Site Improvement Ideas

Portal Forums User Community Comments/Suggestions Site Improvement Ideas

This topic contains 34 replies, has 11 voices, and was last updated by Dr West Dr West 5 years, 9 months ago.

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February 22, 2012 at 8:50 pm  #1242060    
Dr West
Dr West

Just to clarify, we’ve communicated via e-mail now, and we are now about to make some changes that I truly expect will improve the navigability of the site. These should be implemented within a matter of days.

-Dr. West

February 23, 2012 at 5:26 am  #1242069    

follansbee

I’m becoming accustomed to the new format and finding it easier to navigate. Appreciate all the hard work so many of you are putting in. I don’t know if this has been asked before, but will a “Print” button to change to a Print format be added, or am I missing it somewhere?

February 23, 2012 at 5:30 am  #1242070    

fortmyr

Thank you for all your efforts Dr. West, Mark and Denise. Your commitment is much appreciated :)

Myriam


Sister (46 yo), non-smoker, diagnosed stage 4 NSCLC 12/2009 12/09-03/10: 5 cycles cisplatin+navelbine (stopped because of neuropathy) 04/10-06/11:Tarceva (EGFR, exon 21 mutation) 02/11: 15Xrad. to right lung (bronchi blocked) 04/11: MRI shows 10 brain mets. 05/11: 5 sessions of WBRT (20 Gy) 06/11-12/11: maintenance Alimta 11/11 and 01/12: radiosurgery (15 Gy to 2+3 brain mets) 12/11-03/12: re-Tarceva. 04/12: Afatinib (convulsions) 08/12: adding Cetuximab to Afatinib. Left us October 31, 2012.

February 23, 2012 at 1:56 pm  #1242094    

certain spring

On the old site there was a very useful function that warned you when someone else had posted a reply while you were composing yours. Is it possible to recover or reproduce it? A couple of times in the last 48 hours I’ve missed new information, either from the doctors or the original poster, that made my post redundant or plain wrong. Many thanks.


49-year-old non-smoker, dx stage IV NSCLC May 2010 (squamous tumour of the left lung with multiple brain metastases). Radiotherapy to chest and brain; progressed through two cycles carbo/gemcitabine. Repeated lung collapses; pneumonia in collapsed lung, Nov 2010; bronchial stent placed, Dec 2010. Declined second-line Taxotere. Mutation testing Feb 2011, surprise EGFR exon deletion 19. Started Tarceva (150mg), Feb 2011. Progression in liver and elsewhere, May 2013.

February 23, 2012 at 2:46 pm  #1242097    
Dr West
Dr West

It’s on the list of things we’d like to add but, to my knowledge, isn’t available yet. I wouldn’t be surprised if we (and by that I mean Webmaster Mark) can build that, or else we’ll see someone else do it. We’ve just got other improvements to tackle that are higher on the list for the immediate future.

-Dr. West

February 23, 2012 at 3:05 pm  #1242099    

certain spring

Of course there are higher priorities (mine is being able to view “new posts”). But is this thread the right place to log suggestions for the future? The error/bugs forum has gone I think.


49-year-old non-smoker, dx stage IV NSCLC May 2010 (squamous tumour of the left lung with multiple brain metastases). Radiotherapy to chest and brain; progressed through two cycles carbo/gemcitabine. Repeated lung collapses; pneumonia in collapsed lung, Nov 2010; bronchial stent placed, Dec 2010. Declined second-line Taxotere. Mutation testing Feb 2011, surprise EGFR exon deletion 19. Started Tarceva (150mg), Feb 2011. Progression in liver and elsewhere, May 2013.

February 23, 2012 at 3:36 pm  #1242101    
Dr West
Dr West

Yes, and both this area and one for bugs/errors will remain in the future, even as we cut some that I think are redundant and can only confuse people.

My thought is that this forum is for suggestions of things that would be nice to add, while bugs/errors is for things that are on the site but don’t work. However, there will be overlap, so people can continue to post this general line of discussion in either forum.

-Dr. West

February 23, 2012 at 4:00 pm  #1242105    

certain spring

I actually intended to post in Errors/Bugs but I think it’s been moved. I couldn’t access it:from the link on the right of this thread:

http://cancergrace.org/forum/grace-errorsbugs-to-fix

I am trying to help, but like a lab rat I need to be re-trained!


