Old threads

This topic contains 6 replies, has 6 voices, and was last updated by  Lnda 5 years, 8 months ago.

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February 21, 2012 at 6:36 am  #1241976    

certain spring

Since we are all struggling to find our feet, I thought it might be helpful to post some links to people’s recurring threads on the old site. These are simply ones I happened to have a note of or could find swiftly, so I hope no one will be offended at not having been included. I just thought it would help towards re-orientating ourselves in the new scheme of things. I have usually linked to the last message that was posted before the site was frozen, but sometimes just to the name of the thread. Others are welcome to post more links, in fact I hope they will. My best to everyone.

Laya and her mother: “Not so good news”

http://cancergrace.org/forums/index.php?topic=7892.msg95078#msg95078

Debra (double trouble): “New Plan!”

http://cancergrace.org/forums/index.php?topic=10268.msg94444#msg94444

B1-83: “The waiting game for Teacher Wife”

http://cancergrace.org/forums/index.php?topic=10755.75

FaithandHope79: “Let’s share the experience of afatinib/cetuximab”

http://cancergrace.org/forums/index.php?topic=10527.msg94973#msg94973

AB: “Resistance to Tarceva”

http://cancergrace.org/forums/index.php?topic=8426.180

warriorprincess: “Starting third-line chemo tomorrow”

http://cancergrace.org/forums/index.php?topic=11268.msg94287#msg94287

Myriam (fortmyr): “Sister newly diagnosed”

http://cancergrace.org/forums/index.php?topic=3784.msg94505#msg94505

TedJ: “NSCLC = SCLC. Huh?”

http://cancergrace.org/forums/index.php?topic=10687.msg93496#msg93496

Sandi: “Latest news in this journey”

http://cancergrace.org/forums/index.php?topic=10483

Mark G: “Deletions in exons 20 and 21?”

http://cancergrace.org/forums/index.php?topic=9877.45

gn21: “Acquired resistance and clinical trial”

http://cancergrace.org/forums/index.php?topic=11019.0

Various: “Patients with a KRAS mutation”

http://cancergrace.org/forums/index.php?topic=6350.45


49-year-old non-smoker, dx stage IV NSCLC May 2010 (squamous tumour of the left lung with multiple brain metastases). Radiotherapy to chest and brain; progressed through two cycles carbo/gemcitabine. Repeated lung collapses; pneumonia in collapsed lung, Nov 2010; bronchial stent placed, Dec 2010. Declined second-line Taxotere. Mutation testing Feb 2011, surprise EGFR exon deletion 19. Started Tarceva (150mg), Feb 2011. Progression in liver and elsewhere, May 2013.

February 21, 2012 at 6:37 am  #1241977    

laya d.

Great idea certain spring. . .

Laya


1/10 – My Mom (58) dx w/ NSCLC-Adeno 3a; 1 cycle of neoadjuvent Carbo/Alimta before finding out EGFR+ (Ex. 19), then switched to 7 wks of neoadjuvent Tarceva/150 mg (major shrinkage); 4/10 – right pneumonectomy; 6/10 started 3 rounds of adjuvent Cis/Alimta w/ concurrent chest radiation (7 wks); 8/10 – NED; 11/10 – small nodule in left lung; 1/11 – 3 small nodules in left lung, start Tarceva/100 mg; 4/11 – suspected sclerotic met to hip, continue w/ Tarceva, add XGEVA, brain MRI clear; 9/11 – solitary 3 cm met (adeno w/ T790m mutation) to cerebellum, surgery and gamma knife, up Tarceva to 150 mg; 11/11 – 2 left lung nodules growing, biopsy on 1 shows mutation from adeno to squamous (shocker!), brain MRI clear, continue Tarceva & Xgeva; 2/12 – brain MRI clear, CT scan, remaining nodule slightly bigger – – monitor for now, Tarceva (reduced to 100 mg) & Xgeva continued; 4/12 progression and rebiopsy (confirmed adeno), stop Tarceva, switch to Carbo/Alimta; 6/12 maintenanceAlimta; 8/12 back to Tarceva; 10/12 Gemzar; 11/16 difficulty breathing; 12/12 hospice initiated…my Mom passed away peacefully on 12/19/12. Heartbroken.

February 27, 2012 at 10:34 pm  #1242217    

forherbie

Here is my old thread about my husband Herbie started on Sept 10, 2011.

“Stage 3B or Stage 4 adeno lung cancer?”

http://cancergrace.org/forums/index.php?topic=6094.0

February 28, 2012 at 6:40 am  #1242226    

certain spring

Thanks! Hopefully we can build up a kind of directory of people’s old threads.


49-year-old non-smoker, dx stage IV NSCLC May 2010 (squamous tumour of the left lung with multiple brain metastases). Radiotherapy to chest and brain; progressed through two cycles carbo/gemcitabine. Repeated lung collapses; pneumonia in collapsed lung, Nov 2010; bronchial stent placed, Dec 2010. Declined second-line Taxotere. Mutation testing Feb 2011, surprise EGFR exon deletion 19. Started Tarceva (150mg), Feb 2011. Progression in liver and elsewhere, May 2013.

February 29, 2012 at 5:50 am  #1242362    

charvnc

Thanks Certain Spring – I can’t find anything yet- this really helps
Charlotte

March 12, 2012 at 10:56 pm  #1242703    

Jazz

Bless your heart, I was about to give up. My feeble brain can’t remember from one time to the next where things are…

Jazz


Non-smoker, Dx 6/06 Stage IV Adeno. EGFR+ (exon 19 del), T790m+. Trial: 2cyc Carbo/Doce/Avastin + 2 w/Gem 8 – 12/06; Avastin maint. 1 – 4/07. Alimta + Tarceva 5/07 – 2/09. NED to 8/09. Tarceva 150 9/09-5/11, SBRT/XRS to lung & spine met 2/11. Trial MK2206 (AKT inhibitor) + Tarceva 5 – 12/11. Afatinib+cetuximab trial 2/12 -2/13. LL collapsed. 1/13 PET – new bone & adrenal mets. 4 cyc Carbo-Gem-Tarceva 5/13. Brain MRI 10/13 – clear. Lost Dad to LC 5/13.Anti-PDL1@Angeles Clinic?

March 16, 2012 at 8:37 am  #1242758    

Lnda

Having all the old threads is so helpful Certain Spring and Layla, thank you so much for doing this. Kevin and others have been keeping up with KRAS mutations. I’d like to add …

Kevinfossett and his mom, concerning KRAS mutations “Source(s) for clinical trial results”

http://cancergrace.org/forums/index.php?topic=11251.0

Looking at these threads the other days, I found what seems to be a new website, at least I hadn’t seen it before and apologize if this is a duplicate for another posting. This site is very easy to use for clinical trials and drugs for Lung, Colorectal, and Melanoma, using its Targeted Therapy Finder: http://www.collabrx.com/ One quick search and I found all clinical trials having to do with the KRAS mutation.

Take care everyone,
Lnda

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