate>Thu, 08 Mar 2012 00:25:25 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[GRACE Faculty]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2616</guid>
		<description><![CDATA[Oncologists often say &#8220;I need a PhD in molecular pharmacology to understand the latest developments and new treatments in this field.&#8221;  Well, short of having your own PhD, the next best thing is to borrow the expertise of one.  To that end, I&#8217;m very pleased to welcome to our faculty Dr. Kelly Quesnelle, who recently [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/03/07/dr-quesnelle-intro/feed/</wfw:commentRss>
		<slash:comments>6</slash:comments>
		</item>
		<item>
		<title>New Link to Lists of Recent Forum Posts Added</title>
		<link>http://cancergrace.org/general/2012/03/01/new-link-to-lists-of-recent-forum-posts-added/</link>
		<comments>http://cancergrace.org/general/2012/03/01/new-link-to-lists-of-recent-forum-posts-added/#comments</comments>
		<pubDate>Thu, 01 Mar 2012 21:15:19 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[GRACE Forums]]></category>
		<category><![CDATA[Site Functions]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2554</guid>
		<description><![CDATA[One of the most consistent requests we&#8217;d received with the change to the new site format has been for a replacement for the link that allows members to generate a list of discussion forum additions since the last time people were on the website. We haven&#8217;t quite been able to replicate that feature here &#8212; [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/03/01/new-link-to-lists-of-recent-forum-posts-added/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>New Month, New Faculty, New Program to Check Out</title>
		<link>http://cancergrace.org/general/2012/02/29/new-month-new-faculty-new-program-to-check-out/</link>
		<comments>http://cancergrace.org/general/2012/02/29/new-month-new-faculty-new-program-to-check-out/#comments</comments>
		<pubDate>Thu, 01 Mar 2012 05:20:44 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2497</guid>
		<description><![CDATA[February blew by, still a short month despite that extra leap day this year.  Just as well, I suppose, since it was a hard month of changes with the site that has thrown everyone for a loop and tried everyone&#8217;s patience.  But we&#8217;re adjusting to the change and fixing a lot of the problems.  And [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/29/new-month-new-faculty-new-program-to-check-out/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
		</item>
		<item>
		<title>My 5 Take Home Messages from the Targeted Therapies Meeting</title>
		<link>http://cancergrace.org/general/2012/02/25/my-5-take-home-messages-from-the-targeted-therapies-meeting/</link>
		<comments>http://cancergrace.org/general/2012/02/25/my-5-take-home-messages-from-the-targeted-therapies-meeting/#comments</comments>
		<pubDate>Sun, 26 Feb 2012 00:24:14 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2418</guid>
		<description><![CDATA[With well over 150 presentations over three days, I can&#8217;t do this conference justice.  I&#8217;ve tried to distill it to 5 key conclusions I reached at this important annual meeting that I hope you&#8217;ll want to check out. &#160; Related Posts:A New Faculty Member and New Targeted Therapies in Lung CancerAn Embarrassment of Riches in [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/25/my-5-take-home-messages-from-the-targeted-therapies-meeting/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Can &#8220;Hippocampal Sparing&#8221; Improve Safety of Whole Brain Radiation?</title>
		<link>http://cancergrace.org/general/2012/02/24/can-hippocampal-sparing-improve-safety-of-whole-brain-radiation/</link>
		<comments>http://cancergrace.org/general/2012/02/24/can-hippocampal-sparing-improve-safety-of-whole-brain-radiation/#comments</comments>
		<pubDate>Fri, 24 Feb 2012 16:56:57 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2414</guid>
		<description><![CDATA[Dr. Loiselle wrote a summary of the concept of trying to shield the hippocampus during brain radiation in order to minimize potential cognitive problems from the treatment.  Is it helpful? Does it compromise efficacy of treatment?  Learn what we know and what we&#8217;re still trying to learn in his new post. Related Posts:Dr. Loiselle describes [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/24/can-hippocampal-sparing-improve-safety-of-whole-brain-radiation/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>A New Faculty Member and New Targeted Therapies in Lung Cancer</title>
		<link>http://cancergrace.org/general/2012/02/23/update-in-lung-vertical/</link>
		<comments>http://cancergrace.org/general/2012/02/23/update-in-lung-vertical/#comments</comments>
		<pubDate>Thu, 23 Feb 2012 17:48:22 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2406</guid>
		<description><![CDATA[    Learn a bit about our new GRACE faculty member in lung cancer, Dr. Charu Aggarwal, and about the meeting I&#8217;m at in southern California, the IASLC-sponsored Targeted Therapies in Lung Cancer Conference. Related Posts:My 5 Take Home Messages from the Targeted Therapies MeetingNew Month, New Faculty, New Program to Check OutAn Embarrassment of [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/23/update-in-lung-vertical/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Dr. Loiselle describes what a &#8220;V20&#8243; is, and why it matters for chest radiation</title>
		<link>http://cancergrace.org/general/2012/02/17/v20/</link>
		<comments>http://cancergrace.org/general/2012/02/17/v20/#comments</comments>
		<pubDate>Fri, 17 Feb 2012 18:57:36 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2388</guid>
		<description><![CDATA[  The &#8220;V20&#8243; is a very important variable to radiation oncologists, but one that few other people know about.  It&#8217;s a major predictor of pulmonary complications in patients who get radiation to the chest.  Click here to learn more. Related Posts:Can &#8220;Hippocampal Sparing&#8221; Improve Safety of Whole Brain Radiation?New posts Dr. Weiss&#8217;s Highlights Webinar, Blood [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/17/v20/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>We&#8217;ve accomplished so much!  And there is more to go&#8230;</title>
		<link>http://cancergrace.org/general/2012/02/16/weve-accomplished-so-much/</link>
		<comments>http://cancergrace.org/general/2012/02/16/weve-accomplished-so-much/#comments</comments>