49-year-old non-smoker, dx stage IV NSCLC May 2010 (squamous tumour of the left lung with multiple brain metastases). Radiotherapy to chest and brain; progressed through two cycles carbo/gemcitabine. Repeated lung collapses; pneumonia in collapsed lung, Nov 2010; bronchial stent placed, Dec 2010. Declined second-line Taxotere. Mutation testing Feb 2011, surprise EGFR exon deletion 19. Started Tarceva (150mg), Feb 2011. Progression in liver and elsewhere, May 2013.

February 23, 2012 at 4:36 pm  #1242106    

Christineleeds

Dear Webmaster Mark
You must have noticed that everyone is posting in the generic or lung cancer general bits and not in any of the specific areas which I think means the paths are a bit strange .You have specific lung cancer topics under radiation and than a whole section for lung cancer.I am baffled and used to find my way very well
Regards
Christine


Husband Philip dx 10/10 ltd SCLC.Cisplatin/epotiside with twice daily radiation 1/11 PCI 3/11.Pneumonitis .Progression 11/11 carbo/epotiside 1/12 Radiation 6/12.Very bad chest infection following rad which could not be controlled and SIADH.Died 8/12.Was very active and quite well for most of treatment up till the last week.

February 23, 2012 at 6:26 pm  #1242107    
Dr West
Dr West

Honestly, I think much of this issue is that people are just inclined to use the path of least resistance and post to it because it’s at the top of the page. I think if we were to move it to the bottom, people would scan the topics and pick the most descriptive and appropriate one to post to. We may move “General Lung” down on the list and see if people use it as the default when it takes just the effort to scroll down the page to get there. I suspect the pattern will change.

I really want to be receptive and open to people’s complaints, but it’s not rocket science to look at the list of forum topics and just put in the effort to find the best place to post based on the subject. I want to make the site easy, but people dumping complaint after complaint after repetitive complaint about how much they liked it before and how they have to navigate more now is getting to the point where it’s not productive.

The site was easier when it was all about lung cancer, or so prevalently lung cancer that people just congregated in one big room. Now the site is effectively carving one big room into multiple separate rooms so that it can foster a few different discussions and communities. This will require people to find the right door to the room they want. Yes, that’s harder than just showing up and following the crowd, but it’s not incredibly mind-boggling now to navigate with the cues, and we’re actively building improvements as quickly as we can. Those will be rolled out in a matter of just days, as we’ve continued to use your feedback to refine things. And the search function works to help you find topics/threads you’re interested in — but only if people actually try to use it.

We are absolutely committed to making GRACE as useful as possible for as many people as possible, but opening this up to other cancer subtypes means that people do have to go to the effort of finding where to be. We are working on improvements as fast as we can, and we want to log every new suggestion and potential improvement to tackle over time. But just having people pile on incessant comments about how much they like they old site isn’t going to make things any better. The software didn’t work well, and we’re not going back. We’re doing the best we can with a free service that is better than any other source I know of for timely cancer information. Can we perhaps have a hiatus from the barrage until we can implement some of the changes I hope and expect will improve things?

-Dr. West

February 24, 2012 at 4:03 am  #1242108    

blue skies

Dr. West said, Honestly, I think much of this issue is that people are just inclined to use the path of least resistance and post to it because it’s at the top of the page.

Successful web site navigation and use is completely dependent on the intuitive nature of the structure (tabs and other links). And a primary measure of that success is that users click no more than once or twice to reach the content they are looking for. Successful website design leverages the natural behavior and use patterns of visitors to the site.

People using the site have already expressed that they don’t know where to post things, that they have to click, click, click to look for things and that they cant find content of interest when they try to go back and reaccess it (I had to think hard to find this post).

I am looking forward to seeing the new changes that will come out in the next few days and hope it will make things a little easier.

In the meantime, I’ll follow Laya’s lead and take a big breath….

  • This reply was modified 5 years, 9 months ago by  blue skies.
  • This reply was modified 5 years, 9 months ago by  blue skies.
February 24, 2012 at 6:43 am  #1242110    

