GRACE :: Lung Cancer

Janet Freeman-Daily

Denise Brock

Targeted Therapies Patient Forum September 2017 Speaker Highlight – Janet Freeman Daily

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***Speaker Highlights***

for full faculty bio’s, please visit our FACULTY page


 Learn about Janet Freeman-Daily, ROS1 patient, #LCSM Twitter Chat co-moderator, Cure Today contributor, Gray Connections blogger

 

Janet Freeman-Daily is a writer, science geek, and lung cancer patient/activist. She received a diagnosis of advanced non-small cell lung cancer in May 2011 which became metastatic despite chemotherapy and radiation.  After learning about genomic testing and precision medicine in online patient communities, she joined a clinical trial for ROS1-positive lung cancer and has had no evidence of disease for over four years.

After twenty years in aerospace systems engineering, Janet is now a full-time patient activist who translates the experience and science of lung cancer treatment and research to improve outcomes and quality of life for lung cancer patients. She co-moderates the Lung Cancer Social Media (#LSCM) Chat on Twitter as @JFreemanDaily, blogs at grayconnections.net, and is one of the leaders of the Global ROS1 Initiative. She has spoken at events and on videos for lung cancer advocacy organizations, hospitals and cancer research centers, oncology conferences, President’s Cancer Panel workshops, and the National Cancer Institute. 

 


 

To see more Janet Freeman-Daily on GRACE, please visit this link
Please feel free to offer comments and raise questions in our Discussion Forums.


Targeted Therapies in Lung Cancer Patient Forum

September 16, 2017

Presented by the Global Resource for Advancing Cancer Education in collaboration
with the Cleveland Clinic Cancer Center

See below for our growing list of topics and presenters!  

Register at cancerGRACE.org | Agenda is subject to change

8:30 – 10:00 am        The Many Faces of Progression
Dr. Nathan Pennell Cleveland Clinic Cancer Center The Role of Local Therapy
Dr. Shirish Gadgeel Karmanos Cancer Center, Wayne State University Biopsies & Re-biopsies
Dr. Karen Reckamp, City of Hope
10:30 – noon       
The Question of Clinical Trials
Dr. Alice Shaw Massachusetts General Hospital The Crossroads: Local Therapy, Chemo, Targeted Therapy, or Immunotherapy? 
Panel Discussion with Drs. Pennell, Gadgeel, Reckamp, and Shaw, and patients Matt Hiznay (ALK) and Sara Whitlock (RET). Moderator: Dr. H. (Jack) West

BREAKOUT SESSIONS

1:00 – 2:30 pm     
 
Presentations by Lung Cancer Sub-type
*Available treatment options 
*Acquired resistance: How do you pick your next treatment? 
ALK/ROS Dr. Alice Shaw, Dr. Shirish Gadgeel, & Matt Hiznay, ALK patient
EGFR Dr. Nathan Pennell, Dr. H. (Jack) West, & John Cherol, EGFR patient
MET/RET/BRAF Dr. Karen Reckamp, Dr. Vamsidhar Velcheti (Cleveland Clinic Cancer Center), & Sara Whitlock, RET patient

BREAKOUT SESSIONS

2:50 – 4:00 pm     
 
Managing the Costs of Cancer Care
James P. Stevenson, MD Cleveland Clinic Cancer Center
Patient to Patient Mentoring
Kathryn Sefcek, MHA 4th Angel Mentoring Program
Avoiding Fake News & Finding Trustworthy Cancer Info Online
Dr. H. (Jack) West Swedish Cancer Institute & Founder of cancerGRACE
Janet Freeman-Daily ROS1 patient, #LCSM Twitter Chat co-moderator, Cure Today contributor, Gray Connections blogger

 Please feel free to offer comments and raise questions in our Discussion Forums.

 GRACE would like to thank the following companies for their support of this forum:

B-I for web           
Guardant

 

 


GRACE Video

Panel Q&A Session on Patient Access and Survivorship

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AR_2015_QA_Bietry_West_Freeman_Patient_Access_Survivorship

 

Dr. Jack West, Brendan Bietry, and Janet Freeman-Daily take questions from the audience about financial assistance, legal protections, and patient support.

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Please feel free to offer comments and raise questions in our Discussion Forums.


GRACE Video

Living with Lung Cancer

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AR_2015_Freeman_Living_With_Lung_Cancer_Survivorship

 

Janet Freeman-Daily, a ROS1 lung cancer patient since 2011, talks about the importance of patients’ involvement in their own health care and the support that exists online to help patients navigate the system.

How Did You Like This Video?

Please feel free to offer comments and raise questions in our Discussion Forums.


GRACE Video

Panel Q&A Session on ALK+ and ROS1 Acquired Resistance with Drs. Horn and Owonikoko

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AR_2015_QA_Horn_Freeman_Owonikoko_ALK_ROS1

 

Janet Daily-Freeman moderates a question & answer session with Drs. Leora Horn and Taofeek Owonikoko on issues of acquired resistance to targeted therapies for ALK+ and ROS1 patients.

How Did You Like This Video?

Please feel free to offer comments and raise questions in our Discussion Forums.


GRACE Video

November is Lung Cancer Awareness Month

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LCAM 2015

 

Even in the world of lung cancer, there are things to be grateful for. This November, join GRACE as we celebrate them with doctors, patients and caregivers.

Watch, read, and then share your own stories of empowerment in our online forum. Your story may inspire others.

How Did You Like This Video?

Check out more LCAM videos & posts here.


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