		<pubDate>Fri, 17 Feb 2012 07:55:39 +0000</pubDate>
		<dc:creator>dbrock</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2378</guid>
		<description><![CDATA[There is a game that my daughter and her friends used to love to play when they were 2 and 3 ish years old.  It is called ‘Elefun’, I think.  It is a plastic elephant that blows air through its trunk, and little flitty butterflies would float and fly all over.  The kids would jump [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/16/weve-accomplished-so-much/feed/</wfw:commentRss>
		<slash:comments>5</slash:comments>
		</item>
		<item>
		<title>Finding it confusing with TOO MANY FORUMS? You&#8217;re right. We&#8217;ll fix it.</title>
		<link>http://cancergrace.org/general/2012/02/16/finding-it-confusing-with-too-many-forums-youre-right-well-fix-it/</link>
		<comments>http://cancergrace.org/general/2012/02/16/finding-it-confusing-with-too-many-forums-youre-right-well-fix-it/#comments</comments>
		<pubDate>Thu, 16 Feb 2012 14:12:31 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[GRACE Forums]]></category>
		<category><![CDATA[Site Functions]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2374</guid>
		<description><![CDATA[     I appreciate the feedback we&#8217;ve received from so many people.   Since the new website came online this past weekend, people have said that it&#8217;s confusing to navigate, especially having gone from one central forum to many.  So let me tell you all that I completely understand, having reached a point tonight where [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/16/finding-it-confusing-with-too-many-forums-youre-right-well-fix-it/feed/</wfw:commentRss>
		<slash:comments>5</slash:comments>
		</item>
		<item>
		<title>In Remembrance of Stephanie Spar</title>
		<link>http://cancergrace.org/general/2012/02/15/in-remembrance-of-stephanie-spar/</link>
		<comments>http://cancergrace.org/general/2012/02/15/in-remembrance-of-stephanie-spar/#comments</comments>
		<pubDate>Wed, 15 Feb 2012 17:05:49 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2370</guid>
		<description><![CDATA[     Stephanie Spar, or ts as she was known in the GRACE community, died last week after serving as a wonderful example of how to live well with advanced lung cancer.  She was a friend to many inside outside of the lung cancer community, volunteered her time and thought and care to GRACE both [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/15/in-remembrance-of-stephanie-spar/feed/</wfw:commentRss>
		<slash:comments>8</slash:comments>
		</item>
		<item>
		<title>New Pancreatic Cancer Section Starting</title>
		<link>http://cancergrace.org/general/2012/02/13/new-pancreatic-cancer-section-starting/</link>
		<comments>http://cancergrace.org/general/2012/02/13/new-pancreatic-cancer-section-starting/#comments</comments>
		<pubDate>Tue, 14 Feb 2012 05:22:42 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2367</guid>
		<description><![CDATA[   I know that there are few people here who are seeking information or support about pancreatic cancer, but it is an underserved cancer.  The people with pancreatic cancer and their family and friends need a place like GRACE.  We&#8217;ve received some generous contributions to pilot a GRACE Pancreatic Cancer Section and are pleased to [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/13/new-pancreatic-cancer-section-starting/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>And Here We Are on the New Site: Now (Gulp!), Wasn&#8217;t That Easy?</title>
		<link>http://cancergrace.org/general/2012/02/11/welcome-back-after-upgrade/</link>
		<comments>http://cancergrace.org/general/2012/02/11/welcome-back-after-upgrade/#comments</comments>
		<pubDate>Sat, 11 Feb 2012 22:59:50 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2361</guid>
		<description><![CDATA[OK, that didn&#8217;t go quite as smoothly as planned, but we&#8217;ve got our content here on this side of the upgrade, and while we&#8217;re still looking for things that were inadvertently broken in the move (it feels like we&#8217;re just unpacking our boxes of stuff in a new home), a lot of previously broken things [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/11/welcome-back-after-upgrade/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
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		<item>
		<title>Two More Faculty Members Available as Needed: Meet Drs. Farivar and Manning</title>
		<link>http://cancergrace.org/general/2012/02/08/drs-farivar-and-manning-intros/</link>
		<comments>http://cancergrace.org/general/2012/02/08/drs-farivar-and-manning-intros/#comments</comments>
		<pubDate>Wed, 08 Feb 2012 22:10:11 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2347</guid>
		<description><![CDATA[Over the past several months, in addition to having a group of faculty members checking in pretty much every day to field questions from GRACE members, we&#8217;ve introduced the concept of having faculty members be available in the background &#8220;as needed&#8221; if there&#8217;s a specific question in their wheelhouse. Dr. Loiselle helping out for radiation [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/08/drs-farivar-and-manning-intros/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
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		<item>
		<title>Server was Down but is Better Now</title>
		<link>http://cancergrace.org/general/2012/02/05/server-was-down-but-is-better-now/</link>
		<comments>http://cancergrace.org/general/2012/02/05/server-was-down-but-is-better-now/#comments</comments>
		<pubDate>Mon, 06 Feb 2012 02:53:26 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2343</guid>
		<description><![CDATA[For those of you who had trouble accessing the site in the past few hours, we were down for a while, but&#8230;it actually wasn&#8217;t a problem with GRACE (a bunch of other websites were affected). We&#8217;re using a pretty darn reliable server company (SO much better than what we had until early last year), but [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/05/server-was-down-but-is-better-now/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
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		<title>An Embarrassment of Riches in February</title>
		<link>http://cancergrace.org/general/2012/02/01/an-embarrassment-of-riches-in-february/</link>
		<comments>http://cancergrace.org/general/2012/02/01/an-embarrassment-of-riches-in-february/#comments</comments>
