How to find Drug Trials?

Portal Forums Cancer Basics Clinical Trials and Drug Development How to find Drug Trials?

This topic contains 4 replies, has 3 voices, and was last updated by Dr West Dr West 3 years ago.

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October 24, 2014 at 4:31 pm  #1266650    

sbright33

My aunt has Leukemia AML with FLT3 IDT. It’s in Remission. There is nothing more to do, until it comes back, which is likely, because of FLT3. How can I find drug Trials that she is qualified for? Her doctor says it’s “Too Soon”. Neither is interested in exerting any effort. But I am. What is the process? What about off label drugs?

October 24, 2014 at 5:01 pm  #1266653    
JimC Forum Moderator
JimC Forum Moderator

Hello,

It’s good to hear that your aunt’s leukemia is in remission. One reason that your doctor may consider it too early is that trials open and close relatively frequently, so it will be a question of which trials are available to her at the time she needs them.

In any event, if you wish to search for trials, either now or later, the best place is clinicaltrials.gov . There you can search by specifics of her condition as well as by geographical location. Each listing states the exclusion/inclusion criteria, although there is no substitute for direct contact with the trial personnel to be certain that their qualifications have been met.

Good luck.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

October 29, 2014 at 1:31 pm  #1266797    

sbright33

There are many trials available during remission with FLT3, according to your database. It is so easy to use and understand!

How do I get the doctor to consider them? She is very difficult to communicate with, as is the patient…

October 29, 2014 at 1:44 pm  #1266798    
JimC Forum Moderator
JimC Forum Moderator

Probably the best I can suggest is to print out the trial listing and bring it to an appointment or send it to the doctor. Of course if the patient is not interested there’s not much you can do beyond educating her about the possibilities.

Good luck.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

October 29, 2014 at 2:25 pm  #1266801    
Dr West
Dr West

If the patient is interested but the doc is not inclined to engage in the discussion, this would be a good situation in which to seek a second opinion from someone with significant expertise in the subject.

-Dr. West

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