Conventional RT or SBRT (CyberKnife)

Portal Forums Radiation Oncology Chest Radiation Conventional RT or SBRT (CyberKnife)

This topic contains 23 replies, has 4 voices, and was last updated by lulu lulu 1 month ago.

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April 20, 2018 at 10:01 am  #1294282    
catdander forum moderator
catdander forum moderator

Your poodle looks comfy. Is it a pup? I have a redbone hound that gets that kind of comfy but I swear she sheds as much as my husky did. If she ever gets a dog it will be from the poodle family.

April 20, 2018 at 11:15 am  #1294283    
lulu
lulu

Yes, he loves our couch and beds, and gets really comfy. I got him when he was a puppy, but the picture was taken recently, he’s 1.5 years now. Love him so much, cutest and sweetest thing ever, and I didn’t even want a dog before, lol. Poodle doesn’t shed much at all. The only time I would find his hair is when I wear black pants.

April 21, 2018 at 8:44 am  #1294285    

onthemark

Hi Lulu,

“To live with a lot of uncertainty and fear is just not easy. But that’s what I need to learn with my Dad’s situation I guess.”

This statement resonated with me and I would guess with many others who are facing similar life threatening situations either themselves or close family members. We want to do everything pro-actively possible and make some kinds of plans for the future. Watchful waiting is not the same thing as just waiting.

I would let go of your concern about missing out on the immunotherapy + chemo, clinical trial as first line therapy. No one knows what the outcome is going to be heading into a trial, so the evaluation of the information ex post facto is different than in real time.

I lost my thyroid function after one round in a clinical trial for a immunotherapy drug as adjuvant therapy and dropped out of the trial because I was concerned about what organ might be attacked next by the drug under consideration.

On the other hand once there is clear benefit that is tangible in real life, then the level of acceptable risk is higher. That is why most if not all new cancer drugs are first tested on metastatic patients.


10/2015 Chest xray found a nodule as part of a physical (no symptoms).
01/2016 Upper left lobe lingula preserving lobectomy stage 2b for 1.9 cm invasive adenocarcinoma with additional 2 mm AIS nodule found in pathology.
03-05/2016 Sixteen weeks of adjuvant cisplatin/vinorelbine.
07/2016 Durvalumab adjuvant clinical trial discontinued after 1st dose knocked out thyroid.
12/2016 Revised to stage 1b (due to VPI) after new guidelines for multifocal lepidic lung cancer.
07/2018 Next scan.

April 21, 2018 at 12:29 pm  #1294287    
lulu
lulu

Hi onthemark,

I’m pretty sure a lot of patients and fainilies feel the same way as we did. There’s no easy route for this journey battling stage IV cancer. We all need to let go the fear or maybe just to live with it.

As for the immunotherapy, what’s been done was done, I could only look forward and hopefully my Dad could be stable as long as possible before we need to switch treatment regimen.

Thank you onthenark, enjoy the rest of your weekend!

Lulu

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