MEDI4736

This topic contains 69 replies, has 19 voices, and was last updated by  mickh 3 months, 2 weeks ago.

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July 27, 2015 at 8:19 am  #1270612    
JimC Forum Moderator
JimC Forum Moderator

Hi mickh,

Welcome to GRACE. Congratulations, and thanks for sharing your good news!

Please let us know if you have any questions. We hope your good response continues for a long time.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

March 8, 2016 at 6:22 am  #1273172    

janrucc

Bethw, my husband goes to Moffitt tampa and they are currently testing his biopsy for PD-L1 . Hoping to get into medi14736 trial.

March 21, 2016 at 7:21 pm  #1273356    

cissycarroll

Hey Mike,
I see it has been a while since your last update. I would love to know how you’re doing. I’m 32 and was diagnosed with Stage 4 NSCLC after it metastasized to my brain in October. I began the Medi4736 trial in Nashville in January and have had 3 treatments. I’m very interested to know your current progress. Good bless!
Cissy

April 4, 2016 at 2:40 pm  #1273518    

mickh

hey cissy I am doing well I am having dose 27 at sarah cannon in Harley street tomorrow I assume that you are going through the the stage that the cancer swells up but this soon passes at present my cancer is stable but not a great change from the first dramatic change medi 4376 has not given me any problems and is very user friendly I hope all is going well with you .
thoughts are with you
mick

June 24, 2016 at 9:47 pm  #1274481    
lmlb7665
lmlb7665

I have started in Phase III trial of Medi4736 and Tremi called Mystic. I have had one treatment of 4 for the dual immunotherapy. After that I understand the rest of the treatments will be with only Medi4736.

I would love to keep in contact with others in this trial.
Louise

October 6, 2016 at 7:19 am  #1288871    
lmlb7665
lmlb7665

Dear Janrucc and cissycarroll, and mickh:(and Gotchi)

I am not sure how we can join all of us together. Gotchi and I have been keeping in touch as we are also participating in the Mystic Phase III trial.

Maybe one of the moderators will know how to connect all of us so that we can share our journey.

Louise

March 13, 2017 at 10:29 am  #1290348    

mickh

Hi I was diagnosed with oesophagal cancer 31/2 years ogo when through the usual cemo no response including a trial with herceptin placitaxol and another trial drug I was then ofered medi 4736 I had 12 months of treatment during which the spread to the liver has gone and can only be seen because of the plug they put in the osophagus has become less distinct and knodes have reduced I have a scan every 2 months it’s been 10 months since end of treatment and still stable great stuff very little side effects marvelous

March 13, 2017 at 11:00 am  #1290350    
catdander forum moderator
catdander forum moderator

Hi mickh,

Welcome to Grace. Congratulations on your stability. I hope it last.

Janine

March 13, 2017 at 11:07 am  #1290351    
catdander forum moderator
catdander forum moderator

Hi Louise,

After reading the new post on this thread I read your last post about getting help to bring you guys together. I’m so sorry but I don’t recall reaching out to help. We can email email addis to those who are still interested. Gosh, I hate I missed a chance to get y’all together. FWIW, we (not me) are working on an improved/updated site that will include the very missed private messaging function (it was Jim and mine’s number 1 must have when making a wish list :) ).

Let me know who’s still interested and I’ll send email addresses.

Hope everyone is alright.
All best,
Janine

March 14, 2017 at 3:49 am  #1290357    

mickh

Hi I am cool with contacting other users

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