		<pubDate>Wed, 01 Feb 2012 14:15:45 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2338</guid>
		<description><![CDATA[January has come and now gone&#8230;just like that. And we know that Dr. Sanborn and Dr. Pinder are wonderfully helpful and truly committed to the GRACE community &#8212; so much so that we can only thank them for their participation this past month and take comfort in knowing that we&#8217;ll bring them back, and that [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/02/01/an-embarrassment-of-riches-in-february/feed/</wfw:commentRss>
		<slash:comments>7</slash:comments>
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		<item>
		<title>Stats versus Stories</title>
		<link>http://cancergrace.org/general/2012/01/12/stats-vs-stories/</link>
		<comments>http://cancergrace.org/general/2012/01/12/stats-vs-stories/#comments</comments>
		<pubDate>Thu, 12 Jan 2012 09:14:53 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2433</guid>
		<description><![CDATA[ A few days ago, I was responding in the discussion forum, getting very critical of the recommendation in favor of stereotactic radiosurgery (SRS) (e.g., Gamma Knife, Cyber Knife) for people with many brain lesions, when the evidence would say that whole brain radiation (WBR) is a more appropriate choice.  I suggested that this was a zealous recommendation by ill-informed and [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/01/12/stats-vs-stories/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>Any time and talent to spare for GRACE?</title>
		<link>http://cancergrace.org/general/2012/01/08/grace-needs-volunteers/</link>
		<comments>http://cancergrace.org/general/2012/01/08/grace-needs-volunteers/#comments</comments>
		<pubDate>Mon, 09 Jan 2012 02:51:20 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2436</guid>
		<description><![CDATA[GRACE has historically done a poor job of capitalizing on the good will and range of talents available among the many people who support what we do and want to help in some way.  In many ways, this has been my fault for being too preoccupied with the current needs of the website and community [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2012/01/08/grace-needs-volunteers/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<item>
		<title>Access to Your Own Health Data: Is It What You Have, or What You Can Do With It?</title>
		<link>http://cancergrace.org/general/2011/12/31/pt-access-to-health-data/</link>
		<comments>http://cancergrace.org/general/2011/12/31/pt-access-to-health-data/#comments</comments>
		<pubDate>Sat, 31 Dec 2011 13:03:22 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2458</guid>
		<description><![CDATA[One of the central tenets of the &#8220;e-patient&#8221; movement that is, I believe, revolutionizing how health care is practiced is the concept that physicians shouldn&#8217;t be the gatekeepers of the lab tests, scan results, and most other critically important information about a patient&#8217;s health.  This has led my friend e-Patient Dave to focus on the key [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/12/31/pt-access-to-health-data/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>Welcoming Dr. Christine Walko</title>
		<link>http://cancergrace.org/general/2011/12/17/dr-walko/</link>
		<comments>http://cancergrace.org/general/2011/12/17/dr-walko/#comments</comments>
		<pubDate>Sun, 18 Dec 2011 02:15:45 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2445</guid>
		<description><![CDATA[I&#8217;m very happy to welcome Dr. Christine Walko, a clinical pharmacist at the Lineberger Comprehensive Cancer Center at the University of Chapel Hill in North Carolina, where she is an Assistant Professor and Director of the Clinical Pharmacology Lab. She earned her PharmD at Duquesne University in Pittsburgh before heading to Medical College of Virginia [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/12/17/dr-walko/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>GRACE&#8217;s &#8220;Annual Appeal&#8221; is Underway</title>
		<link>http://cancergrace.org/general/2011/12/05/graces-annual-appeal-is-underway/</link>
		<comments>http://cancergrace.org/general/2011/12/05/graces-annual-appeal-is-underway/#comments</comments>
		<pubDate>Mon, 05 Dec 2011 20:46:33 +0000</pubDate>
		<dc:creator>laya d.</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2297</guid>
		<description><![CDATA[Most of you who have been lurkers or contributors on GRACE already know just how much this website has helped and continues to help patients and caregivers dealing with a lung cancer diagnosis. For many of us, GRACE and its brilliant faculty serve as a lifeline in unchartered shark-infested waters. My own involvement began on [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/12/05/graces-annual-appeal-is-underway/feed/</wfw:commentRss>
		<slash:comments>15</slash:comments>
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		<title>GRACEful Holiday Season</title>
		<link>http://cancergrace.org/general/2011/12/01/graceful-holiday-season/</link>
		<comments>http://cancergrace.org/general/2011/12/01/graceful-holiday-season/#comments</comments>
		<pubDate>Thu, 01 Dec 2011 13:12:50 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2293</guid>
		<description><![CDATA[Today marks the beginning of December, and with that, we&#8217;ll say thanks and goodbye to Dr. Pennell. Dr. Weiss, who is now officially leading the GRACE Lung Cancer and Head/Neck sections (I&#8217;m focusing on general oversight of GRACE), will be staying on, at least until the very end of the month, and Dr. Kavitha Ramchandran [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/12/01/graceful-holiday-season/feed/</wfw:commentRss>
		<slash:comments>6</slash:comments>
		</item>
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		<title>Happy Thanksgiving!</title>
		<link>http://cancergrace.org/general/2011/11/23/happy-thanksgiving/</link>
		<comments>http://cancergrace.org/general/2011/11/23/happy-thanksgiving/#comments</comments>
		<pubDate>Thu, 24 Nov 2011 04:36:07 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2287</guid>
		<description><![CDATA[It&#8217;s always worth taking a step back and reminding ourselves that even amidst our challenges there are things to be thankful for. We are better for being able to share a sense of community. We can be thankful for the hope that comes from encouraging news of how people are doing, and the support of [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/11/23/happy-thanksgiving/feed/</wfw:commentRss>
