Topic: Another NED report | GRACE

This topic has 19 voices, contains 20 replies, and was last updated by aunttootsie001 56 days ago.

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February 15, 2012 at 1:45 pm #6226
mikem	Just a short note to let you all know I had another scan and another report of NED. I am 16 months out from surgery and my new oncologist (the old one left for greener pastures) was very pleased and is also going to have my port removed. We will continue with 4 month scans until 2 years. I also had a long discussion about the single focus on my hip and they are very convinced that it is nothing to worry about since nothing has changed and I have been 17 months without chemo. Great news for sure. –mikem 54 year old former smoker diagnosed w/Stage IV NSCLC Adenocarcinoma 10/20/09 Completed 6 carbo/alimta followed by 10 Alimta maintenance. Biopsy of iliac negative for metastatic disease. Might not have been a stage IV after all. On to surgery…. removed lung. All lymph nodes clear 11-17-10. Feb 2012 still NED, next scan June
February 15, 2012 at 2:15 pm #6227
fortmyr	Congratulations Mike! This is wonderful news. I’m really happy for you. I hope you get many more NEDs to come Myriam Sister (now 45 yo), non-smoker, diagnosed stage 4 NSCLC 12/2009. 12/09-03/10: 5 cycles of cisplatin+navelbine (stopped because of neuropathy). 04/10-06/11:Tarceva (has EGFR, exon 21 mutation). 02/11: 15Xrad. to right lung (bronchi blocked). 04/11: MRI shows 10 mets to brain. 05/11: 5 sessions of WBRT (20 Gy). 06/11-12/11: maintenance Alimta. 11/11 and 01/12: radiosurgery (15 Gy) to 2+3 brain mets. 12/11-03/12: re-Tarceva. 04/12: Afatinib/Keppra/decadron (convulsions)
February 15, 2012 at 2:45 pm #6233
certain spring	Hurrah. And there was I thinking NED was a ladies’ man! That is great news. 48-year-old non-smoker, dx stage IV NSCLC May 2010 (squamous tumour of the left lung with multiple brain metastases). Radiotherapy to chest and brain; progressed through two cycles carbo/gemcitabine. Repeated lung collapses; pneumonia in collapsed lung, Nov 2010; bronchial stent placed, Dec 2010. Declined second-line Taxotere. Mutation testing Feb 2011, surprise EGFR exon deletion 19, ALK negative. Started Tarceva (150mg), Feb 2011.
February 15, 2012 at 5:13 pm #6237
Dr Walko	Congratulations, Mike! Thanks for sharing your wonderful news and wishing “NED” to be a constant in your life for the years to come! Dr. Walko +++++++++++++++++++++++++++++++ Christine Walko, Pharm. D University of North Carolina-Chapel Hill Views expressed here represent my opinion, not those of GRACE or University of North Carolina-Chapel Hill. This information does not constitute medical advice and is intended to supplement and not replace medical information provided by your doctor.
February 15, 2012 at 7:06 pm #6242
Dr West	Mike, I’m very happy for you. That’s terrific news, and the fact that anyone is making plans with an outlook of years is extremely favorable. It’s great for all of us to see someone doing so well. Good for you! -Dr. West +++++++++++++++++++++++++ Howard (Jack) West, MD Medical Oncologist Views expressed here represent my opinion, not those of GRACE or Swedish Cancer Institute. This information does not constitute medical advice and is intended to supplement and not replace medical information provided by your doctor.
