Welcome to GRACE. I’m sorry to hear of this complication. It doesn’t appear that anyone here on GRACE has reported a similar problem, and I haven’t found much treatment information on other sites, other than that if the necrosis is causing symptoms, steroids seem to be an appropriate choice.
Perhaps a consultation with a radiation oncologist might be helpful.
Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa