Fake News and Alternative Facts

Portal Forums User Community Comments/Suggestions Fake News and Alternative Facts

This topic contains 5 replies, has 4 voices, and was last updated by JimC Forum Moderator JimC Forum Moderator 7 months, 1 week ago.

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February 9, 2017 at 1:00 pm  #1290034    

wadvocator

Under the current administration, Fake News and Alternative Facts are becoming the norm instead of exception.

I am grateful for this education site where information goes through extremely vetting and information sources are from esteemed practitioners!

February 10, 2017 at 7:06 am  #1290037    
catdander forum moderator
catdander forum moderator

Thanks. Bad information has always been easily accessible via the web. Resources count.

How are you wadvocator?

March 10, 2017 at 1:10 pm  #1290316    

celineg

Are there any well-known sources that are untrustworthy.

Finding information seems very simple, but sometimes I cannot tell if a site is untrustworthy.

I was just thinking that maybe some of the sites that I have been trusting as reliable might just be more popular than they are accurate.

Any list of News sources to stay away from would really help put my mind at ease. Especially when it comes to treatment information and drugs. It is hard to tell the difference between an add, a hit piece, and a real study.

March 10, 2017 at 6:56 pm  #1290322    
JimC Forum Moderator
JimC Forum Moderator

Hi celineg,

It’s not really possible to list any sources as “unreliable”, as that would open us up to possible legal liability, although it’s certainly a red flag if the source is also trying to sell a product or book about a particular therapy. In addition, even usually trustworthy news sources can publish information on cancer treatments that is unreliable or overstated, since they get much of their information on promising new drugs from the manufacturers themselves, who always try to put their products in the best light possible. In general, if you see the words “major breakthrough” or “possible cure”, you should take what’s written with a large grain of salt, as this is likely to represent marketing rather than scientific evidence. Clinical trial reports and information which comes from established medical journals is the most reliably accurate.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

March 17, 2017 at 2:46 pm  #1290392    

celineg

Thank you so much for your response, Jim.

I think that somewhere inside myself I knew that. But your words have grounded me and reminded me of the correct ways to stay cautious.

It can just get overwhelming.

I understand the issue of liability, but if I ever see a specific claim, could I discuss the validity of that particular claim?

Nothing has really rung overly true, but I would like to have a second pair of eyes before I get my hopes up.

I ask in advance so that I don’t get anyone in trouble. Permission is always an easier thing to ask than forgiveness.

March 17, 2017 at 3:16 pm  #1290396    
JimC Forum Moderator
JimC Forum Moderator

celineg,

If you’re asking whether anyone on the GRACE staff could express an opinion on a possible legal claim, the answer would be that such an opinion would be beyond the scope of what we do here. Treatments often cause side effects, but whether a claim could be successfully maintained against a drug manufacturer is a legal question best left to attorneys and courts. In any event, GRACE provides medical information rather than opinions or advice. Telling a GRACE member what they should do could subject us to legal liability.

If at some point you feel that you may have a potential claim with regard to your treatments, you would need to consult an attorney to discuss the merits of that claim.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

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