GRACE :: Lung Cancer


Denise Brock

Targeted Therapies in Lung Cancer Patient Forum 2017 Speaker Presentations




Speaker presentations & handouts

8:30 – 10am

 General Session
 The Many Faces of Progression
 Dr. Nathan Pennell
 Cleveland Clinic Cancer Center
 The Role of Local Therapy
 Dr. Shirish Gadgeel
 Michigan Medicine, University of Michigan
 Biopsies & Re-biopsies
 Dr. Karen Reckamp
 City of Hope Comprehensive Cancer Center 


  Pennell, Gadgeel, Reckamp – Morning General Session Combined 
  Pennell – The Many Faces of Progression
  Gadgeel – Local Therapy  
  Reckamp – Biopsy and Re-biopsy

10:30 – noon

 General Session
 The Question of Clinical Trials
 Dr. Alice Shaw
 Massachusetts General Hospital
 The Crossroads:
 Local Therapy, Chemo, Targeted  Therapy, or Immunotherapy?
 Panel Discussion with Drs. Pennell,  Gadgeel, Reckamp, and Shaw,
 and patients John Cherol (EGFR), Matt  Hiznay (ALK),
 and Sara Whitlock (RET).
 Moderator: Dr. H. (Jack) West
    Shaw – Question of Clinical Trials

1pm – 2:30

  Lung Cancer Sub-Type Break-Outs
 Dr. Alice Shaw, Dr. Shirish Gadgeel,
 and Matt Hiznay, ALK patient
  Shaw ALK/ROS1 Breakout  
  Gadgeel – ALK Breakout
  Hiznay ALK Breakout 
  ROS1ders Information

ALK-positive NSCLC: ALK Positive
“ALK Positive” on Facebook (closed group): 
“ALK Positive Outreach” on Facebook (public group):

ROS1-positive cancer (any cancer):  The ROS1ders
“ROS1 Positive (ROS1+) Cancer” on Facebook (private group):
“ROS1 Cancer Research Forum” on Facebook (public community):
“The ROS1ders” website:
 Dr. Nathan Pennell, Dr. H. (Jack) West,
 and John Cherol, EGFR patient
  West – EGFR Acquired Resistance  
  Pennell – EGFR Initial Treatment
EGFR-positive NSCLC
“LUNGevity EGFR Group” on Facebook (closed group):
EGFR-positive patients who have developed resistance to at least one TKI
EGFR Resisters Lung Cancer Patient Group” on Facebook:
EGFR-positive Exon 20 insertion cancer (any cancer)
“Exon20 Group” website
 Dr. Karen Reckamp, Dr. Vamsidhar  Velcheti, and Sara Whitlock, RET patient 
  Reckamp – MET-RET-BRAF breakout
  Velceti – MET RET Breakout
RET-positive NSCLC
“LUNGevity RET Group” on Facebook:

2:50 – 4pm

 General Session
 Managing the Cost of Cancer Care
 Dr. James P. Stevenson
 Cleveland Clinic Cancer Center
 Patient to Patient Mentoring
 Kathryn Sefcek, MHA
 4th Angel Mentoring Program
 Caveat Emptor: Assessing Cancer Information from Sources of  Varying Quality  
 Dr. H. (Jack) West
 Swedish Cancer Institute & Founder of  cancerGRACE
 and Janet Freeman-Daily, ROS1 patient,  #LCSM Twitter Chat co- moderator, Cure  Today contributor, blogger
  Stevenson -Managing the Cost of Cancer Care
  4th Angel Mentoring Program Information
  4th Angel Mentoring Program
  West – Caveat Emptor: Assessing Cancer Information from Sources of Varying Quality
  Find Trusted Online Info About Lung Cancer
  ROS1ders Information

GRACE would like to thank the following companies for their support of this forum: