Side affects after Radiation

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This topic contains 18 replies, has 4 voices, and was last updated by  aunttootsie001 2 years, 4 months ago.

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April 24, 2012 at 11:29 am  #1435    

aunttootsie001

Well Radiation ended March 7 th. which gave me about 3 weeks to recover enough to enjoy my Trip to Florida. Which for the most part, I was. I still had mild Esophogitis and mild Spasms too. Fatigue in General meaning I felt a bit Slugish at times and was ready for Bed fairly early. But my main issue just before and while on Trip is a very Tender Spot lower left breast. It is in the area I had Radiation. So glad I see my Radiation ONC tomorrow and hoping it will go away soon. Has anyone had this issue before? I had Mammiogram last June 21st. And my CT is already Scheduled for May 1st. Concerned something may show up because of this spot. It is really tender. No Lump that I can feel. Would appreciate any input. Will repost after my appointment!


DX June 2011, Non smoker. Lobectomy August. 2011. Two TX Carbo/Taxol. 31 TX Radiation 2012. Break no treatment 8mo. Malignant Pleural Effusion discovered Oct. 2012. Xalkori started Nov. 2012. Pleurodisis done April 2013. Last CT still NED.

April 24, 2012 at 2:44 pm  #1436    

cards7up

It could be scarring caused by the radiation. I have it in my pectoral muscle and in the armpit. Depending on where it is, it can be tender. Wishing you the best.Take care, Judy


Stage IIIA adeno, dx 7/2010. SRS then chemo carbo/alimta 4x. NED as of 10/2011. Local recurrence, surgery to remove LRL 8/29/13. Chemo carbo/alimta x3.

April 24, 2012 at 7:14 pm  #1437    

Dr West

It may improve, or it may lead to more permanent fibrosis (i.e., scarring). I suspect that mammograms can distinguish between post-radiation scarring and suspicious findings for cancer, since they are routinely done for women who undergo radiation to the breast after a lumpectomy.

Good luck.

-Dr. West


Howard (Jack) West, MD
Medical Oncologist

Views expressed here represent my opinion, not those of GRACE or Swedish Cancer Institute. This information does not constitute medical advice and is intended to supplement and not replace medical information provided by your doctor.

April 25, 2012 at 9:15 pm  #1438    

aunttootsie001

Well Radiation Dr. Said he hadn’t have anyone with this issue. So I either can call my Genocologist or wait and see what my Med. Oncologist thinks. I’m not due for Mamiogram until June but I suppose if she orders one it wouldn’t matter if it were early. All I know is it is painful and annoying. Maybe since I don’t see her until May 7th maybe I should call and see what they think? Before I add another Dr. To the mix? Thanks Guys! Your input is very helpful!


DX June 2011, Non smoker. Lobectomy August. 2011. Two TX Carbo/Taxol. 31 TX Radiation 2012. Break no treatment 8mo. Malignant Pleural Effusion discovered Oct. 2012. Xalkori started Nov. 2012. Pleurodisis done April 2013. Last CT still NED.

April 26, 2012 at 6:26 pm  #1439    

Dr West

I think it’s a judgment call among these alternatives. I’ll be interested to hear what you find out about this.

-Dr. West


Howard (Jack) West, MD
Medical Oncologist

Views expressed here represent my opinion, not those of GRACE or Swedish Cancer Institute. This information does not constitute medical advice and is intended to supplement and not replace medical information provided by your doctor.

April 26, 2012 at 10:30 pm  #1440    

laya d.

I’d call the med. onc. first. . .

Laya


1/10 – My Mom (58) dx w/ NSCLC-Adeno 3a; 1 cycle of neoadjuvent Carbo/Alimta before finding out EGFR+ (Ex. 19), then switched to 7 wks of neoadjuvent Tarceva/150 mg (major shrinkage); 4/10 – right pneumonectomy; 6/10 started 3 rounds of adjuvent Cis/Alimta w/ concurrent chest radiation (7 wks); 8/10 – NED; 11/10 – small nodule in left lung; 1/11 – 3 small nodules in left lung, start Tarceva/100 mg; 4/11 – suspected sclerotic met to hip, continue w/ Tarceva, add XGEVA, brain MRI clear; 9/11 – solitary 3 cm met (adeno w/ T790m mutation) to cerebellum, surgery and gamma knife, up Tarceva to 150 mg; 11/11 – 2 left lung nodules growing, biopsy on 1 shows mutation from adeno to squamous (shocker!), brain MRI clear, continue Tarceva & Xgeva; 2/12 – brain MRI clear, CT scan, remaining nodule slightly bigger – – monitor for now, Tarceva (reduced to 100 mg) & Xgeva continued; 4/12 progression and rebiopsy (confirmed adeno), stop Tarceva, switch to Carbo/Alimta; 6/12 maintenanceAlimta; 8/12 back to Tarceva; 10/12 Gemzar; 11/16 difficulty breathing; 12/12 hospice initiated…my Mom passed away peacefully on 12/19/12. Heartbroken.