certain spring

Dr West, you sound exasperated, and I can understand how annoying it must be to feel that people are harping on about relatively small housekeeping issues when there are bigger goals at stake. I think there are a number of different things going on here, and it is worth trying to identify them.
First, it goes without saying that we all appreciate the site enormously and want to make it work. Not a day has passed since the revamp without somebody expressing their gratitude to you, Denise, Mark and everyone who has put time and effort into the new GRACE.
People don’t like change and – at least after a certain age – don’t like learning new things. So there was always going to be resistance to the new site. There’s been a certain amount of wailing, which you should not take personally (I include myself among the wailers). It functions as a form of bonding for the group, and can be very cathartic.
But we were also asked for feedback, and many constructive comments and suggestions have been offered, as well as complaints. There needs to be a place where users of the site can log their observations about how it is working – not necessarily as a matter of priority, but as a matter of record. We all understand that this is a work in progress, and that the site’s user-friendliness will improve. Denise mentioned at the top of this thread the need for “consensus recommendations”, and we are in effect developing a set of those. They will often include references to the old site, since that is what we are familiar with and that’s our natural template.
You seem to feel that people aren’t making an effort to navigate the site and use the search function. I could find almost anything on the old website, but agree with everyone who has found this one difficult. Please take our word for it, we’re not just being lazy.
However what I really wanted to say is that there is something else going on here. Cancer patients and their families, as you know better than anyone, live in a bewildering world full of loss and the fear of loss. There was a lot of emotion invested in the old website, and to some extent we are all probably mourning its loss. It is a tribute to what you have built that the site developed a life of its own and mattered to so many people. The new one will do the same, and the chorus of complaint is part of that process, until things settle down and we find one another again.


49-year-old non-smoker, dx stage IV NSCLC May 2010 (squamous tumour of the left lung with multiple brain metastases). Radiotherapy to chest and brain; progressed through two cycles carbo/gemcitabine. Repeated lung collapses; pneumonia in collapsed lung, Nov 2010; bronchial stent placed, Dec 2010. Declined second-line Taxotere. Mutation testing Feb 2011, surprise EGFR exon deletion 19. Started Tarceva (150mg), Feb 2011. Progression in liver and elsewhere, May 2013.

February 24, 2012 at 9:48 am  #1242111    
Dr West
Dr West

I understand, and I honestly appreciate the feedback. I absolutely don’t think that the site was or is now the pinnacle of usability, and I absolutely agree that the recommendations from users are very welcome and will identify things Denise, Mark, and I wouldn’t necessarily identify ourselves. I know that people are trying to be as constructive as they can be and are trying to bend.

Identifying new problems is constructive criticism and good feedback; even hearing from several other people that they’re having the same problem is helpful in knowing that the issues aren’t restricted to one person. My main point is that after we’ve said that we’ve clearly registered a concern and are diligently working on making improvements, there isn’t an incremental benefit to having people register nonspecific “I liked the old site!” complaints after the first 25 times we’ve heard that. OK — we get it. Let’s try to focus on things we can change. And let us do the changes we’re working on now. Mark is implementing them right now.

-Dr. West

  • This reply was modified 5 years, 9 months ago by Dr West Dr West.
  • This reply was modified 5 years, 9 months ago by Dr West Dr West.
February 24, 2012 at 9:59 am  #1242113    

judys

Just want to add a positive voice here—– I go the the Discuss bar at the top of the page; start down at Lung Cancer and go from there. I have an idea of how many hours ago I was on the site and just look for posts since then. When I’m done reading an area, I go the top where the portal line (in green) is, click on the last green words, which puts me back on the list of sub-topics and I look for the next post I want to read. When done with the Lung Cancer area, I return to the Discuss bar to check out the other forums. I appreciate being able to skip the areas that cover other cancers etc.

I’m definitely not tech-savvy but I don’t find this difficult to use. (Maybe the fact I’m not tech savvy is the reason this is ok for me!)


Never-smoker; Diagnosed 2/2007 at age 64 with NSCLC adenocarcinoma, Stage 3b. Carboplatin/taxol/avastin: 3/07 – 6/07; radiation 8/07 -9/07; Avastin 10/07 – 12/07; Nodules in prev.clear rt lung; repeated carbo/taxol/avastin 1/08 – 3/08; Tarceva 4/08 – 9/11; radiation to soft tissue mass between two ribs 10/11; Alimta 10/11 – 2/12; treatment break; return to Alimta 5/12 – 6/12. Taxotere 7/12 – 10/12; treatment break 11/12 – 1/13; scan showed progression 1/13; restarted taxotere with zometa 2/13

February 24, 2012 at 11:13 am  #1242114    
Dr West
Dr West

Thanks, Judy. Once we settle on the navigation, I’ll try to make a video, or a series of very short “how to” videos.

I also recognize that having a clearly visible list of most recent comments in the different subject areas would help people a lot.

-Dr. West

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