February 15, 2012 at 8:51 pm #6247
laya d.	YAHOOOOOOOOOOOOOO!!!!!! What a wonderful bit of news!!!! Thank you Mike foe delivering it to us and for being NED!!! Laya 1/10 – My Mom (58) dx w/ NSCLC-Adeno 3a; 1 cycle of neoadjuvent Carbo/Alimta before finding out EGFR+ (Ex. 19), then switched to 7 wks of neoadjuvent Tarceva/150 mg (major shrinkage); 4/10 – right pneumonectomy; 6/10 started 3 rounds of adjuvent Cis/Alimta w/ concurrent chest radiation (7 wks); 8/10 – NED; 11/10 – small nodule in left lung; 1/11 – 3 small nodules in left lung, start Tarceva/100 mg; 4/11 – suspected sclerotic met to hip, continue w/ Tarceva, add XGEVA, brain MRI clear; 9/11 – solitary 3 cm met (adeno w/ T790m mutation) to cerebellum, surgery and gamma knife, up Tarceva to 150 mg; 11/11 – 2 left lung nodules growing, biopsy on 1 shows mutation from adeno to squamous (shocker!), brain MRI clear, continue Tarceva & Xgeva; 2/12 – brain MRI clear, CT scan, remaining nodule slightly bigger – – monitor for now, Tarceva (reduced to 100 mg) & Xgeva continued; 4/12 progression and rebiopsy (confirmed adeno), stop Tarceva, switch to Carbo/Alimta.
February 16, 2012 at 5:40 am #6262
markg	WOW! Mike, that is fantastic. I am so happy for you. Markg Wife,Mary, 57 year old never smoker. Stage IV NSCLC. 5/5/2011 PET/CT extensive mets, chest, lymph nodes, abdomen, bones May 2011 2x Carbo/Taxotere 6/15/11 PET/CT -major shrinkage from chemo. June 2011 EGFR mutation in exon 20 (R776H) and exon 21 (L868R). Tarceva started mid June 2011 12/29/11 PET/CT – still on Tarceva; no hypermetabolic activity at all, most lesions/masses no longer visible. some sclerosis of spine “consistent with treatment”
February 16, 2012 at 10:04 am #6274
double trouble	HAPPY DANCE! 09/10 CT Bil. GGO’s 12/10 L L VATS Ib Adeno/BAC 05/11 CT L Stable RU 1.3 cm nodule, stations 1 & 2r LN 08/11 PET/CT L Stable, mild uptake in R nodule and lymph nodes 09/11 EBUS N1 and N2 lymph nodes + 2nd Primary Stage IIIb KRAS+ 10/11 Start chemorad Cisplatin 11/11 Stop chemorad after 4 rounds/3800cGy (low blood counts) 12/11 PET/CT Shrinkage, no FDG uptake 03/12 PET/CT Stable R nodule FDG avid lymph nodes “suspicious” Next scan 06/12
February 17, 2012 at 8:38 am #6316
Lembird	Mike, So happy for you… congratulations and many more NED years. God bless, Lembird
February 17, 2012 at 4:27 pm #6339
Terryl	It doesn’t get any better than that! Congrats! Terry If it ain’t one thing, its another Thoracotomy for adenocarcinoma May 2006. Recurrence 2007,stage IV, carbo and gemzar,6 cycles, Sept -October 2007, complete response. Recurrence, treatment with Alimta October 2008-February 2011. SBRT to 2 left lung lesions April 2011. Pending SBRT to RUL lesion……..
February 17, 2012 at 5:22 pm #6343
Dr Harman	Fantastic news! I’m sorry I didn’t see this until today–I’m a bit clutsy in my navigation, getting better around the forums… -Dr. Harman ++++++++++++++++++++++++++++++++++ Stephanie Harman, MD Medical Director, Palliative Care Program Stanford University Medical Center The views expressed here do not constitute medical advice and respresent my own views and not necessarily those of GRACE or Stanford University Medical Center.
February 22, 2012 at 8:19 am #6539
catdander	I can’t believe it’s been 16 months since your surgery! and Congratulations! Make it last and last… Janine husband: 8/25/09 thoracotomy biop dx stage 3a squam nsclc pancoast tumor, 9/16-11/4/09 chemorads cis/etop, 10/30 c3 met stage 4, 11/9-20 rads to c3 & t6, 11/9-1/18/2010 carbo/navelbine, Feb-Nov tarceva. First progression 11/29/2010. gemzar started 12/14/2010… still on gemzer 2/2012. Most recent scan March 23 suggests NED continue Gemzar 3 months.
