Only the Certain Spring

Portal Forums Lung/Thoracic Cancer In Memory of Lost GRACE Friends Only the Certain Spring

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July 17, 2013 at 4:17 pm  #1258003    
catdander forum moderator
catdander forum moderator

Earth cares for her own ruins, naught for ours. Nothing is certain, only the certain spring. http://allpoetry.com/poem/8528567-The_Burning_Of_The_Leaves-by-Robert_Laurence_Binyon

It is with the heaviest of hearts that I deliver the sad news that our Certain Spring is gone.

She was a friend and I will miss her terribly.

Peace to you dear girl.

July 17, 2013 at 4:33 pm  #1258004    
Denise Brock
Denise Brock

Thank you Janine. A fitting goodbye and lovely poem. We will miss her terribly. Tears for her, hugs to all.

July 17, 2013 at 5:15 pm  #1258006    

laya d.

I’m soooo darn sad and angry and upset and everything else right now. What a tragedy. . .What a loss. . .This is just madness. . .


1/10 – My Mom (58) dx w/ NSCLC-Adeno 3a; 1 cycle of neoadjuvent Carbo/Alimta before finding out EGFR+ (Ex. 19), then switched to 7 wks of neoadjuvent Tarceva/150 mg (major shrinkage); 4/10 – right pneumonectomy; 6/10 started 3 rounds of adjuvent Cis/Alimta w/ concurrent chest radiation (7 wks); 8/10 – NED; 11/10 – small nodule in left lung; 1/11 – 3 small nodules in left lung, start Tarceva/100 mg; 4/11 – suspected sclerotic met to hip, continue w/ Tarceva, add XGEVA, brain MRI clear; 9/11 – solitary 3 cm met (adeno w/ T790m mutation) to cerebellum, surgery and gamma knife, up Tarceva to 150 mg; 11/11 – 2 left lung nodules growing, biopsy on 1 shows mutation from adeno to squamous (shocker!), brain MRI clear, continue Tarceva & Xgeva; 2/12 – brain MRI clear, CT scan, remaining nodule slightly bigger – – monitor for now, Tarceva (reduced to 100 mg) & Xgeva continued; 4/12 progression and rebiopsy (confirmed adeno), stop Tarceva, switch to Carbo/Alimta; 6/12 maintenanceAlimta; 8/12 back to Tarceva; 10/12 Gemzar; 11/16 difficulty breathing; 12/12 hospice initiated…my Mom passed away peacefully on 12/19/12. Heartbroken.

July 17, 2013 at 5:51 pm  #1258008    

chebird

This was not unexpected, but I am so, so sorry. What a lovely courageous lady. I’m praying for her dear husband. :(


- Husband: 7/11, 8+ cm Pancoast into T1, T2 and 3 ribs. – Fall 2011 chem/rads, partial response with tumor shrinking to 5.5 cm. – EGFR + Tarceva started 10/11 – 1/12- 4/13 Happy with NED – 4/13 intradural mets to spine and head. – 5/13-7/13 radiation to lower half of spine and 2 spots in head. Uncontrolled pain. – Mom: VATS for 1a 7/09. Mets to liver. stage 1V 7/13. Chemo. – Step-mom: dx 11/12 squamous stage 111. chem/rads.
9/27/13 Dx multiple LMC tumors throughout spine

July 17, 2013 at 7:49 pm  #1258010    

njliu

This is very saddening and a big loss to GRACE where she had had touched so many with her care and generosity. I and my wife would always remember her fondly. My deepest condolences to her husband and family.
NJ


Wife, 56, Asian, 11/11 Dx Adenocarcinoma 3B, EGFR+. 12/11 Iressa, great response. 12/12 asymptomatic brain mets with possible lepto, 1/13 WBR, continue Iressa, 9/13 Local Progression at primary tumor, 10/13 focal radiation, 1/14 PET Scan:Tumor Resolution, continue Iressa, 6/14 PET shows flare up at same primary. 9/14 CT stable/MRI reappearance of brain mets, 4/15 stable brain mets, 5/15 increase in SUV and slight pleural effusion. 6/15 Afatinib + Cetuximab

July 17, 2013 at 8:54 pm  #1258012    

bob4beth

I am so sorry to learn of the passing of Certain Spring. Since I am fairly new to Grace I only know her from recent posts. She showed me how one can have a positive attitude even in the shadow of impossible odds. I will miss her. Bob


Sept 2012 my wife Beth was, 64 year old non-smoker dx stage 4 Adinocarcinoma NSCLC EGFR + with mets to liver, bones and brain. Sept 2012 operation to replace right hip damaged by bone met. Sept 2012 5 DVT found in legs. Started Lovinox. Oct 2012 started Tarceva 150 mg per day. January 2013 surgery to stabilize right femur followed by 10 radiation treatments. April 2013 radiation treatments to left femur. May 2013 dx LMD. Started pulse dosing Tarceva 1,500 mg/wk. Sept 2013 we lost Beth.