May 5, 2012 at 12:32 am  #1461    

aunttootsie001

Well I did Call Med ONC and to alleviate stress and worry she sent me for Diagnostic Mamiogram which proved to be Neg. so will know more after I see my ONC on Monday! Seems just a bit better but I’ve been wearing a Bra 24/7. Uncomfortable but less noticeable discomfort! Will keep you posted. May have more Questions? Keep comments coming! They are helpful and omforting!


DX June 2011, Non smoker. Lobectomy August. 2011. Two TX Carbo/Taxol. 31 TX Radiation 2012. Break no treatment 8mo. Malignant Pleural Effusion discovered Oct. 2012. Xalkori started Nov. 2012. Pleurodisis done April 2013. Last CT still NED.

May 7, 2012 at 9:03 pm  #1463    

laya d.

Yay on the negative mammo. . .and please do keep us posted!

Laya


1/10 – My Mom (58) dx w/ NSCLC-Adeno 3a; 1 cycle of neoadjuvent Carbo/Alimta before finding out EGFR+ (Ex. 19), then switched to 7 wks of neoadjuvent Tarceva/150 mg (major shrinkage); 4/10 – right pneumonectomy; 6/10 started 3 rounds of adjuvent Cis/Alimta w/ concurrent chest radiation (7 wks); 8/10 – NED; 11/10 – small nodule in left lung; 1/11 – 3 small nodules in left lung, start Tarceva/100 mg; 4/11 – suspected sclerotic met to hip, continue w/ Tarceva, add XGEVA, brain MRI clear; 9/11 – solitary 3 cm met (adeno w/ T790m mutation) to cerebellum, surgery and gamma knife, up Tarceva to 150 mg; 11/11 – 2 left lung nodules growing, biopsy on 1 shows mutation from adeno to squamous (shocker!), brain MRI clear, continue Tarceva & Xgeva; 2/12 – brain MRI clear, CT scan, remaining nodule slightly bigger – – monitor for now, Tarceva (reduced to 100 mg) & Xgeva continued; 4/12 progression and rebiopsy (confirmed adeno), stop Tarceva, switch to Carbo/Alimta; 6/12 maintenanceAlimta; 8/12 back to Tarceva; 10/12 Gemzar; 11/16 difficulty breathing; 12/12 hospice initiated…my Mom passed away peacefully on 12/19/12. Heartbroken.

May 18, 2012 at 4:32 am  #1498    

aunttootsie001

Thanks everyone! MedONC seems to think it is more related to my Surgery for removal of lower left Lobe. Makes sense since at one point my left Breast was numb in that area and now have most the feeling back. It is a bit better and hopefully will countinue to improve.
On another note I’m going to see my primary Dr. Today for a cough I’ve been dealing with since the first part of April. Had a cough and head cold while in Florida and was self medicating until we got home. Dr. Put me on a Z pack. Was better for awhile but lately constant coughing. Thinking it maybe from the Radiation. If he’s not sure I’ll probably go see ONC or see my Lung Dr. Still feeling a bit Slugish! I get wore out pretty quick running the sweeper or just doing General Housework? Will keep posted!


DX June 2011, Non smoker. Lobectomy August. 2011. Two TX Carbo/Taxol. 31 TX Radiation 2012. Break no treatment 8mo. Malignant Pleural Effusion discovered Oct. 2012. Xalkori started Nov. 2012. Pleurodisis done April 2013. Last CT still NED.

May 18, 2012 at 1:21 pm  #1502    

Dr West

Radiation pneumonitis starting somewhere in the range of about 6 weeks to 6 months after chest radiation is very common as a cause of cough, shortness of breath, and a new low-grade fever, often accompanied by new haziness on a chest x-ray or CT in the radiation treatment field.

-Dr. West


Howard (Jack) West, MD
Medical Oncologist

Views expressed here represent my opinion, not those of GRACE or Swedish Cancer Institute. This information does not constitute medical advice and is intended to supplement and not replace medical information provided by your doctor.

May 18, 2012 at 10:29 pm  #1505    

aunttootsie001

Thanks Dr. West! Primary seems to agree and were trying a few things between now and next visit with either MedONC or Radiation ONC. So time will tell!


DX June 2011, Non smoker. Lobectomy August. 2011. Two TX Carbo/Taxol. 31 TX Radiation 2012. Break no treatment 8mo. Malignant Pleural Effusion discovered Oct. 2012. Xalkori started Nov. 2012. Pleurodisis done April 2013. Last CT still NED.

June 2, 2012 at 4:08 pm  #1537    

aunttootsie001

Well it seems the cough doesn’t want to go away? I also have noticed a shortness of breath! So I made an appointment with my Lung Dr. Come to find out it maybe imflamation. I was put on Avelox for 7 days. Also nasonex nasel spray for sinus drainage. They took an X-ray and said they would Call me if anything else is going on will be glad to be rid of this cough!