February 22, 2012 at 3:55 pm #6569
mikem	Thank you all for the congrats and well wishes. It means an awful lot. I had the port removed today, so another milestone. –mike 54 year old former smoker diagnosed w/Stage IV NSCLC Adenocarcinoma 10/20/09 Completed 6 carbo/alimta followed by 10 Alimta maintenance. Biopsy of iliac negative for metastatic disease. Might not have been a stage IV after all. On to surgery…. removed lung. All lymph nodes clear 11-17-10. Feb 2012 still NED, next scan June
February 22, 2012 at 6:57 pm #6575
Dr Hensing	I want to express my congratulations as well. Thank you for sharing your good news! Dr. Hensing +++++++++++++++ Medical Oncologist, NorthShore University HealthSystem Clinical Associate Professor, University of Chicago Views expressed here represent my opinion, not those of GRACE, the NorthShore University HealthSystem or the University of Chicago. This information does not constitute medical advice and is intended to supplement and not replace medical information provided by your doctor.
February 22, 2012 at 8:40 pm #6581
laya d.	YAYYYYY!!! And Janine is right. . .time really has flown by. . . Here’s to a LIFETIME of NED scans, Mike! xoxo, Laya 1/10 – My Mom (58) dx w/ NSCLC-Adeno 3a; 1 cycle of neoadjuvent Carbo/Alimta before finding out EGFR+ (Ex. 19), then switched to 7 wks of neoadjuvent Tarceva/150 mg (major shrinkage); 4/10 – right pneumonectomy; 6/10 started 3 rounds of adjuvent Cis/Alimta w/ concurrent chest radiation (7 wks); 8/10 – NED; 11/10 – small nodule in left lung; 1/11 – 3 small nodules in left lung, start Tarceva/100 mg; 4/11 – suspected sclerotic met to hip, continue w/ Tarceva, add XGEVA, brain MRI clear; 9/11 – solitary 3 cm met (adeno w/ T790m mutation) to cerebellum, surgery and gamma knife, up Tarceva to 150 mg; 11/11 – 2 left lung nodules growing, biopsy on 1 shows mutation from adeno to squamous (shocker!), brain MRI clear, continue Tarceva & Xgeva; 2/12 – brain MRI clear, CT scan, remaining nodule slightly bigger – – monitor for now, Tarceva (reduced to 100 mg) & Xgeva continued; 4/12 progression and rebiopsy (confirmed adeno), stop Tarceva, switch to Carbo/Alimta.
February 25, 2012 at 12:32 pm #6730
reginac	Hooray for you! Champagne on the house!
February 25, 2012 at 1:05 pm #6734
HamptonsBoy	GREAT NEWS! I wish you many more to come. Sean
February 25, 2012 at 1:10 pm #6736
cards7up	Congrats Mike and Happy Dance time! So sorry I missed when you first posted (can’t imagine how). May you continue on that Happy Road of NED! Take care, Judy Stage IIIA adeno, dx 7/2010. SRS then chemo carbo/alimta 4x. NED as of 10/2011.
February 25, 2012 at 1:26 pm #6738
gn21	Fantastic news and encouraging for all of us out there in cancer land Gail Diagnosed February 2009. Failed resection and restaged to Stage 4. Disappointing results from chemo. Commenced tarceva/pertuzumab clinical trial August 2009. Tumors reduced to scar tissue only. Progression acknowledged August 2011. Ceased trial, increased tarceva to 150mg. Progression continued. Commenced new clinical trial March 2012. Initial results good but struggling with side effects April 2012. Still planning holidays.
March 25, 2012 at 12:00 am #8118
forherbie	Great news Mike— we need more Neds—-so glad you have one. Anne Husband 81 Dx 9/2011 Adeno T3N2M0 RUL/RLL/LLL IIIA “going for cure” 33 Rad/Carbo&Taxel to RUL & med nodes ended 11/2010 Cough & Weak #1 CT tumors reduced & normal lymph nodes #2 CT no change #3 CT 6/2011 (at 10 months) progression several sm. new spots in LLL Rt pleural fluid RUL medial fibrosis 9/11 Tarceva #4CT 11/11 tumor reduction