GRACE :: Lung Cancer
Denise Brock

Targeted Therapies in Lung Cancer Patient Forum 2017 – Presentations and Handouts

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Videos from the webcast Targeted Therapies Patient Forum 2017 are available for viewing, and for those who prefer to read the material, GRACE has made all speaker presentations and handouts available.  We have also included links to helpful social media and patient groups.  

Again, huge thanks to all of the faculty who spent their Saturday in Cleveland with our community, and thanks also to those organizations who sponsored this event – Astra Zeneca, Takeda, Boehringer Ingelheim, Ignyta, Novartis, Genentech, Caris, and Guardant Health.  

We started the day out with a warm welcome from our Forum Chair – Dr. Nathan Pennell.  For the full agenda, faculty list, presentations, and videos from the webcast, please visit the ‘webcast details’ page, available via this link.  For those who would like to view the presentations from the Targeted Therapies Patient Forum in Cleveland, please view and download all presentations and handouts here, or continue on for a list of what is available.   

The morning sessions kicked off with a warm welcome from Dr. Pennell.  

General Session
 
The Many Faces of Progression
Dr. Nathan Pennell, Cleveland Clinic Cancer Center  
Pennell – The Many Faces of Progression
 
The Role of Local Therapy
Dr. Shirish Gadgeel, Michigan Medicine, University of Michigan  
Gadgeel – Local Therapy  
 
Biopsies & Re-biopsies
Dr. Karen Reckamp, City of Hope Comprehensive Cancer Center 
Reckamp – Biopsy and Re-biopsy
 
The Question of Clinical Trials
Dr. Alice Shaw, Massachusetts General Hospital
Shaw – Question of Clinical Trials
 
The Crossroads:
Local Therapy, Chemo, Targeted  Therapy, or Immunotherapy?
Panel Discussion with Drs. Pennell,  Gadgeel, Reckamp, and Shaw, and patients John Cherol (EGFR), Matt  Hiznay (ALK), and Sara Whitlock (RET), Moderator: Dr. H. (Jack) West
 
After lunch the breakout discussions continued: 
 
ALK/ROS1
Dr. Alice Shaw, Dr. Shirish Gadgeel, and Matt Hiznay, ALK patient
Shaw ALK/ROS1 Breakout  
Gadgeel – ALK Breakout
Hiznay ALK Breakout 
ROS1ders Information
 
ALK-positive NSCLC: ALK Positive
“ALK Positive” on Facebook (closed group): https://www.facebook.com/groups/ALKPositive/ 
“ALK Positive Outreach” on Facebook (public group): https://www.facebook.com/groups/ALKPositiveOR/
 
ROS1-positive cancer (any cancer):  The ROS1ders
“ROS1 Positive (ROS1+) Cancer” on Facebook (private group):  https://www.facebook.com/groups/ROS1cancer/
“ROS1 Cancer Research Forum” on Facebook (public community): https://www.facebook.com/ROS1CancerResearchForum/
“The ROS1ders” website: http://ros1cancer.com
ROS1ders Information
 
EGFR
Dr. Nathan Pennell, Dr. H. (Jack) West, and John Cherol, EGFR patient
West – EGFR Acquired Resistance  
Pennell – EGFR Initial Treatment
 
EGFR-positive NSCLC
“LUNGevity EGFR Group” on Facebook (closed group): https://www.facebook.com/groups/EGFRlung/
EGFR-positive patients who have developed resistance to at least one TKI
EGFR Resisters Lung Cancer Patient Group” on Facebook: https://www.facebook.com/groups/1992981107603006/
EGFR-positive Exon 20 insertion cancer (any cancer)
“Exon20 Group” website http://www.exon20group.org/
 
MET/RET/BRAF
Dr. Karen Reckamp, Dr. Vamsidhar  Velcheti, and Sara Whitlock, RET patient 
Reckamp – MET-RET-BRAF breakout
Velceti – MET RET Breakout
 
RET-positive NSCLC
“LUNGevity RET Group” on Facebook: https://www.facebook.com/groups/1230457690298084/
 
The day concluded with the afternoon general session: 
 
General Session
 
Managing the Cost of Cancer Care
Dr. James P. Stevenson, Cleveland Clinic Cancer Center
Stevenson -Managing the Cost of Cancer Care
 
Patient to Patient Mentoring
Kathryn Sefcek, MHA, 4th Angel Mentoring Program  
4th Angel Mentoring Program Information
4th Angel Mentoring Program
 
Caveat Emptor: Assessing Cancer Information from Sources of  Varying Quality  
Dr. H. (Jack) West, Swedish Cancer Institute & Founder of  cancerGRACE, and Janet Freeman-Daily, ROS1 patient,  #LCSM Twitter Chat co- moderator, Cure  Today contributor, blogger.
West – Caveat Emptor: Assessing Cancer Information from Sources of Varying Quality
Find Trusted Online Info About Lung Cancer 

Please feel free to offer comments and raise questions in our Discussion Forums.


GRACE would like to thank the following sponsors for their support of this program

 


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