		<slash:comments>5</slash:comments>
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		<item>
		<title>Changing Roles and Changing Expectations in the Patient/Physician Relationship</title>
		<link>http://cancergrace.org/general/2011/11/18/changing-roles-in-pt-md-relationship/</link>
		<comments>http://cancergrace.org/general/2011/11/18/changing-roles-in-pt-md-relationship/#comments</comments>
		<pubDate>Fri, 18 Nov 2011 21:03:14 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2285</guid>
		<description><![CDATA[Last week I wrote about a new molecular marker in lung cancer called ROS1, which is just beginning to be studied in lung cancer and associated with promising responsiveness to XALKORI (crizotinib). What I didn’t mention in my post was that I learned about it from a discussion thread, started by a patient. While it’s [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/11/18/changing-roles-in-pt-md-relationship/feed/</wfw:commentRss>
		<slash:comments>9</slash:comments>
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		<item>
		<title>November Transitions</title>
		<link>http://cancergrace.org/general/2011/11/01/november-transitions/</link>
		<comments>http://cancergrace.org/general/2011/11/01/november-transitions/#comments</comments>
		<pubDate>Tue, 01 Nov 2011 15:45:27 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2282</guid>
		<description><![CDATA[I hope people had a nice Halloween, for those of us who do that holiday. Not only are we moving from Halloween to thanksgiving, we&#8217;re transitioning from Breast Cancer Awareness Month to Lung Cancer Awareness Month, so for the many of you touched by lung cancer, please consider participating in educational, fundraising, and other supportive [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/11/01/november-transitions/feed/</wfw:commentRss>
		<slash:comments>9</slash:comments>
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		<item>
		<title>Welcoming Our New Moderators</title>
		<link>http://cancergrace.org/general/2011/09/22/welcoming-our-new-moderators/</link>
		<comments>http://cancergrace.org/general/2011/09/22/welcoming-our-new-moderators/#comments</comments>
		<pubDate>Thu, 22 Sep 2011 16:45:02 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2271</guid>
		<description><![CDATA[You know and love them as members, and now we can all welcome and thank them for responding to my call for a few more good people to take the time to help welcome new people, provide their own and other available information, and ensure that the forums run well. I&#8217;d like to acknowledge ts, [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/09/22/welcoming-our-new-moderators/feed/</wfw:commentRss>
		<slash:comments>5</slash:comments>
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		<title>Fixing Healthcare, Overcoming Geography</title>
		<link>http://cancergrace.org/general/2011/08/25/fixing-healthcare-overcoming-geography/</link>
		<comments>http://cancergrace.org/general/2011/08/25/fixing-healthcare-overcoming-geography/#comments</comments>
		<pubDate>Fri, 26 Aug 2011 04:14:29 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2255</guid>
		<description><![CDATA[This TEDx Dartmouth video from Dr. Al Mulley, founder of the Foundation for Informed Medical Decision-Making, provides a remarkably articulate discussion of some of the problems in health care &#8212; the uncertainties, the biases&#8211; and how patients, and specifically well informed patients, can help overcome them. Among the many interesting and very thoughtful points he [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/08/25/fixing-healthcare-overcoming-geography/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
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		<item>
		<title>Quick Question: How did you learn about GRACE?</title>
		<link>http://cancergrace.org/general/2011/08/25/how-did-you-learn-about-grace/</link>
		<comments>http://cancergrace.org/general/2011/08/25/how-did-you-learn-about-grace/#comments</comments>
		<pubDate>Thu, 25 Aug 2011 14:59:21 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2253</guid>
		<description><![CDATA[Can I please ask folks how they learned about and came to GRACE? We really haven&#8217;t done much in advertising or outreach, but people find us, and we&#8217;re thinking about how to help a broader community of people touched by cancer. In addition, we&#8217;re about to launch a vertical and open up the discussion forums [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/08/25/how-did-you-learn-about-grace/feed/</wfw:commentRss>
		<slash:comments>33</slash:comments>
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		<title>Life &amp; Death in the World of Social Media</title>
		<link>http://cancergrace.org/general/2011/08/07/life-death-in-the-world-of-social-media/</link>
		<comments>http://cancergrace.org/general/2011/08/07/life-death-in-the-world-of-social-media/#comments</comments>
		<pubDate>Sun, 07 Aug 2011 17:41:51 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2251</guid>
		<description><![CDATA[A newly released TED Global Talk by technology website Editor in Chief Adam Ostrow describes some of the recent developments and implications for the future of people now creating a rich archive of their own ideas and experiences in the online world, and how that can change the experience of people who live to remember [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/08/07/life-death-in-the-world-of-social-media/feed/</wfw:commentRss>
		<slash:comments>5</slash:comments>
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		<item>
		<title>Facebook, Lurkers, &amp; Online Anonymity</title>
		<link>http://cancergrace.org/general/2011/07/28/facebook-lurkers-online-anonymity/</link>
		<comments>http://cancergrace.org/general/2011/07/28/facebook-lurkers-online-anonymity/#comments</comments>
		<pubDate>Thu, 28 Jul 2011 13:43:07 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
				<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://cancergrace.org/general/?p=2246</guid>
		<description><![CDATA[Thanks to everyone who added their comments in response to my last post, which focused on the question of why caregivers outnumber patients in medical online communities, particularly those focused on cancer. We received some terrific input from both caregivers and patients that I think really helped round out my understanding of this complex issue. [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/07/28/facebook-lurkers-online-anonymity/feed/</wfw:commentRss>
