plasmacytoid Bladder Cancer

Portal Forums Bladder Cancer General Bladder Cancer plasmacytoid Bladder Cancer

This topic contains 2 replies, has 2 voices, and was last updated by  plandrover2 1 year, 1 month ago.

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January 6, 2016 at 6:23 pm  #1272461    

plandrover2

Dr. West,

I was wondering if you have any information regarding plasmacytoid bladder cancer. I know its rare and aggressive. My husband was diagnosed may 2014 pT2N0N0. After a RC with neobladder he is so far doing pretty good. Have you treated any long time survivors of this type?

Thanks,

January 7, 2016 at 1:50 pm  #1272469    
catdander forum moderator
catdander forum moderator

Hi plandrover2,

I’m sorry your husband was diagnosed with this disease. It’s true that when you look at many subjects with plasmacytoid bladder cancer there’s worse overall survival rates than other types of bladder cancer. However those are groups of people some of which do well some don’t, it doesn’t mean that all people with pbc have bad outcomes.

Your husband is an individual person doing well several months out from diagnosis, that’s the best sign that he’s going to have the best of outcomes. Looking at large numbers of people are not the same as an individual. My husband is a perfect example. He had/has lung cancer the type and extent of which has a very poor prognosis. He has no evidence of disease today 6 1/2 years later.

I hope this helps soothe some nerves but I know how very difficult it is waiting for verification. In this type of case only time will tell. The waiting is really the hardest part, Tom Petty knew what he was talking about.

Best of luck,
Janine


My husband, 8/09 53 @ dx stage III squam nsclc R. pancoast tumor
Destruction of 3 ribs, touching brachial plexus.
6/09-8/09 2 core and 1 VATS undx biopsies. Open thoracotomy for 1 positive biopsy (unresectable)
9/09 Chemo/rads curative intent
11/09 MRI by pancoast specialist surgeon spine met found undiagnosed Rad to spine, Chemo continued thru 6 cycles
Tarceva maintenance 2/10
11/10 3cm tumor L lung, undx core bx w/collapsed lung. Gemzar, 12/10 through 7/12
NED 3/12, stop tx 7/12. Remains NED as of 9/16
Unanswerable question. Was it ever metastatic?

January 7, 2016 at 4:38 pm  #1272478    

plandrover2

Janine
Your story is very uplifting! I love to hear stories like your husband and hope I can lift someone else someday with telling my husbands story in years ahead. Thanks for replying

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