Update on my husband, D

Portal Forums Lung/Thoracic Cancer Lung Cancer Member Updates Update on my husband, D

This topic contains 74 replies, has 27 voices, and was last updated by  slimer 3 years, 11 months ago.

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October 24, 2012 at 4:37 pm  #1249439    
catdander forum moderator
catdander forum moderator

I am so lucky to share such good news today.

My husband is followed by PET scans as opposed to the more standard CT. As it turns out I’m not the doctor nor do I make the decisions…the latter is unless they are worthy of my “bulldog” like tenacity. Dr. Gore, my husband’s medical oncologist is the one who suggested my personality in the cancer center is like that of a bulldog and is very helpful in the context of helping a loved one through this process. So I’ll take it as a compliment, he insisted, 3 years ago.

D had his first scan since he went off treatment 3 months ago. The report says and I paraphrase, there is no hyper metabolic activity, no change in the scar tissue in the right lung (the original tumor which is the only biopsy with positive cancer findings over 3 years ago, Aug 2009). The “irregular” lesion on the left behind nipple is unchanged. (this was found at 3 cm Nov. 2010 then shrunk and became suv norm after a year)

The onc would like to induct him into his informal group of, again I paraphrase, “I don’t understand why you are still doing so well”.

I just feel like I should swoon and swoon again. I am so lucky, I wish everyone could have this.

Thanks for being there,

October 24, 2012 at 5:21 pm  #1249444    


Congrats to your husband and may he continue on the road of NED!!!
Take care, Judy

Stage IIIA adeno, dx 7/2010. SRS then chemo carbo/alimta 4x. NED as of 10/2011.
Local recurrence, surgery to remove LRL 8/29/13. 5.2cm involved pleura. Chemo carbo/alimta x3. NED

October 24, 2012 at 6:04 pm  #1249449    

double trouble

One more time…



Oh yeah! Do da happy dance… Oh yeah! do da happy dance… Oh yeah!

Awesome! Awesome! Awesome!

October 24, 2012 at 6:36 pm  #1249453    

laya d.

WHHHOOOOOO HOOOOOOO! Best news I’ve heard in a LONG LONG time!!! Janine, thank you for making my night!

All my best to you ad D!!!!

Much Love,

1/10 – My Mom (58) dx w/ NSCLC-Adeno 3a; 1 cycle of neoadjuvent Carbo/Alimta before finding out EGFR+ (Ex. 19), then switched to 7 wks of neoadjuvent Tarceva/150 mg (major shrinkage); 4/10 – right pneumonectomy; 6/10 started 3 rounds of adjuvent Cis/Alimta w/ concurrent chest radiation (7 wks); 8/10 – NED; 11/10 – small nodule in left lung; 1/11 – 3 small nodules in left lung, start Tarceva/100 mg; 4/11 – suspected sclerotic met to hip, continue w/ Tarceva, add XGEVA, brain MRI clear; 9/11 – solitary 3 cm met (adeno w/ T790m mutation) to cerebellum, surgery and gamma knife, up Tarceva to 150 mg; 11/11 – 2 left lung nodules growing, biopsy on 1 shows mutation from adeno to squamous (shocker!), brain MRI clear, continue Tarceva & Xgeva; 2/12 – brain MRI clear, CT scan, remaining nodule slightly bigger – – monitor for now, Tarceva (reduced to 100 mg) & Xgeva continued; 4/12 progression and rebiopsy (confirmed adeno), stop Tarceva, switch to Carbo/Alimta; 6/12 maintenanceAlimta; 8/12 back to Tarceva; 10/12 Gemzar; 11/16 difficulty breathing; 12/12 hospice initiated…my Mom passed away peacefully on 12/19/12. Heartbroken.

October 24, 2012 at 8:39 pm  #1249462    



CONGRATULATIONS, that is ABSOLUTELY WONDERFUL news!!!! I am sure you are both extremely happy, relieved, all sorts of emotions!