		<slash:comments>31</slash:comments>
		</item>
		<item>
		<title>Why Do Caregivers Outnumber Patients in Online Cancer Communities?</title>
		<link>http://cancergrace.org/general/2011/07/26/caregivers-outnumber-patients-online/</link>
		<comments>http://cancergrace.org/general/2011/07/26/caregivers-outnumber-patients-online/#comments</comments>
		<pubDate>Tue, 26 Jul 2011 23:41:16 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2242</guid>
		<description><![CDATA[At ASCO a few years ago, some of the people behind a Dutch educational website about lung cancer, longkanker.info, described their growing experience of serving the community of patients and caregivers with lung cancer (though I think it&#8217;s likely a very good site, I can&#8217;t read any of it, so I can&#8217;t really recommend it). [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/07/26/caregivers-outnumber-patients-online/feed/</wfw:commentRss>
		<slash:comments>17</slash:comments>
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		<item>
		<title>Write a Review of GRACE at GREAT*Nonprofits</title>
		<link>http://cancergrace.org/general/2011/05/24/write-a-review-of-grace-at-greatnonprofits/</link>
		<comments>http://cancergrace.org/general/2011/05/24/write-a-review-of-grace-at-greatnonprofits/#comments</comments>
		<pubDate>Wed, 25 May 2011 03:19:29 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2213</guid>
		<description><![CDATA[Thanks to member ts for taking the initiative to write up a very kind review of GRACE at GREAT*Nonprofits, a resource that is trying to become the central review database of the work being done by nonprofit organizations everywhere. I actually met the CEO of GREAT*Nonprofits, Perla Ni, at the South-by-Southwest Interactive (SXSWi) meeting in [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/05/24/write-a-review-of-grace-at-greatnonprofits/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
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		<item>
		<title>The Limits of the Evidence and the Human Scale of Patient Stories</title>
		<link>http://cancergrace.org/general/2011/04/04/the-limits-of-the-evidence-and-the-human-scale-of-patient-stories/</link>
		<comments>http://cancergrace.org/general/2011/04/04/the-limits-of-the-evidence-and-the-human-scale-of-patient-stories/#comments</comments>
		<pubDate>Mon, 04 Apr 2011 20:13:43 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2194</guid>
		<description><![CDATA[I am privileged to have been asked to speak at an upcoming local meeting called TEDxOverlake (the site is still without the lineup and structure of the day&#8217;s event). This program is one of the hundreds of &#8220;TEDx&#8221; regional meetings affiliated with the TED (Technology, Entertainment, &#38; Design) programs that I&#8217;ve become so enamored of [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/04/04/the-limits-of-the-evidence-and-the-human-scale-of-patient-stories/feed/</wfw:commentRss>
		<slash:comments>8</slash:comments>
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		<title>Hellos and Goodbyes for the Month of April</title>
		<link>http://cancergrace.org/general/2011/03/31/hellos-and-goodbyes-for-the-month-of-april/</link>
		<comments>http://cancergrace.org/general/2011/03/31/hellos-and-goodbyes-for-the-month-of-april/#comments</comments>
		<pubDate>Fri, 01 Apr 2011 05:02:22 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2188</guid>
		<description><![CDATA[As another month draws to a close, it&#8217;s time to thank Drs. Pinder and Ramchandran for their great help throughout March. And don&#8217;t worry: we&#8217;ll all but beg them to return in the next few months. I know they&#8217;ve found this time gratifying and enjoyable, so I&#8217;m optimistic I won&#8217;t have to do much convincing. [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/03/31/hellos-and-goodbyes-for-the-month-of-april/feed/</wfw:commentRss>
		<slash:comments>6</slash:comments>
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		<item>
		<title>A Short List of (Belated) Guidelines for the GRACE Discussion Forum</title>
		<link>http://cancergrace.org/general/2011/03/02/a-short-list-of-belated-guidelines-for-the-grace-discussion-forum/</link>
		<comments>http://cancergrace.org/general/2011/03/02/a-short-list-of-belated-guidelines-for-the-grace-discussion-forum/#comments</comments>
		<pubDate>Thu, 03 Mar 2011 02:24:49 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2158</guid>
		<description><![CDATA[I think that for all of the educational content we work to provide on this side of the GRACE website, the Q&#38;A forum for many people is the most valued part of the GRACE experience. It has its own community and tone, which I think are generally very welcoming. Though we do the best job [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/03/02/a-short-list-of-belated-guidelines-for-the-grace-discussion-forum/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
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		<title>A Little Local History: Why GRACE?</title>
		<link>http://cancergrace.org/general/2011/02/20/a-little-local-history-thinking-back-on-why-i-started-grace/</link>
		<comments>http://cancergrace.org/general/2011/02/20/a-little-local-history-thinking-back-on-why-i-started-grace/#comments</comments>
		<pubDate>Sun, 20 Feb 2011 20:18:31 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2118</guid>
		<description><![CDATA[It&#8217;s been more than 5 years since I thought about the concept that has evolved into GRACE, such a long time that the &#8220;Why?&#8221; is probably lost for all but the few who have been following along from nearly the beginning. So for those of you who are curious about why I and other medical [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2011/02/20/a-little-local-history-thinking-back-on-why-i-started-grace/feed/</wfw:commentRss>
		<slash:comments>16</slash:comments>
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		<title>The Communication Gap in the Oncology Clinic: What Docs Think They Say, and What Patients Think They Hear</title>
		<link>http://cancergrace.org/general/2010/12/02/communication-gap-in-onc-clinic/</link>
		<comments>http://cancergrace.org/general/2010/12/02/communication-gap-in-onc-clinic/#comments</comments>
		<pubDate>Fri, 03 Dec 2010 05:24:56 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2052</guid>
