Craig

This topic contains 7 replies, has 4 voices, and was last updated by catdander forum moderator catdander forum moderator 5 months, 2 weeks ago.

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January 8, 2018 at 6:51 pm  #1293725    

cards7up

Anyone hear from Craig? Haven’t seen him around for a while now. Thanks!
Take care, Judy


Stage IIIA adeno, dx 7/2010. SRS then chemo carbo/alimta 4x. NED as of 10/2011.
Local recurrence, surgery to remove LRL 8/29/13. 5.2cm involved pleura. Chemo carbo/alimta x3. NED

January 9, 2018 at 9:37 am  #1293733    
catdander forum moderator
catdander forum moderator

Hi Judy,

Happy New Year! I’m pretty sure Craig is alright. I’ll see if I can rouse him.

All best,
Janine

January 9, 2018 at 2:45 pm  #1293740    

Craig

I could swear I just saw him this morning . . . in the bathroom mirror. :lol:

I’m not dead yet, Janine. Not perfect with tolerable symptoms, creeping progression, and reasonable side effects from my current experimental drug of choice (TPX-0005 for ROS1), but still functioning fine for most things. I’m still a little active in the narrowed-topic facebook group for ROS1 patients (and occasionally I comment in the ALK group there). FWIW, I still think facebook is a lousy infrastructure for cancer groups, and the ALK one seems to be preparing to migrate to their own.

I booked my overpriced hotel for the upcoming ASCO 2018 conference, so I guess I’ll have to go again, eh? (7 years!).C

I have diverted some of energy to support my Dad (who died a couple months ago and I’ll be dealing with his stuff for months or years) and to support a person struggling to get her live back on track (despite some kind of undiagnosed disorder and financial crisis).

Best hopes,

Craig in PA


- Stage IV never-smoker ROS1-driven m-BAC indolent adenocarcinoma
– Dr. Alice Shaw’s Xalkori (crizotinib) for ROS1 trial @ MGH, Boston (5 yrs)
– carboplatin + pemetrexed (7 mo)
– TPX-0005 for ROS1 trial @ MGH (starting June 2017)

January 9, 2018 at 3:54 pm  #1293741    
JimC Forum Moderator
JimC Forum Moderator

Hi Craig,

Although it’s certainly good to hear from you, I’m very sorry to hear about your dad. My sincere condolences on your loss. I hope that you can help your friend as you have helped so many GRACE members.

Yes, the prices can be ridiculous for hotels in Chicago (my home for most of my life). Lisa and I will most likely be there for at least some part of ASCO, so perhaps our paths will cross this year.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

January 10, 2018 at 5:21 am  #1293743    

cards7up

Hi Craig, glad to hear you’re still with us. Hoping all begins to even out for you. My sincere condolences on the loss of your Dad. I’m not part of the group on FB obviously since I”m not ALK or ROS1. Just stop in once in a while to let us know how you’re doing, we care!
Take care, Judy


Stage IIIA adeno, dx 7/2010. SRS then chemo carbo/alimta 4x. NED as of 10/2011.
Local recurrence, surgery to remove LRL 8/29/13. 5.2cm involved pleura. Chemo carbo/alimta x3. NED

January 10, 2018 at 10:20 am  #1293746    
catdander forum moderator
catdander forum moderator

Hi Craig,

Thanks for in with us you are checking. :) I sometimes try to keep my prepositions properly placed just to prove to myself it’s OK to stray…both ways. As the daughter of grammar snob and elite secretary I think about these things.

I’m so sorry about your dad’s passing. No words can convey, so I’m sending my condolences to you and yours and thinking about my mom who I miss dearly. I hope your friend can get some semblance of balance in her life. Interventions with doctors and drugs can be quite effective and can also be as difficult to get done as easily said.

You’re response reminds me of peoples’ responses when Don was starting to be seen around town alive. It was disquieting for me. I’m sorry if it’s disturbing to you for people to want to know how you are because it does suggest you may conversely be dead. But as Judy says, we care! You’ve become such a helpful advocate that we want you to choose the next experimental drug to work for ever.

We Care big time and we’re always f hopeful!
Janine

January 11, 2018 at 8:25 am  #1293760    

Craig

No need to be sorry for anything. Doesn’t bother me in the slightest to have people ask what I’m up to (or not). Still glad to try to help when I can.

Best hopes,

Craig in PA


- Stage IV never-smoker ROS1-driven m-BAC indolent adenocarcinoma
– Dr. Alice Shaw’s Xalkori (crizotinib) for ROS1 trial @ MGH, Boston (5 yrs)
– carboplatin + pemetrexed (7 mo)
– TPX-0005 for ROS1 trial @ MGH (starting June 2017)

January 11, 2018 at 2:08 pm  #1293764    
catdander forum moderator
catdander forum moderator

Always good to know Craig and always best of hopes.

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