Please help me

This topic contains 74 replies, has 5 voices, and was last updated by JimC Forum Moderator JimC Forum Moderator 2 weeks, 4 days ago.

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October 6, 2017 at 7:37 am  #1293252    

angelapassmore8151

Hi Judy,

It was definitely a CT Scan she had. He showed us it on Wednesday.

Just picked my mum up from the day unit and she said the Bronchoscopy was awful she started to bleed. That was them doing a biopsy too Xx

October 6, 2017 at 10:55 am  #1293254    
catdander forum moderator
catdander forum moderator

Only the doctor can say why she believes the tumors to be cancer but it’s likely the size and shape inform her thoughts. Anything larger than 3 cm solid lung mass is more likely than not and at 5 cm it’s very likely. But as Judy said it’s not cancer until it’s seen under a microscope. Most any oncologist who has been practicing more than a couple of years will have seen masses that they thought certain to be cancer but ended up not being cancer.

FWIW, when you read about cancer and see words like unusual, rare, common, typical, etc know that cancer can and will do anything. Expect at least one element but usually several elements about an individual’s cancer to be rare or unusual or unique, it’s the one thing you can count on. It’s a strange oxymoron about cancer. I said all that to say if there’s lung cancer spread to the spleen it would be treated like lung cancer spread to any other part of the body. It won’t have any specific meaning about how to treat.

There are many nodes in the chest and it depends on where they are in relation to the primary mass as to what N value would be assigned. Dr. Weiss talks about that about half way down the page of the intro.

I hope this is all for naught and your mom doesn’t have cancer. But know you have a place to find answers.
All best,
Janine

October 6, 2017 at 2:26 pm  #1293256    

angelapassmore8151

Janine, I am so grateful for you explaining this to me. You, Judy and Jim put the information I’m looking for across in a way I understand. I am so pleased Dr West told me about this website otherwise I wouldn’t have found the three of you!

My mum and me slept for a couple of hours after her bronchoscopy she’s drank glasses of water and fresh apple juice and demolished a pizza, salad and ice cream!

Said she thought they were trying to murder her with the bronchoscopy as she found it really difficult because she has always had sinus problems so it proved difficult to do because she’s always blocked up. Xx

I hope that too Janine, I feel so low just now I can’t even explain it. Xx

October 9, 2017 at 8:06 am  #1293269    

angelapassmore8151

Hi Everyone,

Can someone tell me if the metastasis is solitary can it be removed?

I am trying to think of things to write down for Wednesday but due to the emotion of this I am struggling to see the wood from the trees and I cannot allow myself to fail because I can’t think straight.

Xx

October 9, 2017 at 10:04 am  #1293272    
catdander forum moderator
catdander forum moderator

Hi Angela,

I think we all can relate to your question. Dr. West has written an excellent post on the subject.

http://cancergrace.org/cancer-101/2011/01/01/cancer-101-faq-i-have-metastatic-cancer-but-why-cant-it-just-all-be-surgically-removed-or-radiated/

I hope this helps, let us know if you have follow up questions. You’re right in wanting to know all you can beforehand. There’s so much to know about cancer that a doctor can’t guess at what you do and don’t know so you just can’t expect them to know where to start so often the doc doesn’t try. But if you have specific questions they get an idea of want you want to know.

Keep us posted.
Best,
Janine

October 9, 2017 at 1:05 pm  #1293275    

angelapassmore8151

That was great Janine….. Thank you!

I’ve had a good read and I’ve written down a few things along with a few treatments but I guess I need to wait until Wednesday to actually hear from the Dr’s.

I don’t want them to give me a stand offish “Vanilla” approach. I genuinely want them to tell me “what they would do” If the shoe was on the other foot and this was someone who meant the world to them.

I just don’t want to be wrong here. Xx

October 9, 2017 at 1:51 pm  #1293281    
catdander forum moderator
catdander forum moderator

Asking what would you do if it were you or your ___ is a question that may illicit a different response than otherwise. I believe it was Dr. Weiss who said he does.

If your mom has incurable lung cancer they will want to know if there are mutations or high PD-L1 expression. What they look for first depends on histology. It will take some time to get it right but it’s important to get started on the right foot.

I know you want to get ahead of the curve so you can have an educated conversation with the doc but with more detail usually comes more possibilities, hence more information, at least for now.

The question today remains, is this lung cancer. Then you’ll need to find out about the nodes and/or spleen.

I really understand. Before my husband was diagnosed he had undiagnosible biopsies (no oncologist) but we knew it was almost certain to be cancer because of bone destruction (nothing destroys bones like cancer). It’s a lot to take in without a clear path. It will happen and the release of stress will be apparent even if it turns out to be cancer. One step, one day, one moment at a time. Your mom is lucky to have you including the ice cream and the pizza… :)

Janine

October 9, 2017 at 2:21 pm  #1293283    

angelapassmore8151

Your right Janine. I usually am very controlled and structured, I am an Account Manager for an Audio Visual company so can make decisions based on my instincts and can control situations without blinking an eye.

