A question for our members please

Portal Forums User Community Comments/Suggestions A question for our members please

This topic contains 7 replies, has 5 voices, and was last updated by catdander forum moderator catdander forum moderator 2 years, 10 months ago.

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January 12, 2015 at 3:24 pm  #1268025    
catdander forum moderator
catdander forum moderator

Our wonderful director here at Grace, Carlea asked me to ask you,

GRACE is preparing to film videos for patients that deal with the problems that arise from cancer treatment – things like pain management, shortness of breath, depression, and caregiver/family needs. What videos do you think we should create?

January 12, 2015 at 4:05 pm  #1268027    
catdander forum moderator
catdander forum moderator

And I’ll start. How do you move on being a different person who can no longer do what you once did. It’s not only about the physical limitations of a new body but about living daily with the notion of how your next scan can change your life.
It’s both a psychological issue and a physical one.
Where do we find pros who have specialties in this area?

January 12, 2015 at 9:00 pm  #1268032    
Dr West
Dr West

I think that a discussion of the potential role of symptom management specialists and how to find them is a great idea.

-Dr. West

January 13, 2015 at 8:40 am  #1268036    

Luke

I would be interested in the psychological aspects surrounding the issue on how to mentally come to terms with having cancer, for example:

(1) how to find acceptance of the condition
(2) how to continue living as normally and as happily as possible without mental affliction
(3) how to have an honest discussion with loved ones on the present and the future


Dad (then 63) dx Stg.IV lung adeno with brain mets in 2011. EGFR / ALK negative. BRAF positive.
First line: Carbo+Gem / WBRT
Maintenance: Alimta
Second line: LGX+MEK clinical trial
Third line (present treatment): Keytruda

  • This reply was modified 2 years, 10 months ago by  Luke.
  • This reply was modified 2 years, 10 months ago by  Luke.
January 13, 2015 at 9:51 am  #1268038    

SoCal

I like all the suggestions. I would add, have patients model, with guidance, how to ask difficult questions of their doctors.


Dx June 2009 NSCLC adenocarcinoma IIIA with BAC, L upper lobe. 2 cycles cisplatin + etoposide w/25 days RT; PE + other side effects, no change in tumor. Wedge resection of L lower lobe & nodes: EGFR mutation (19). 3 mo. Tarceva in 2010, tumors grew; 3 mo. Alimta, no change. “Watch and wait.” Stable 3+ years. Thyroid cancer early 2013 (surgery and rad). Lung CT 9/2013: tumor growth. Left upper lobectomy, left lower wedge + nodes; status: T4 N2 M1a. Breast cancer dx’d 12/2013: HR+, HER-2 negative. Mastectomy 2014. 5 new small lung tumors in fall 2014: right and left lobes, pleura. Restarted Tarceva. 77-Y/O female ex-smoker (quit in 1982) with lupus. Overall, doing fine.

January 13, 2015 at 9:39 pm  #1268052    
Dr West
Dr West

What kind of questions? About prognosis? What will it be like as the cancer progresses? About getting a second opinion?

-Dr. West

January 14, 2015 at 2:51 pm  #1268081    

drgoogle

.

Pain management topic.. including regular reviews by Oncologist/pharmacist of all medications -especially when situation changes or new meds added.

How to maximize your time with your Health care team and tips on how to bring to attention of team when issues of communication between professionals impact on treatment plan.

Vignettes by exercise, skin care, hair /scalp care, and other type experts to help deal with the effects of cancer.

January 19, 2015 at 1:05 pm  #1268139    
catdander forum moderator
catdander forum moderator

bump

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