Help understanding please or need to worry

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This topic contains 1 reply, has 2 voices, and was last updated by catdander forum moderator catdander forum moderator 2 weeks ago.

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April 10, 2017 at 6:58 am  #1290551    
heygabbi3
heygabbi3

My daughter 18 was informed she had few things of many Ct but first is , residual thymic tissue notation in the anterior mediastinum…2) 3mm interfissural node along right major fissure n 4mm along right minor fissure. Can you please help us to understand this somehow as to they also suspecting wegeners granulamatous which she has few nodules growing elsewhere including that of tissue of her back arms n then now these that were not there within past 4 months that could see. We were spoke to last week that he(the dr) felt may go ahead and begin a treatment with steroid & chemo to help treat the wegeners in hopes in early stages but then concern may been something that else somwait d to get Ct scans. Any help or info please????
Thank you

April 10, 2017 at 9:31 am  #1290555    
catdander forum moderator
catdander forum moderator

Hi and welcome to Grace. I’m so sorry your daughter is going through this and hope she is able to get it under control without future flares. We don’t have any expertise in this area but I did a search of Wegners and found it is also called granulomatosis with polyangiitis. The 3 links below have readable and accurate information on many medical subjects and I feel confident the info they provide about wegeners will also be helpful.

http://www.mayoclinic.org/diseases-conditions/granulomatosis-with-polyangiitis/diagnosis-treatment/treatment/txc-20167276

https://my.clevelandclinic.org/health/articles/wegeners-granulomatosis

https://www.hopkinsvasculitis.org/types-vasculitis/wegeners-granulomatosis/

All best to you and your daughter,
Janine
forum moderator


My husband, 8/09 53 @ dx stage III squam nsclc R. pancoast tumor
Destruction of 3 ribs, touching brachial plexus.
6/09-8/09 2 core and 1 VATS undx biopsies. Open thoracotomy for 1 positive biopsy (unresectable)
9/09 Chemo/rads curative intent
11/09 MRI by pancoast specialist surgeon spine met found undiagnosed Rad to spine, Chemo continued thru 6 cycles
Tarceva maintenance 2/10
11/10 3cm tumor L lung, undx core bx w/collapsed lung. Gemzar, 12/10 through 7/12
NED 3/12, stop tx 7/12. Remains NED as of 9/16
Unanswerable question. Was it ever metastatic?

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