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ALK Positive Lung Cancer

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In February 2014, GRACE gathered experts in ALK positive lung cancer to lead a patient forum. Speakers were Dr. Alice Shaw, Dr. Ross Camidge, Dr. Jared Weiss, and Dr. Jack West.
 
ALK+ Patient Forum 2014Please note, the information presented below was accurate in February 2014, but progress in ALK positive treatments moves quickly. If you have questions about the information in these videos, please post them in the GRACE forum.

ALK Positive Lung Cancer Forum 2014: ALK Rearrangements in Lung Cancer
ALK Rearrangements in Lung Cancer – 12:28
 
The doctors discuss the history of ALK in lung cancer treatments and what the ALK rearrangement means for patients.
 
ALK Positive Lung Cancer Forum 2014: Xalkori
Xalkori – 4:26
 
Xalkori (crizotinib) was one of the fastest approved drugs in cancer treatment history because of its high efficacy levels in ALK positive lung cancer patients. In this video, the doctors discuss what took place as it raced to approval, as well as the limitations and side effects of the drug.
 
ALK Positive Lung Cancer Forum 2014: Testing for ALK
Testing for ALK – 9:42
 
Who should be tested for ALK? How is ALK tested and how reliable are the results? In this video, the doctors discuss several issues surrounding the issue of testing for ALK, including what the medical guidelines suggest for testing lung cancer patients for genetic mutations.
 
ALK Positive Lung Cancer Forum 2014: Can I Pass ALK Onto My Children
Can I Pass ALK Onto My Children – 2:40
 
ALK positive lung cancer typically shows up in people do not appear to be at high risk for the disease, so is this something that a lung cancer patient can pass on to his or her children? The doctors discuss what research shows on this issue.
 
ALK Positive Lung Cancer Forum 2014: Risk of Flare After Stopping Targeted Therapy
Risk of Flare After Stopping Targeted Therapy – 3:56
 
The doctors discuss how patients can navigate the tricky waters of stopping therapy while avoiding painful and sometimes life-threatening flare.
 
ALK Positive Lung Cancer Forum 2014: Scanning for Progression
Scanning for Progression – 11:28
 
How often should ALK patients receive scans to determine if their disease has progressed in various parts of the body? 
 
ALK Positive Lung Cancer Forum 2014: Disease Progression While on Xalkori
Disease Progression While on Xalkori – 5:52
 
New treatments for ALK rearrangements are on the horizon. In this video, the doctors discuss how they determine whether or not they change treatments for their patients once they begin to show progression while on Xalkori (crizotinib).
 
ALK Positive Lung Cancer Forum 2014: Next Generation ALK Inhibitors
Next Generation ALK Inhibitors – 19:47
 
Several new treatments for ALK positive lung cancer patients are on the horizon. In this video, the doctors discuss them while patients in the audience share some of their experiences with side effects on various treatments.
 
ALK Positive Lung Cancer Forum 2014: Repeat Biopsies
Repeat Biopsies – 3:54
 
Why would an ALK lung cancer patient need a repeat biopsy? The doctors discuss the need for and frequency of repeat biopsies.
 

8 Responses to ALK Positive Lung Cancer

  • bdaddy says:

    Lots of learning and sharing.

  • gbbfun says:

    Thank you for posting. Although I attended the conference there was just too much to absorb in such a short period of time.

  • squanch says:

    When I click to watch any of these videos, a black box appears on the page saying “Invalid Source.” Help!

  • Hi Squanch, We’re having a little trouble with these ALK videos and are working on a solution. In the meantime, you should be able to view them fine if you use the Google Chrome browser (a free install at https://www.google.com/intl/en/chrome/browser/ ). Sorry for the inconvenience. -Mark

  • seesken says:

    Can anyone tell me the best way to book the Omniparker Hotel for Sep forum as I lost the link and I know there was a discount code.
    Thank you
    Simone

  • Denise Brock
    dbrock says:

    Hi there Simone – look at this page – http://cancergrace.org/acquired-resistance-patient-forum-september-6-2014, the code is there as well as the link for the hotel.

    Thanks!
    Denise

  • mconn says:

    Hi Denise,
    I am new to site (diagnosed ALK+ in July – patient at Dana Farber) and was sent the link to the event – would love to go but it falls on my birthday and my sisters will be visiting. If you attend, would you mind sharing your thoughts afterwards? Sorry to miss.
    Thanks much,
    Margaret

  • Denise Brock
    dbrock says:

    Hi Margaret –
    We will have videos available post event, and are also working on a webcast. Either of those would be probably your best bet for information afterward. Keep your eye on the website for further info.

    We also will soon be posting info about the next event, so again, look for info on http://www.cancerGRACE.org for that coming up!

    And – have a lovely birthday and visit with your family!
    Regards –
    Denise

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