		<description><![CDATA[It&#8217;s the premise of many jokes and nearly every old episode of Three&#8217;s Company: there are (at least) two sides to a conversation, but it often seems that a mutually shared conversation is perceived very differently by the participants. It&#8217;s certainly the case in the cancer clinic that there can be miscommunication between an oncologist [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2010/12/02/communication-gap-in-onc-clinic/feed/</wfw:commentRss>
		<slash:comments>6</slash:comments>
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		<title>Dr. David Agus on a New Strategy Against Cancer</title>
		<link>http://cancergrace.org/general/2010/10/24/dr-david-agus-on-a-new-strategy-against-cancer/</link>
		<comments>http://cancergrace.org/general/2010/10/24/dr-david-agus-on-a-new-strategy-against-cancer/#comments</comments>
		<pubDate>Mon, 25 Oct 2010 04:27:49 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=2004</guid>
		<description><![CDATA[In my prior post I noted my increasing pre-occupation with TED Talks, which cover a wide range of topics, but there is also a TEDMED conference each fall that is dedicated to emerging, cool topics in health care. Overall, there haven&#8217;t been a lot of presentations on cancer, but there was an interesting one at [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2010/10/24/dr-david-agus-on-a-new-strategy-against-cancer/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
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		<title>The Downside of Freedom of Choice (and More Hope)</title>
		<link>http://cancergrace.org/general/2010/10/23/the-downside-of-freedom-of-choice-and-more-hope/</link>
		<comments>http://cancergrace.org/general/2010/10/23/the-downside-of-freedom-of-choice-and-more-hope/#comments</comments>
		<pubDate>Sat, 23 Oct 2010 14:38:42 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=1998</guid>
		<description><![CDATA[I recently watched a great lecture by Dr. Barry Schwatz about the paradox of choice: specifically, that while we would intuitively believe that more choice, more options leads to more freedom and happiness, this very freedom leads to our dissatisfaction. I&#8217;ll mention parenthetically that this is one of the hundreds of free &#8220;TED Talks&#8221; available [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2010/10/23/the-downside-of-freedom-of-choice-and-more-hope/feed/</wfw:commentRss>
		<slash:comments>16</slash:comments>
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		<title>&#8220;What Would You Do If It Were Your Wife?&#8221;: The Gulf between the Data and Real Life</title>
		<link>http://cancergrace.org/general/2010/05/28/life-is-messy/</link>
		<comments>http://cancergrace.org/general/2010/05/28/life-is-messy/#comments</comments>
		<pubDate>Sat, 29 May 2010 00:54:15 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=1866</guid>
		<description><![CDATA[In the podcast I just posted that involved a discussion with Dr. George Blumenschein, medical oncologist at MD Anderson, Dr. Wally Curran, radiation oncologist at Emory University, and myself, we spoke a bit about the challenge of the art vs. the science of medicine. GRACE member David Fourer added a comment highlighting the importance of [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2010/05/28/life-is-messy/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
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		<title>It&#8217;s all a matter of perspective</title>
		<link>http://cancergrace.org/general/2010/04/13/its-all-a-matter-of-perspective/</link>
		<comments>http://cancergrace.org/general/2010/04/13/its-all-a-matter-of-perspective/#comments</comments>
		<pubDate>Tue, 13 Apr 2010 23:41:45 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=1810</guid>
		<description><![CDATA[A couple of months ago, I wrote a highly critical post about a trial by German company Boeringer-Ingelheim, in which I noted that a clinical trial in which patients with an EGFR mutation would be randomized to standard chemo or their irreversible oral EGFR inhibitor Tovok (BIBW-2992) seemed to be so problematic as to border [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2010/04/13/its-all-a-matter-of-perspective/feed/</wfw:commentRss>
		<slash:comments>12</slash:comments>
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		<title>How Has GRACE Helped You?</title>
		<link>http://cancergrace.org/general/2010/03/14/how-has-grace-helped-you/</link>
		<comments>http://cancergrace.org/general/2010/03/14/how-has-grace-helped-you/#comments</comments>
		<pubDate>Sun, 14 Mar 2010 16:02:43 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=1792</guid>
		<description><![CDATA[GRACE has two main ways to raise money to continue our programs: support from our members and educational grants. We will continue to seek contributions from our users, but as we write grants to seek support for our educational programs, we would benefit from any indication that the information GRACE provides can have an impact [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2010/03/14/how-has-grace-helped-you/feed/</wfw:commentRss>
		<slash:comments>24</slash:comments>
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		<title>E-Patients Revisited: Writing a Story on a Growing Movement</title>
		<link>http://cancergrace.org/general/2009/09/27/e-patients-revisited-writing-a-story-on-a-growing-movement/</link>
		<comments>http://cancergrace.org/general/2009/09/27/e-patients-revisited-writing-a-story-on-a-growing-movement/#comments</comments>
		<pubDate>Sun, 27 Sep 2009 18:01:10 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=1517</guid>
		<description><![CDATA[Last year I wrote a summary about e-patients, a population that people here should be aware of because they&#8217;re part of it, whether they know it or not. E-patients are the new breed of patients, and the caregivers who are part of their &#8220;team&#8221;, who avail themselves of information and support online to become empowered, [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2009/09/27/e-patients-revisited-writing-a-story-on-a-growing-movement/feed/</wfw:commentRss>
		<slash:comments>5</slash:comments>
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		<title>Patients/Members as True Experts</title>
		<link>http://cancergrace.org/general/2009/06/08/true-experts/</link>
		<comments>http://cancergrace.org/general/2009/06/08/true-experts/#comments</comments>
		<pubDate>Tue, 09 Jun 2009 04:15:23 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/?p=1311</guid>
