Community Updates

This topic contains 257 replies, has 34 voices, and was last updated by Dr West Dr West 3 years, 8 months ago.

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October 19, 2013 at 9:01 pm  #1259965    

cosmo72

Hi Gail
Fantastic ! really happy to hear you are doing so well now ..wishing you many more birthdays xx
Lesley

October 19, 2013 at 9:10 pm  #1259966    

Luke

How absolutely delightful! Happy journeys!


Dad (then 63) dx Stg.IV lung adeno with brain mets in 2011. EGFR / ALK negative. BRAF positive.
First line: Carbo+Gem / WBRT
Maintenance: Alimta
Second line: LGX+MEK clinical trial
Third line (present treatment): Keytruda

October 19, 2013 at 9:38 pm  #1259967    
Dr West
Dr West

Wow! Congratulations and happy birthday! You are inspiring everyone in both the benefits of chemotherapy and travel!

-Dr. West

October 19, 2013 at 11:12 pm  #1259968    

gn21

And the champagne of course Dr West!

Gail

October 20, 2013 at 12:41 am  #1259970    
catdander forum moderator
catdander forum moderator

The benefits of champagne should never be underestimated for sure. Happy Birthday Gail! and Happy travels.
So glad you’re feeling so well.

Janine

October 20, 2013 at 1:26 am  #1259972    

laya d.

Yahoooooooooooooooooooo! And, HAPPY BIRTHDAY, GAIL!!!!

xoxo,
Laya


1/10 – My Mom (58) dx w/ NSCLC-Adeno 3a; 1 cycle of neoadjuvent Carbo/Alimta before finding out EGFR+ (Ex. 19), then switched to 7 wks of neoadjuvent Tarceva/150 mg (major shrinkage); 4/10 – right pneumonectomy; 6/10 started 3 rounds of adjuvent Cis/Alimta w/ concurrent chest radiation (7 wks); 8/10 – NED; 11/10 – small nodule in left lung; 1/11 – 3 small nodules in left lung, start Tarceva/100 mg; 4/11 – suspected sclerotic met to hip, continue w/ Tarceva, add XGEVA, brain MRI clear; 9/11 – solitary 3 cm met (adeno w/ T790m mutation) to cerebellum, surgery and gamma knife, up Tarceva to 150 mg; 11/11 – 2 left lung nodules growing, biopsy on 1 shows mutation from adeno to squamous (shocker!), brain MRI clear, continue Tarceva & Xgeva; 2/12 – brain MRI clear, CT scan, remaining nodule slightly bigger – – monitor for now, Tarceva (reduced to 100 mg) & Xgeva continued; 4/12 progression and rebiopsy (confirmed adeno), stop Tarceva, switch to Carbo/Alimta; 6/12 maintenanceAlimta; 8/12 back to Tarceva; 10/12 Gemzar; 11/16 difficulty breathing; 12/12 hospice initiated…my Mom passed away peacefully on 12/19/12. Heartbroken.

October 22, 2013 at 4:49 pm  #1260016    

Jazz

Toast to you, Gail! Great to hear you’re blazing away and ready for the summer! You are the face of inspiration!

Btw, there are Phase I AZD9291 trials open in OZ…http://clinicaltrials.gov/show/NCT01802632

Happy Trails,
Jazz


Non-smoker, Dx 6/06 Stage IV Adeno. EGFR+ (exon 19 del), T790m+. Trial: 2cyc Carbo/Doce/Avastin + 2 w/Gem 8 – 12/06; Avastin maint. 1 – 4/07. Alimta + Tarceva 5/07 – 2/09. NED to 8/09. Tarceva 150 9/09-5/11, SBRT/XRS to lung & spine met 2/11. Trial MK2206 (AKT inhibitor) + Tarceva 5 – 12/11. Afatinib+cetuximab trial 2/12 -2/13. LL collapsed. 1/13 PET – new bone & adrenal mets. 4 cyc Carbo-Gem-Tarceva 5/13. Brain MRI 10/13 – clear. Lost Dad to LC 5/13.Anti-PDL1@Angeles Clinic?

February 25, 2014 at 2:54 pm  #1262486    

mikem

Hi All,

Well it is 3 years and 3 months since surgery and still no sign of recurrence. My doctor is confident that we won’t be seeing the old cancer again but of course will keep watching me for new developments. I continue to feel very lucky and greatful and want to wish all of my GRACE friends well. I continue to follow you and think of you often. –mikem


56 year old former smoker diagnosed w/Stage IV NSCLC Adenocarcinoma 10/20/09 Completed 6 carbo/alimta followed by 10 Alimta maintenance. Biopsy of iliac negative for metastatic disease. Might not have been a stage IV after all. Oct. 2010, on to surgery…. removed lung. All lymph nodes clear 11-17-10. July 2014 Still all clear. One more 6 month check and if all is good annual only.

February 25, 2014 at 3:41 pm  #1262493    
JimC Forum Moderator
JimC Forum Moderator

That’s great news, mikem…thanks for the happy update!! And thanks for keeping your GRACE friends in mind. We think of you often as well!

Take care,
JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

February 25, 2014 at 4:13 pm  #1262494    

laya d.

