Portal Forums Lung/Thoracic Cancer SCLC General SCLC Clarification

This topic contains 2 replies, has 2 voices, and was last updated by  frey 1 year, 4 months ago.

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February 13, 2017 at 7:38 am  #1290054    


Hi Grace,
I just wanted to check something out for one of our group. He is 53 and in mid 2014 was investigated for a rise in blood pressure, gastric reflux,pressure in chest and general malaise. All through 2015 he had a number of investigations including colonoscopy and biopsy from stomach. The extensive tests did not give a diagnosis. In March 2016 he had a chest CT which did not reveal any cause for the on-going symptoms. In December 2017 he had an emergency visit to hospital due to onset of weakness and some confusion. A blood test showed low sodium. A CXR showed enlarged lymph nodes and subsequently he was diagnosed with small cell lung cancer. We are trying to understand if the small cell lung cancer was the cause of all the issues since 2014 but the CT in March 2016 goes against this. Or could small cell actually have started in 2016 and grown at such a rate to be picked up on xray in late 2016? This question has come up in our support group in the past but I don’t think we have had anyone with such well documented previous investigations that were negative.
We have found it very helpful and supportive to discus our individual journeys and it also helps when we can make sense of them. Thank you for providing this resource, we have found it very useful.

February 13, 2017 at 9:33 am  #1290058    
JimC Forum Moderator
JimC Forum Moderator

Hi frey,

Although it’s always impossible to completely rule out a particular scenario, since cancer seems capable of doing just about anything, it would be extremely unlikely for SCLC to produce so many symptoms, over such a long period of time, without appearing on a scan and showing a rapid rate of growth over time.

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Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
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February 13, 2017 at 10:25 am  #1290060    


Thank you for replying, it helps having confirmation on what we were thinking but couple not really find information on.

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