		<description><![CDATA[Today we had member Neil Berch post his own assessment of the recent work presented on Zactima (vandetanib) and make a case for FDA approval. Last week, he e-mailed me with his arguments, and we agreed that it made sense to have him frame his points and have him guest post here as a profoundly [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2009/06/08/true-experts/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>Money Matters: The Business of Oncology</title>
		<link>http://cancergrace.org/general/2009/05/25/oncobiz/</link>
		<comments>http://cancergrace.org/general/2009/05/25/oncobiz/#comments</comments>
		<pubDate>Tue, 26 May 2009 04:31:09 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/2009/05/25/oncobiz/</guid>
		<description><![CDATA[The following is complete editorializing, my opinion and not meant to be the word from on high. Recently, the most popular physician blogger on the internet, KevinMD, wrote a short piece on whether physicians should discuss the cost of medicines with their patients. This was specifically with regard to outpatient medications, and in oncology we [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2009/05/25/oncobiz/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
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		<title>A Sobering Assessment of Cancer Research, and the Benefit of Education</title>
		<link>http://cancergrace.org/general/2009/04/29/kolate-nyt-article-war-on-cancer/</link>
		<comments>http://cancergrace.org/general/2009/04/29/kolate-nyt-article-war-on-cancer/#comments</comments>
		<pubDate>Thu, 30 Apr 2009 02:56:26 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/2009/04/29/kolate-nyt-article-war-on-cancer/</guid>
		<description><![CDATA[Author and New York Times reporter Gina Kolata wrote an important but sobering article similar in tone and concept to an extensive article in Newsweek last year, essentially saying that despite a declared &#8220;War on Cancer&#8221; that is approaching four decades long, our progress has been painfully slow. These sources stand out against a broader [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2009/04/29/kolate-nyt-article-war-on-cancer/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
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		<title>The e-Patient Revolution: Growing Recognition for the Online, Enabled Patient and Caregiver</title>
		<link>http://cancergrace.org/general/2009/02/01/e-pt-revolution/</link>
		<comments>http://cancergrace.org/general/2009/02/01/e-pt-revolution/#comments</comments>
		<pubDate>Mon, 02 Feb 2009 02:29:15 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/2009/02/01/e-pt-revolution/</guid>
		<description><![CDATA[Although you may not realize it, you have become part a real movement that is becoming the source of growing study and intetest: the e-patient revolution. Though we had all noted that many more people have become enabled, educated, and engaged in their own health care, this mindset has become so pervasive that there is [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2009/02/01/e-pt-revolution/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
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		<title>What I Really Do: Treating Beyond the Evidence</title>
		<link>http://cancergrace.org/general/2008/11/01/wirb-beyond-the-evidence/</link>
		<comments>http://cancergrace.org/general/2008/11/01/wirb-beyond-the-evidence/#comments</comments>
		<pubDate>Sat, 01 Nov 2008 13:17:29 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/2008/11/01/wirb-beyond-the-evidence/</guid>
		<description><![CDATA[Most of what I write about here highlights the evidence supporting treatments, and that’s certainly how we strive to practice oncology. But the reality is that patients and doctors often find themselves in the middle of settings where we don’t have any answers and need to rely on judgment, or we think we can potentially [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2008/11/01/wirb-beyond-the-evidence/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
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		<title>Newsweek&#8217;s Article: We&#8217;re Losing the War on Cancer&#8230;</title>
		<link>http://cancergrace.org/general/2008/09/09/newsweek-begley-war-on-cancer/</link>
		<comments>http://cancergrace.org/general/2008/09/09/newsweek-begley-war-on-cancer/#comments</comments>
		<pubDate>Wed, 10 Sep 2008 03:17:38 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/2008/09/09/newsweek-begley-war-on-cancer/</guid>
		<description><![CDATA[There&#8217;s a feature article in this week&#8217;s Newsweek that discusses the limitations of what we&#8217;ve achieved in the &#8220;War on Cancer&#8221; waged by Richard Nixon more than three decades ago. Unlike the vast, vast majority of cookie-cutter, feel-good stories about the miracles of science and all of the progress we&#8217;re making, this extensive article covers [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2008/09/09/newsweek-begley-war-on-cancer/feed/</wfw:commentRss>
		<slash:comments>5</slash:comments>
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		<title>New York Times Front Page Article on Cost vs. Benefits of Cancer Treatments</title>
		<link>http://cancergrace.org/general/2008/07/06/nytimes-kolata-on-cost-benefit/</link>
		<comments>http://cancergrace.org/general/2008/07/06/nytimes-kolata-on-cost-benefit/#comments</comments>
		<pubDate>Sun, 06 Jul 2008 21:08:09 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/2008/07/06/nytimes-kolata-on-cost-benefit/</guid>
		<description><![CDATA[Today&#8217;s NY Times included a high profile article about the difficult balance between the clinical value of some expensive cancer therapies and their financial value. I think it did a fair job of portraying both sides of the issue &#8212; that therapies like avastin, erbitux, and others are certainly priced aggressively for the modest but [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2008/07/06/nytimes-kolata-on-cost-benefit/feed/</wfw:commentRss>
		<slash:comments>14</slash:comments>
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		<title>Absence of Proof vs. Proof of Absence: Do We Need a Controlled Trial of Parachutes for Sky Divers?</title>
		<link>http://cancergrace.org/general/2008/06/19/ebm-for-parachutes/</link>
		<comments>http://cancergrace.org/general/2008/06/19/ebm-for-parachutes/#comments</comments>
