Lung Cancer Advocacy Summit

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This topic contains 5 replies, has 4 voices, and was last updated by  Sherry 5 years, 2 months ago.

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September 17, 2012 at 9:56 am  #1248116    

Sherry

I just wanted to share with everyone that my husband and I had the pleasure of attending the National Lung Cancer Partnership’s annual Lung Cancer Advocacy Summit it Nashville this weekend. It was so exciting and informative. We learned so much and were given the opportunity to tour the Vanderbilt Research Lab. It was exciting to meet the scientists who are working on a cure for us.

I also wanted to mention that our own Dr. West is held in such high regard by all of the people I met there that either knew him personally or who were familiar with GRACE. And believe me, the ones who weren’t familiar certainly know about it now! I was proud to see that in the patient booklets that are handed out, GRACE was the 2nd resourse listed, behing the Partnership themselves.


ME: Diagnosed Stage 1A in July 09, ULL, no further treatment. Diagnosed with breast cancer in Feb. 11, again Stage 1. All scans were clear until headaches started in April 2012. In July 2012 was diagnosed with a metastatic brain tumor from lung, surgically removed and treated with cyberknife. Now on Tarceva. Clear scans to date. DAD: Diagnosed stage IV in Dec. 09, was on Tarceva until April 2012, then Alimta once every 3 weeks. November 27, 2012 entered the kingdom of Heaven.

September 17, 2012 at 5:12 pm  #1248136    
Dr West
Dr West

That is so kind of you to say. I’m glad the event was so valuable. The National Lung Cancer Partnership was founded by a longtime friend of mine in the lung cancer field, Dr. Joan Schiller. She’s a real inspiration, and the Partnership is a very strong organization.

-Dr. West

September 17, 2012 at 5:56 pm  #1248137    

Jazz

Thanks for sharing this, Sherry. Our Dr. West is a real inspiration to all of us, as are the faculty he so tirelessly recruits to share their time and knowledge with us. GRACE really is what the acronym spells out :)

Jazz


Non-smoker, Dx 6/06 Stage IV Adeno. EGFR+ (exon 19 del), T790m+. Trial: 2cyc Carbo/Doce/Avastin + 2 w/Gem 8 – 12/06; Avastin maint. 1 – 4/07. Alimta + Tarceva 5/07 – 2/09. NED to 8/09. Tarceva 150 9/09-5/11, SBRT/XRS to lung & spine met 2/11. Trial MK2206 (AKT inhibitor) + Tarceva 5 – 12/11. Afatinib+cetuximab trial 2/12 -2/13. LL collapsed. 1/13 PET – new bone & adrenal mets. 4 cyc Carbo-Gem-Tarceva 5/13. Brain MRI 10/13 – clear. Lost Dad to LC 5/13.Anti-PDL1@Angeles Clinic?

September 18, 2012 at 5:17 pm  #1248180    

Sherry

You’re welcome, Dr. West. I had the pleasure of sitting next to Dr.Schiller at dinner the first night. She was the sweetest person.

She spoke several times during the weekend and she was an awesome speaker. She truly kept her audience in mind and we learned so much from her. Her passion for lung cancer research and treatment was contagious.


ME: Diagnosed Stage 1A in July 09, ULL, no further treatment. Diagnosed with breast cancer in Feb. 11, again Stage 1. All scans were clear until headaches started in April 2012. In July 2012 was diagnosed with a metastatic brain tumor from lung, surgically removed and treated with cyberknife. Now on Tarceva. Clear scans to date. DAD: Diagnosed stage IV in Dec. 09, was on Tarceva until April 2012, then Alimta once every 3 weeks. November 27, 2012 entered the kingdom of Heaven.

September 19, 2012 at 1:15 am  #1248185    

certain spring

Sherry I am so impressed that you went, after all you have been through recently. Thanks for getting out there for the rest of us.


49-year-old non-smoker, dx stage IV NSCLC May 2010 (squamous tumour of the left lung with multiple brain metastases). Radiotherapy to chest and brain; progressed through two cycles carbo/gemcitabine. Repeated lung collapses; pneumonia in collapsed lung, Nov 2010; bronchial stent placed, Dec 2010. Declined second-line Taxotere. Mutation testing Feb 2011, surprise EGFR exon deletion 19. Started Tarceva (150mg), Feb 2011. Progression in liver and elsewhere, May 2013.

September 21, 2012 at 5:48 am  #1248228    

Sherry

You’re very welcome, Certain Spring. It was certainly an honor for us to go and gave me a reason to get up and get better. I am so excited to start fundraising for research and advocacy work. It is so frightening to me to find out how many people don’t know about the resourses that are out there. Not to mention how sadly underfunded lung cancer research is. I know I will never raise a significant amount, but I was told that every research hour costs about $25. I hope I can make a difference.


ME: Diagnosed Stage 1A in July 09, ULL, no further treatment. Diagnosed with breast cancer in Feb. 11, again Stage 1. All scans were clear until headaches started in April 2012. In July 2012 was diagnosed with a metastatic brain tumor from lung, surgically removed and treated with cyberknife. Now on Tarceva. Clear scans to date. DAD: Diagnosed stage IV in Dec. 09, was on Tarceva until April 2012, then Alimta once every 3 weeks. November 27, 2012 entered the kingdom of Heaven.

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