Hurrayyyyyyyyyyyyyyyyyyyyy!!!! Thanks so much for the update, Mike!

xoxo,
Laya


1/10 – My Mom (58) dx w/ NSCLC-Adeno 3a; 1 cycle of neoadjuvent Carbo/Alimta before finding out EGFR+ (Ex. 19), then switched to 7 wks of neoadjuvent Tarceva/150 mg (major shrinkage); 4/10 – right pneumonectomy; 6/10 started 3 rounds of adjuvent Cis/Alimta w/ concurrent chest radiation (7 wks); 8/10 – NED; 11/10 – small nodule in left lung; 1/11 – 3 small nodules in left lung, start Tarceva/100 mg; 4/11 – suspected sclerotic met to hip, continue w/ Tarceva, add XGEVA, brain MRI clear; 9/11 – solitary 3 cm met (adeno w/ T790m mutation) to cerebellum, surgery and gamma knife, up Tarceva to 150 mg; 11/11 – 2 left lung nodules growing, biopsy on 1 shows mutation from adeno to squamous (shocker!), brain MRI clear, continue Tarceva & Xgeva; 2/12 – brain MRI clear, CT scan, remaining nodule slightly bigger – – monitor for now, Tarceva (reduced to 100 mg) & Xgeva continued; 4/12 progression and rebiopsy (confirmed adeno), stop Tarceva, switch to Carbo/Alimta; 6/12 maintenanceAlimta; 8/12 back to Tarceva; 10/12 Gemzar; 11/16 difficulty breathing; 12/12 hospice initiated…my Mom passed away peacefully on 12/19/12. Heartbroken.

February 25, 2014 at 8:02 pm  #1262505    
Dr West
Dr West

Wonderful news! Thanks for the follow-up!

-Dr. West

February 27, 2014 at 2:02 pm  #1262528    

marisa93

That’s wonderful news, mikem!!! Thank you so much for sharing with us :)

Lisa


Nov 23, 2010 husband(49/smoker) dx IV NSLC mets to brain/liver, Nov-Dec, 2010 15 WBR tx, Jan’11 MRI much improved, Dec ’10-Mar’11 4 txs carbo/alimta/avastin w/good response, Apr ’11 MRI mets almost gone, Apr ’11 start maintenance alimta, Jul ’11 MRI still good, Jul ’11 carbo/taxol for new lung met and 2 liver mets, Oct ’11 MRI new brain mets and major progression in liver, Nov 2, ’11 GK, Nov 19, 2011 at peace
Since then: http://cancergrace.org/forums/index.php?topic=11426.0

March 1, 2014 at 5:56 am  #1262547    

follansbee

I haven’t been to this site for almost a year, as my husband was no longer receiving Avastin due to blood clots and his physical condition excludes him from being a candidate for other chemo. I just wanted to let you all know that he is still up and around, although he is on oxygen and it is an effort for him to walk from room to room. His pneumonologist ordered a CT last week, as she has prescribed maintenance antibiotic for his chronic Mycobacterium infection. Anyway, we were all pleasantly surprised that the CT showed that there has been no progression of his cancer since the last CT that was taken a year ago. So we’re all happy with that bit of news.

March 1, 2014 at 8:14 am  #1262549    
JimC Forum Moderator
JimC Forum Moderator

Thanks for the update, with the great news that the CT showed stability!! I hope the antibiotics will help and get him feeling better.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

March 1, 2014 at 8:24 am  #1262550    
catdander forum moderator
catdander forum moderator

mikem, Congratulations! on the wonderful news. You and D started this journey around the same time and I remember when your docs decided your met wasn’t a met. I too think your cancer is no more.
!!!
Janine

March 1, 2014 at 8:28 am  #1262551    
catdander forum moderator
catdander forum moderator

Follansbee, Thanks so much for updating us. How wonderful that the cancer is staying put. I hope the antibiotics help. Good luck to you both. :)
Janine

March 1, 2014 at 10:08 am  #1262555    

SoCal

Mikem: That’s wonderful news, and very heartening. I’m really happy for you and while I wasn’t active on this site for a long time, I’ve been reading backward and catching up and feel as if I have a lot of new friends. Wishing you many years ahead.
Follansbee: I’m glad your husband has gone a year without progression. That certainly is good news. Even if he’s on oxygen, he’s still getting around, which has to be a plus.
Best wishes to you both.


Dx June 2009 NSCLC adenocarcinoma IIIA with BAC, L upper lobe. 2 cycles cisplatin + etoposide w/25 days RT; PE + other side effects, no change in tumor. Wedge resection of L lower lobe & nodes: EGFR mutation (19). 3 mo. Tarceva in 2010, tumors grew; 3 mo. Alimta, no change. “Watch and wait.” Stable 3+ years. Thyroid cancer early 2013 (surgery and rad). Lung CT 9/2013: tumor growth. Left upper lobectomy, left lower wedge + nodes; status: T4 N2 M1a. Breast cancer dx’d 12/2013: HR+, HER-2 negative. Mastectomy 2014. 5 new small lung tumors in fall 2014: right and left lobes, pleura. Restarted Tarceva. 77-Y/O female ex-smoker (quit in 1982) with lupus. Overall, doing fine.

March 1, 2014 at 4:53 pm  #1262558    
Dr West
Dr West

Thanks so much for the follow-up, Follansbee. Obviously, no detectable progression over a year is a very welcome bit of news.

-Dr. West

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