July 17, 2013 at 9:18 pm  #1258013    
JimC Forum Moderator
JimC Forum Moderator

As Holly said, this was not unexpected news, but no less painful. Certain spring was incredibly knowledgeable and amazingly generous in sharing that knowledge with everyone here at GRACE. She faced her own illness with admirable courage and good humor, and it was always clear that her greatest concern was not for herself but for her husband, whom she loved dearly. I hope the knowledge that she had friends all over the world who cared deeply about her will be of some comfort to him in these difficult days ahead.

Rest easy certain spring, and thank you for everything you did for GRACE and its members, by contributions of information and perhaps more importantly, the example you set for all of us. My thoughts are with your husband and your family for peace and comfort.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

July 17, 2013 at 10:29 pm  #1258018    
Dr West
Dr West

Certain spring was poetic in her words and wisdom here, while also remarkably knowledgeable. She was one of the leading examples of what makes GRACE a very special community. I’m personally very saddened but know that she both learned and felt valued here. A lovely spirit who will be desperately missed.

-Dr. West

July 18, 2013 at 7:01 am  #1258023    

Luke

Why does it always end like this? Why are we so powerless against this disease?

Good people like her don’t deserve this.


Dad (then 63) dx Stg.IV lung adeno with brain mets in 2011. EGFR / ALK negative. BRAF positive.
First line: Carbo+Gem / WBRT
Maintenance: Alimta
Second line: LGX+MEK clinical trial
Third line (present treatment): Keytruda

July 18, 2013 at 7:33 am  #1258025    

Sherry

There are truly no words to describe the impact she had on all of our lives, or to describe how sorely she will be missed. Now she has no pain and no more fear of this monster. My thoughts and prayers are with her family and friends.


ME: Diagnosed Stage 1A in July 09, ULL, no further treatment. Diagnosed with breast cancer in Feb. 11, again Stage 1. All scans were clear until headaches started in April 2012. In July 2012 was diagnosed with a metastatic brain tumor from lung, surgically removed and treated with cyberknife. Now on Tarceva. Clear scans to date. DAD: Diagnosed stage IV in Dec. 09, was on Tarceva until April 2012, then Alimta once every 3 weeks. November 27, 2012 entered the kingdom of Heaven.

July 18, 2013 at 9:14 am  #1258029    

Christineleeds

Dreading this news .She was so supportive to me when I needed it.she leaves a gap here that will be hard to fill.There was always something unique about her way of expressing things.


Husband Philip dx 10/10 ltd SCLC.Cisplatin/epotiside with twice daily radiation 1/11 PCI 3/11.Pneumonitis .Progression 11/11 carbo/epotiside 1/12 Radiation 6/12.Very bad chest infection following rad which could not be controlled and SIADH.Died 8/12.Was very active and quite well for most of treatment up till the last week.

July 18, 2013 at 12:01 pm  #1258035    

neilb

Just very sad. Certain Spring was one of my heroes, and I learned a great deal from her.–Neil


Never-smoker, male, age 53. Diagnosed with stage 1A adenocarcinoma in 2005. Lobectomy. Recurrence in February 2007. Therapies have included Carboplatin/Taxotere/Velcade (failed); Tarceva (8 months of stable disease before progression); Alimta/Avastin (complete response); treatment break; Alimta (complete response); Xalkori (since February 2012).

July 18, 2013 at 12:22 pm  #1258036    

double trouble

“The day which we fear as our last is but the birthday of eternity.” Seneca

Oh, certain spring. How I envy the company you are surely keeping now! And I await the day when I can see your face among the others, free from the twist of pain and the wrench of fear, celebrating the victory of passage and the wonder of it all.