I just feel my personal life is out of control and I’m constantly scrambling between “Don’t think about it – Act normal” and having all of the stress and worry consume me to the extent I feel hysterical.

Do you think there is a chance this may not be LC? Xx❤️️

October 9, 2017 at 5:10 pm  #1293285    
catdander forum moderator
catdander forum moderator

It’s absolutely possible that this isn’t cancer. There are several other possibilities one being infection but the larger the mass the more likely it is to be cancer. My hopes are very much alive that this isn’t cancer.

October 9, 2017 at 11:49 pm  #1293287    

angelapassmore8151

Can infection affect your chest nodes? Xx

October 10, 2017 at 6:23 am  #1293289    
JimC Forum Moderator
JimC Forum Moderator

Hi Angela,

Yes, it certainly can. As Dr. West has said, although cancer can enlarge chest nodes, “it’s not cancer until a biopsy shows cancer under the microscope, and I can assure you that we do see things that look concerning for cancer that turn out to be infection or inflammation, which can also enlarge lymph nodes in the chest.” – http://cancergrace.org/forums/index.php?topic=1701.msg9995#msg9995

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

October 10, 2017 at 6:26 am  #1293290    

angelapassmore8151

Wow Jim, thank you so much. I’ll read this now. Xx

October 11, 2017 at 4:05 am  #1293296    

angelapassmore8151

Adenocarcinoma the said it’s been there for around 6 months

October 11, 2017 at 5:49 am  #1293297    
JimC Forum Moderator
JimC Forum Moderator

Angela,

If that is the result from the bronchoscopy, I am sorry to hear that. I think the next question would be to determine whether the finding in the spleen represents cancer. Does the doctor plan a biopsy of that location? That result would make a difference in staging and possibly treatment as well.

Keeping you and your mom in our thoughts.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

October 11, 2017 at 6:52 am  #1293298    

angelapassmore8151

Jim,

Thank you for responding to me. They didn’t say about the spleen biopsy she treated it all as one?

Spread to both sides of chest lymph nodes. I expected chemo radio then possibly surgery?

Is remission possible?

October 11, 2017 at 7:28 am  #1293299    
JimC Forum Moderator
JimC Forum Moderator

Angela,

Since the lung mass and lymph nodes are confirmed as lung cancer, it may not be felt necessary to check out the spleen, since the first choice in treatment would be chemotherapy, possibly in combination with radiation. Surgery is at times an option with some Stage III lung cancers, but with a possible metastasis to the spleen, your doctors will probably want to follow it and see if it responds to the chemo before even considering surgical options.

Good luck with treatment.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

October 11, 2017 at 7:34 am  #1293300    

angelapassmore8151

Jim, can you help me with what I should do next?

Where should I go, can people survive this?

I’m lost

October 11, 2017 at 8:45 am  #1293302    

angelapassmore8151

I am trying to get a second opinion as I feel for some reason they are just binning my mum off with chemo when actually as 66 she is in better health than people half her age!

I am angry. We go to these apps and it’s put to you in a 10 minute gap that you have terminal cancer and chemo can buy you time! I mean really???

Perhaps with some frail elderly person – Not someone at 66!

October 11, 2017 at 11:38 am  #1293304    
catdander forum moderator
catdander forum moderator

I’m so sorry your about your mom’s diagnosis. I encourage you to go back and read the intro to lung cancer link, about halfway through is a section on staging. The type of treatment depends on stage of cancer. Unfortunately if the cancer is in both sides of the mediastinum nodes the cancer is staged IV and not considered curable but it is treatable. The reason for this staging is the 2 lungs are connected only by blood and lymph system which is connected to the rest of the body and cancer cells can be expected to be circulating throughout the body. This is why systemic treatment is used. Surgery and radiation are reserved for either palliation or curitive tx because with each use it destroys healthy tissue of which you want to maintain. With the possibility of curing or to mitigate symptoms surgery or radiation is considered worth the loss of healthy lung tissue.

A 2nd opinion is never a bad idea. http://cancergrace.org/cancer-101/2011/11/13/an-insiders-guide-to-the-second-opinion/

I may have already shared this with you, http://cancergrace.org/cancer-101/2011/01/01/cancer-101-faq-i-have-metastatic-cancer-but-why-cant-it-just-all-be-surgically-removed-or-radiated/

Here is a link to our FAQ page or it can be found on the bottom of the “General Cancer Info” drop down. http://cancergrace.org/faq

You’ll start to make sense of all this soon.

Janine

October 11, 2017 at 5:04 pm  #1293307    

angelapassmore8151

Thanks Janine…. I’m completely gutted and lost

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