		<pubDate>Thu, 19 Jun 2008 21:36:17 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://cancergrace.org/general/2008/06/19/ebm-for-parachutes/</guid>
		<description><![CDATA[Throughout this site, we try to rely on the strength of evidence to support the value of one treatment over another. This is based on a growing trend of evidence-based medicine, by which we shape our management decisions following the lines of clinical trials. But this approach of &#8220;useless until proven valuable&#8221; is really the [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2008/06/19/ebm-for-parachutes/feed/</wfw:commentRss>
		<slash:comments>7</slash:comments>
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		<title>Calcitriol (Vitamin D Analog) Study Halted in Prostate Cancer</title>
		<link>http://cancergrace.org/general/2007/11/06/ascent-2-closed-in-pca/</link>
		<comments>http://cancergrace.org/general/2007/11/06/ascent-2-closed-in-pca/#comments</comments>
		<pubDate>Tue, 06 Nov 2007 21:38:37 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://onctalk.com/2007/11/06/ascent-2-closed-in-pca/</guid>
		<description><![CDATA[This doesn&#8217;t directly relate to lung cancer, but in a prior post I described a trial of the vitamin D analog calcitriol (Asentar) with taxotere for treating advanced NSCLC. Although it has been very unclear whether there might be any future for this agent in lung cancer, I and many others were pretty impressed by [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2007/11/06/ascent-2-closed-in-pca/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
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		<title>The Limitations of the &#8220;Standard of Care&#8221;</title>
		<link>http://cancergrace.org/general/2007/07/21/limitations-of-standard-of-care/</link>
		<comments>http://cancergrace.org/general/2007/07/21/limitations-of-standard-of-care/#comments</comments>
		<pubDate>Sat, 21 Jul 2007 20:34:26 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://onctalk.com/2007/07/21/limitations-of-standard-of-care/</guid>
		<description><![CDATA[Medicine in general has become increasingly evidence-based, which we think is a good thing. Rather than have doctors use a wide range of approaches to the work-up and treatment of many problems, there are a growing number of guidelines that shape our &#8220;standards of care&#8221;, the defined best treatment practices. Oncology more than several other [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2007/07/21/limitations-of-standard-of-care/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
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		<title>The Hardest Part of the Job</title>
		<link>http://cancergrace.org/general/2007/05/31/aggressiveness-vs-comfort-balance/</link>
		<comments>http://cancergrace.org/general/2007/05/31/aggressiveness-vs-comfort-balance/#comments</comments>
		<pubDate>Fri, 01 Jun 2007 04:59:48 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://onctalk.com/2007/05/31/aggressiveness-vs-comfort-balance/</guid>
		<description><![CDATA[In oncology, we very frequently hear people say, &#8220;I don&#8217;t know how you do what you do&#8221;. There are plenty of times when we might start to wonder ourselves, as we fight with insurers to get a treatment, or when very bad things happen to patients we&#8217;ve developed relationships with. As I said in the [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2007/05/31/aggressiveness-vs-comfort-balance/feed/</wfw:commentRss>
		<slash:comments>9</slash:comments>
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		<title>Discussing Prognosis: Can Hope and Realism Co-Exist?</title>
		<link>http://cancergrace.org/general/2007/05/29/discussing-prognosis-in-oncology/</link>
		<comments>http://cancergrace.org/general/2007/05/29/discussing-prognosis-in-oncology/#comments</comments>
		<pubDate>Wed, 30 May 2007 03:55:19 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://onctalk.com/2007/05/29/discussing-prognosis-in-oncology/</guid>
		<description><![CDATA[Member Ned raised the question of how oncologists discuss prognosis and the goals of treatment. I think this is a very important topic that touches every relationship between an oncologist and the patient (and family and/or friends directly involved). First, I&#8217;ll say that this is an area of medicine that only recently, in the last [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2007/05/29/discussing-prognosis-in-oncology/feed/</wfw:commentRss>
		<slash:comments>22</slash:comments>
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		<title>Culture Clash: Evidence-Based Medicine When We Need Miracles Fast</title>
		<link>http://cancergrace.org/general/2007/03/14/ebm-when-miracles-are-needed-fast/</link>
		<comments>http://cancergrace.org/general/2007/03/14/ebm-when-miracles-are-needed-fast/#comments</comments>
		<pubDate>Wed, 14 Mar 2007 22:45:44 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://onctalk.com/2007/03/14/the-culture-clash-evidence-based-medicine-vs-the-search-for-the-next-miracle/</guid>
		<description><![CDATA[Last year, one of the issues I was struck by in reading the comments on a few patient-oriented websites when I really began in earnest to participate in the online sites was the tension that can occur all too often between patients and oncologists. There are certainly many potential pitfalls, but one of the common [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2007/03/14/ebm-when-miracles-are-needed-fast/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
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		<title>Risk vs. Benefit When Fighting Cancer</title>
		<link>http://cancergrace.org/general/2006/12/27/risk-vs-benefit/</link>
		<comments>http://cancergrace.org/general/2006/12/27/risk-vs-benefit/#comments</comments>
		<pubDate>Wed, 27 Dec 2006 22:22:50 +0000</pubDate>
		<dc:creator>Dr West</dc:creator>
		
		<guid isPermaLink="false">http://onctalk.com/2006/12/27/risk-vs-benefit/</guid>
		<description><![CDATA[Yesterday, a member here made a very fair comment (here) after one of my recent posts in which I raised my concern about giving treatments without evidence to support it. The issue was whether it is really appropriate to be so protective and insular in my thinking in a setting in which patients with lung [...]]]></description>
		<wfw:commentRss>http://cancergrace.org/general/2006/12/27/risk-vs-benefit/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
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