Debra

July 18, 2013 at 3:22 pm  #1258041    

gn21

Certain Spring was a light in our lives. That light is now diminished.

So sad

Gail

July 18, 2013 at 3:40 pm  #1258042    

judys

Certain Spring added so much to GRACE. I feel lucky to have “known” her and mourn her loss.


Never-smoker; Diagnosed 2/2007 at age 64 with NSCLC adenocarcinoma, Stage 3b. Carboplatin/taxol/avastin: 3/07 – 6/07; radiation 8/07 -9/07; Avastin 10/07 – 12/07; Nodules in prev.clear rt lung; repeated carbo/taxol/avastin 1/08 – 3/08; Tarceva 4/08 – 9/11; radiation to soft tissue mass between two ribs 10/11; Alimta 10/11 – 2/12; treatment break; return to Alimta 5/12 – 6/12. Taxotere 7/12 – 10/12; treatment break 11/12 – 1/13; scan showed progression 1/13; restarted taxotere with zometa 2/13

July 18, 2013 at 9:26 pm  #1258050    

My wife’s advocate

I am so very sad! What a tragic loss! Its totally beyond words. My very best regards to the family of Certain Spring. She was always so generous with her time and attention in responding to questions posted on GRACE.


Wife, Asian non-smoker, 10/2010 left upper lobectomy, Diag: mod. diff. adenocarcinoma, focal squamous diff. with one AP node involvement. Dec 2010 thru Mar 2011 4 cycle cisplatin/vanorabin doublets completed. July 2011 MRI shown one 1.3 cm lesion with a 2.6 cm cystic component in rt. occipital region. Aug 2011 Neuro excision, confirmed sol. met from lung. Tested EGFR +. SRS irradiation on excision site 9/9/11, started Tarceva 9/26/11. Very difficult side effects. Tolerable after dose reduction to 100mg. Dec 2015 second brain surgery found life cancer cells in large bed of necrotic tissue. Feb-Mar 2016, 12 fractionized IMRT on right occipital lobe. Remain on Tarceva. Aug 2016 to Jun 2017 enlargement of pre-vascular lymph node from 1.4 to 2.2 cm. Mediastinotomy scheduled Sept 2017.

July 20, 2013 at 1:01 am  #1258083    

cosmo72

So very sad ..beyond words,
We will miss you CS
Lesley

July 20, 2013 at 7:02 am  #1258088    

cards7up

I am also saddened to hear of her passing. She was such an inspiration and helped me more than she’ll ever know. My condolences to her husband and family. She’ll always be in your heart and memories. RIP CS!
Take care, Judy


Stage IIIA adeno, dx 7/2010. SRS then chemo carbo/alimta 4x. NED as of 10/2011.
Local recurrence, surgery to remove LRL 8/29/13. 5.2cm involved pleura. Chemo carbo/alimta x3. NED

July 23, 2013 at 6:30 pm  #1258169    

marisa93

I was dreading the day this news would be shared. I am very saddened by CS’s passing. She was a wonderful lady and an important part of the GRACE community, her lack of presence here will be deeply felt.

RIP dear CS and may your husband find comfort in his memories of you.

Lisa


Nov 23, 2010 husband(49/smoker) dx IV NSLC mets to brain/liver, Nov-Dec, 2010 15 WBR tx, Jan’11 MRI much improved, Dec ’10-Mar’11 4 txs carbo/alimta/avastin w/good response, Apr ’11 MRI mets almost gone, Apr ’11 start maintenance alimta, Jul ’11 MRI still good, Jul ’11 carbo/taxol for new lung met and 2 liver mets, Oct ’11 MRI new brain mets and major progression in liver, Nov 2, ’11 GK, Nov 19, 2011 at peace
Since then: http://cancergrace.org/forums/index.php?topic=11426.0

July 24, 2013 at 4:46 pm  #1258236    
catdander forum moderator
catdander forum moderator

I just wanted to say that my heart and mind are catching up with the reality that CS is gone. I look for her in the threads to add the support we left out, whether a perspective, a misprint, personal experience, knowledge, or emotional support she was always there with a useful angle for anyone who posted.

It’s hard to realize the closeness we feel for one another since we’ve never met; not until we lose someone.
Some people are sure I shouldn’t be on the boards everyday but they don’t realize it’s part of my coping. CS assured me it was one of her coping mechanisms too.

I’m so glad to have all you in my life. Take care,
Janine

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