My Son's Journey with Tongue Cancer.

Portal Forums Member Updates Head/Neck Cancer Member Updates My Son's Journey with Tongue Cancer.

This topic contains 6 replies, has 6 voices, and was last updated by JimC Forum Moderator JimC Forum Moderator 3 years, 4 months ago.

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July 19, 2014 at 1:55 am  #1265034    

aunttootsie001

As I have said in the past I am a Stage 4 Lung Cancer survivor. I came to the Grace Family Head and Neck for answers because they have been so helpful to me. You didn’t let me down here either. But all the info and support didn’t prepare us for the complications! Evidently his heart and body weren’t up to the full treatment. Monday night just after his Dr. Was in and had promised she’d come back and watch a movie with him he stopped breathing and had a heart attack that stopped the oxygen from his brain and he was put on life support. After many test it was determined he wouldn’t be able to breath again on his own there wasn’t enough brain activity and his heart and other organs shut down. He was removed from life support at 7:10pm Thursday the 17th. Thank You for your help and support! We are going to miss him so very much. Goodbye my Chris, I Love You so Much. Mom!

July 19, 2014 at 4:45 am  #1265036    
catdander forum moderator
catdander forum moderator

Lorrie, I’m heart broken to hear the news of your Chris. What a shock it is for you and the rest of the family. Please know you will all be in my thoughts to get through the worst with lots of love and support.
All my condolences,
Janine

July 19, 2014 at 10:10 am  #1265040    

paulalv

Dear Lorrie, I am so very sorry to read this. The loss of a child must be the most painful.
My thoughts and prayers are with you and your family.
God bless, Paula

July 19, 2014 at 9:26 pm  #1265050    
Dr West
Dr West

Lorrie,

I’m so saddened by this news. I have to hope that you have people helping to support you — please consider those of us in the GRACE community among those who want to be there for you.

-Dr. West

July 19, 2014 at 11:04 pm  #1265052    

bob4beth

Dear Lorrie

I am so saddened to read about the loss of your son. I cannot think of anything more difficult to cope with. Please know that there are a lot of people on Grace praying that you find peace in the coming weeks and sending love your way. Bob


Sept 2012 my wife Beth was, 64 year old non-smoker dx stage 4 Adinocarcinoma NSCLC EGFR + with mets to liver, bones and brain. Sept 2012 operation to replace right hip damaged by bone met. Sept 2012 5 DVT found in legs. Started Lovinox. Oct 2012 started Tarceva 150 mg per day. January 2013 surgery to stabilize right femur followed by 10 radiation treatments. April 2013 radiation treatments to left femur. May 2013 dx LMD. Started pulse dosing Tarceva 1,500 mg/wk. Sept 2013 we lost Beth.

July 20, 2014 at 5:55 am  #1265054    

aunttootsie001

Thank You all for your kind words and support! This is going to be one of the hardest days to get thru. I was wondering I’m taking Celexa 10mg a day. What else can I take to keep me from being a basket case. I have taken at other times as much as 20mg but it doesn’t help keep me calm? I need to know as soon as possible because I have to be there at 1:00 thank You Lorrie!

July 20, 2014 at 9:14 am  #1265055    
JimC Forum Moderator
JimC Forum Moderator

Lorrie,

I am so sorry to hear your awful news. All of us here at GRACE wish we had answers for everyone, but too often cancer and its complications are more than current knowledge can remedy. I hope that in days to come you will find peace and comfort.

I don’t know if it will help, especially since it may not be possible to get a new prescription on a Sunday, but you can read Dr. Harman’s post on anxiety and methods to control it here: http://cancergrace.org/cancer-treatments/2010/01/19/anxiety-in-cancer-not-just-the-jitters/

We will keep you in our thoughts.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

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