DX June 2011, Non smoker. Lobectomy August. 2011. Two TX Carbo/Taxol. 31 TX Radiation 2012. Break no treatment 8mo. Malignant Pleural Effusion discovered Oct. 2012. Xalkori started Nov. 2012. Pleurodisis done April 2013. Last CT still NED.

June 3, 2012 at 6:57 am  #1538    

Dr West

It definitely sounds a lot like radiation/chemoradiation-induced pneumonitis, which is very common. If it is that, I wouldn’t expect that antibiotics or nasonex will have much impact…usually it’s a combination of time and consideration of steroids (really only in cases severe enough to justify the potential side effects). It’s a very common problem, but fortunately, it often improves or resolves with time, though typically rather slowly.

-Dr. West


Howard (Jack) West, MD
Medical Oncologist

Views expressed here represent my opinion, not those of GRACE or Swedish Cancer Institute. This information does not constitute medical advice and is intended to supplement and not replace medical information provided by your doctor.

June 6, 2012 at 10:49 am  #1547    

aunttootsie001

Thank You Dr. West! I reluctantly think your right. I have been on the Nasonex for 5 days and antibiotic for 5. I have only noticed a small improvement so far. Musinex DM actually seems to do a better Job. I was hoping it was just leftover from a cough and Cold I had while in Florida. It is actually has made me get exhausted so much easier. Most Days I’m dragging. So what your saying there is nothing I can take to help it heal and make the cough go away?


DX June 2011, Non smoker. Lobectomy August. 2011. Two TX Carbo/Taxol. 31 TX Radiation 2012. Break no treatment 8mo. Malignant Pleural Effusion discovered Oct. 2012. Xalkori started Nov. 2012. Pleurodisis done April 2013. Last CT still NED.

June 6, 2012 at 3:02 pm  #1548    

cards7up

Dr. West answered in the previous response: “usually it‚Äôs a combination of time and consideration of steroids). Most people have to take steroids to help reduce the inflammation caused by the pneumonitis.
Wishing you the best. Take care, Judy


Stage IIIA adeno, dx 7/2010. SRS then chemo carbo/alimta 4x. NED as of 10/2011. Local recurrence, surgery to remove LRL 8/29/13. Chemo carbo/alimta x3.

June 8, 2012 at 7:17 pm  #1558    

aunttootsie001

Thanks everyone! I’m handling the cough best I can, but it’s the shortness of breath that is the real problem. We head to the Lake on Sunday and i’ll be walking more each Day will this help or hurt my situation? Appreciate all your input.


DX June 2011, Non smoker. Lobectomy August. 2011. Two TX Carbo/Taxol. 31 TX Radiation 2012. Break no treatment 8mo. Malignant Pleural Effusion discovered Oct. 2012. Xalkori started Nov. 2012. Pleurodisis done April 2013. Last CT still NED.

June 8, 2012 at 9:19 pm  #1559    

Dr West

I don’t know if it will help dramatically, but it may well be at least modestly beneficial, and it won’t hurt. We generally encourage our patients to be as physically active as they can comfortably manage.

-Dr. West


Howard (Jack) West, MD
Medical Oncologist

Views expressed here represent my opinion, not those of GRACE or Swedish Cancer Institute. This information does not constitute medical advice and is intended to supplement and not replace medical information provided by your doctor.

June 9, 2012 at 7:07 am  #1561    

aunttootsie001

Thanks everyone! I\’m handling the cough best I can, but it\’s the shortness of breath that is the real problem. We head to the Lake on Sunday and i\’ll be walking more each Day will this help or hurt my situation? Also does anyone find using an inhaler helps? If I bend over very much I start coughing. I seem to have an accumulation of fleme built us so I cough alot in the morning. Nasonex made my nose run a lot. But didn’t help the cough. Shortness of breath plus cough makes it difficult to accomplish anything. Any suggestions welcome! Appreciate all your help! Would be lost without this websites.


DX June 2011, Non smoker. Lobectomy August. 2011. Two TX Carbo/Taxol. 31 TX Radiation 2012. Break no treatment 8mo. Malignant Pleural Effusion discovered Oct. 2012. Xalkori started Nov. 2012. Pleurodisis done April 2013. Last CT still NED.

June 9, 2012 at 7:12 am  #1562    

aunttootsie001

Sorry Dr. West about the double post. Must have hit the Submit button without finishing. I’ll let you know what happens. I have slowly put stuff in our fifth wheel and plan on putting it where it belongs once we get there! I have all Summer to get situated! Have a very active little Jack Russell that we have to walk two or three times a day so I know I will get more walking in!


DX June 2011, Non smoker. Lobectomy August. 2011. Two TX Carbo/Taxol. 31 TX Radiation 2012. Break no treatment 8mo. Malignant Pleural Effusion discovered Oct. 2012. Xalkori started Nov. 2012. Pleurodisis done April 2013. Last CT still NED.

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