From tragedy to happiness – a GRACE love story

Portal Forums Lung/Thoracic Cancer Lung Cancer Member Updates From tragedy to happiness – a GRACE love story

This topic contains 10 replies, has 9 voices, and was last updated by catdander forum moderator catdander forum moderator 2 years, 9 months ago.

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February 6, 2014 at 8:42 am  #1262065    
JimC Forum Moderator
JimC Forum Moderator

With the encouragement of Dr. West, today Lisa and I have shared the story of how we found each other here on the GRACE site after each of us lost our beloved spouses to lung cancer. We have told our story to many people who have been deeply moved by this tale of love conquering sadness and grief. In fact, we’ve often been told it would make a great film, so if you know anyone who wants to make to make a movie, let us know! :)

You can read our story here: http://cancergrace.org/blog/jim-and-lisa

Jim (JimC)
Lisa (marisa93)


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

February 6, 2014 at 5:31 pm  #1262085    

apat33

I’m so happy for both of you. I’ve had 2 friends who lost their mates, both found partners at the hospitals where their spouses had also passed. Both are very happy, one is celebrating their 25th aniversary this summer. I wish you the same.

Andy

February 6, 2014 at 9:20 pm  #1262092    

laya d.

Muwah. . .Much love to you both!

Laya


1/10 – My Mom (58) dx w/ NSCLC-Adeno 3a; 1 cycle of neoadjuvent Carbo/Alimta before finding out EGFR+ (Ex. 19), then switched to 7 wks of neoadjuvent Tarceva/150 mg (major shrinkage); 4/10 – right pneumonectomy; 6/10 started 3 rounds of adjuvent Cis/Alimta w/ concurrent chest radiation (7 wks); 8/10 – NED; 11/10 – small nodule in left lung; 1/11 – 3 small nodules in left lung, start Tarceva/100 mg; 4/11 – suspected sclerotic met to hip, continue w/ Tarceva, add XGEVA, brain MRI clear; 9/11 – solitary 3 cm met (adeno w/ T790m mutation) to cerebellum, surgery and gamma knife, up Tarceva to 150 mg; 11/11 – 2 left lung nodules growing, biopsy on 1 shows mutation from adeno to squamous (shocker!), brain MRI clear, continue Tarceva & Xgeva; 2/12 – brain MRI clear, CT scan, remaining nodule slightly bigger – – monitor for now, Tarceva (reduced to 100 mg) & Xgeva continued; 4/12 progression and rebiopsy (confirmed adeno), stop Tarceva, switch to Carbo/Alimta; 6/12 maintenanceAlimta; 8/12 back to Tarceva; 10/12 Gemzar; 11/16 difficulty breathing; 12/12 hospice initiated…my Mom passed away peacefully on 12/19/12. Heartbroken.

February 7, 2014 at 11:18 am  #1262115    
Denise Brock
Denise Brock

Agree with Laya! Thanks for sharing your story.

February 7, 2014 at 3:53 pm  #1262123    
JimC Forum Moderator
JimC Forum Moderator

Thank you all for the good wishes!!

Jim


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

February 7, 2014 at 6:46 pm  #1262128    

golfadkt

Beautiful story!

February 8, 2014 at 6:12 am  #1262148    

Lembird

Jim and Lisa,

Wishing you love, health, peace and prosperity for many many years to come.

Blessings
Lembird


NSCLC dx 11/09, surgery to remove RML 2/15/2010, pathology 2B Adenocarcinoma with BAC features. 3 tx Cisplatin and Alimta, 1 tx Carboplatin and Alimta. Some residual neuropathy in hands and feet. Small nodules and GGOs in all remaining lobes. Scans every three months…stable as of 11/4/11…very little growth in one nodule but
essentially stable as of 3/30/12, next scan in 6 months. Scan 9/12 stable, scan 4/13 stable. Scan on 11/4/13 showed a little growth in
nodule from 1 cm to 1.3 cm. Had MW ablation on 1.3 cm nodule in Dec 2013 and this caused a fistula and infected empyema. Jan 2014 had chest drained and sent home with fistula and pneumothorax. In May, CT scan showing that the fistula had closed itself and pneumothorax was resolved but had developed a cavitation with possible fungal center. CT scan in August 2014 showed the cavitation had gotten smaller but still question of fungus. Clinical looking good, tired but no fever and working on improving lost muscle mass. Scheduled for next CT scan in Nov. Scan Nov 4, all stable and cavitation still showing possible fungal involvement. Scan April 4, 2015, showing further consolidation of ablation site and other spots all stable — squinty changes. Good clinical, feeling stronger and gained 5 lbs. Next scan in November.
Scan Nov 2015 stable. Next scan scheduled for August 2016.

February 20, 2015 at 7:11 am  #1268565    

ellen24

Hi
What a beautiful story. I wish you many happy years together.

February 20, 2015 at 8:57 am  #1268571    
JimC Forum Moderator
JimC Forum Moderator

Hi Ellen,

Thank you for your good wishes…we’re kind of fond of our story, too!

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

February 20, 2015 at 3:31 pm  #1268580    

cards7up

OMG old news but always good news to share with others. Happy for you both!
Take care, Judy


Stage IIIA adeno, dx 7/2010. SRS then chemo carbo/alimta 4x. NED as of 10/2011.
Local recurrence, surgery to remove LRL 8/29/13. 5.2cm involved pleura. Chemo carbo/alimta x3. NED

February 20, 2015 at 7:26 pm  #1268583    
catdander forum moderator
catdander forum moderator

:-P

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