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Dr West

GRACE Highlights from 2014: Please Help Us for 2015 and Beyond!


In person and on the GRACE website, we often hear people express their profound thanks for the free services and especially the thoughtful, timely information we provide when people need it most. And unlike many other sources of information, you know that there is a person behind that perspective, and on our better days we foster a sense of a community of people working toward a common goal. We strive to do that without peppering people with frequent requests for financial support.

As we come to the end of 2014, I’d like to highlight some of our achievements for this past year and request that you please consider contributing to GRACE. We have provided several new initiatives, and we need more support to ensure sustainable progress.

ROS1 patients at the Acquired Resistance Patient Forum, September 2014

ROS1 patients at the Acquired Resistance Patient Forum, September 2014

First, 2014 marked a big transition as we launched 3 separate live patient forums, in Santa Monica in February, then Boston in September, and most recently in Chicago in late October. These programs brought together over 200 people who expressed profound appreciation of the opportunity to connect with other patients facing similar circumstances, as well as with many of the experts on our faculty, which included both global leaders in the topic of the day as well as patient advocates.

For some, it was an opportunity to finally meet people with whom they have felt an online kinship for months or years. It was even an opportunity to convene probably the largest group of ROS1 rearrangement-positive patients in one place, ever. These programs were all captured on video to provide the insights from the day to a broad audience of people around the world who could benefit from these presentations.

We also offered a huge amount of new content throughout the year, all the way from our highlights of last year into new molecular targeted therapies and other new research presented at the “Targeted Therapies in Lung Cancer” conference in Southern California to commentary from our big annual ASCO meeting, and more. Altogether, we have added more than 120 videos this year.

Tannir vid freezeAt the same time, we still provide news content in text form, with about 50 written updates of news blogs that are easy to share. We’re also putting our more and more of our content on social media channels, including Twitter, Facebook, YouTube, and others.

We truly need support from our audience to ensure that we can continue to provide great content at no cost to the people who need it. We know that many people are very grateful for the support and insight we provide, but we need support from others to continue with a sustainable model for the future.

I don’t receive any pay for the work I do for GRACE, and I put my money where my mouth is by donating to GRACE. I hope that you also find GRACE worthy of your support and will provide a tax-deductible gift to GRACE as well. 

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