Best wishes always,

Nov 23, 2010 husband(49/smoker) dx IV NSLC mets to brain/liver, Nov-Dec, 2010 15 WBR tx, Jan’11 MRI much improved, Dec ’10-Mar’11 4 txs carbo/alimta/avastin w/good response, Apr ’11 MRI mets almost gone, Apr ’11 start maintenance alimta, Jul ’11 MRI still good, Jul ’11 carbo/taxol for new lung met and 2 liver mets, Oct ’11 MRI new brain mets and major progression in liver, Nov 2, ’11 GK, Nov 19, 2011 at peace
Since then: http://cancergrace.org/forums/index.php?topic=11426.0

October 24, 2012 at 9:21 pm  #1249466    
catdander forum moderator
catdander forum moderator

Yes Lisa, all sorts of emotions. I’ve not stopped to think in 8 hours.
Thank you all for celebrating with me.

October 24, 2012 at 10:12 pm  #1249469    
Dr West
Dr West


That’s absolutely terrific news — I’m so happy for you! Congratulations!

-Dr. West

October 24, 2012 at 10:35 pm  #1249471    


Janine—so good to hear the good news for D. We need more of this kind around here.

October 24, 2012 at 10:57 pm  #1249474    


Fantastic news Janine. The sun is shining!


October 25, 2012 at 1:14 am  #1249480    

certain spring

Glad to hear this great news – you both deserve a break.

49-year-old non-smoker, dx stage IV NSCLC May 2010 (squamous tumour of the left lung with multiple brain metastases). Radiotherapy to chest and brain; progressed through two cycles carbo/gemcitabine. Repeated lung collapses; pneumonia in collapsed lung, Nov 2010; bronchial stent placed, Dec 2010. Declined second-line Taxotere. Mutation testing Feb 2011, surprise EGFR exon deletion 19. Started Tarceva (150mg), Feb 2011. Progression in liver and elsewhere, May 2013.

October 25, 2012 at 3:34 am  #1249481    

sleepless in jersey

WOW That’s Terrrrrrrrific so happy for the 2 of you!!!

October 25, 2012 at 3:59 am  #1249482    

blue skies

Of the very many conversations with medical doctors that make my head spin and swoon, this is the one we all hope for! Congratulations! I’m going back to Cebra’s “happy dance” post above to extend the mement! I’llbe celebrating your news all day today!

October 25, 2012 at 5:55 am  #1249485    


Excellent news! Congratulations! –mikem

56 year old former smoker diagnosed w/Stage IV NSCLC Adenocarcinoma 10/20/09 Completed 6 carbo/alimta followed by 10 Alimta maintenance. Biopsy of iliac negative for metastatic disease. Might not have been a stage IV after all. Oct. 2010, on to surgery…. removed lung. All lymph nodes clear 11-17-10. July 2014 Still all clear. One more 6 month check and if all is good annual only.

  • This reply was modified 5 years, 9 months ago by  mikem.
  • This reply was modified 5 years, 9 months ago by  mikem.
October 25, 2012 at 10:04 am  #1249495    


Janine, D, congratulations!!! I am so thrilled for you!

Mom dx stage IV squamous NSCLC with exon 19 mutation at age 64 in 5/09. Summer ’09: Gamma knife, WBR, cis/gemzar -> miserable. 8/09 – 9/10:Tarceva; major response. Fall ’10: thoracotomy for complex effusion + femoral rod for unstable femur met; rad to femur; Abraxane. 12/10: WBR again for multiple tiny brain mets. 1 – 3/11: navelbine; progression. 4/11: carbo/cetuximab/tarceva. 5/11: hospice. Died peacefully at home, surrounded by family, on 6/26/11.

October 26, 2012 at 5:18 am  #1249555    


Great news, Janine!

November 5, 2012 at 10:02 am  #1249907    



I’ve been checking in rooting for this wonderful update. D’s clean PET gives us all hope that such outcomes are possible.

I’ll complete my 5th Round on Gemzar as a single first line “off label” treatment for Stage IV NSCLC in late Dec. and then my onc wants a PET/CT and even a separate CT w/contrast.

While my cancer started off and continues to be much more extensive than D’s, his story keeps my spirits up and gives me hope that I can get at least another “Stable” scan in, and continue on the gentle Gemzar which is for me like not having chemo at all. In fact, if I did not view the scans and know the results of the biopsy, I would not even know I had Stage IV NSCLC 13 months after Dx. Don’t think this happy state can continue when I have to leave Gemzar for more punishing chemos, so D’s success is very meaningful for me and I know and celebrate how joyful it is for you guys.

November 5, 2012 at 1:01 pm  #1249908    
catdander forum moderator
catdander forum moderator

Slimer, Thank you for such a fine sentiment, I feel you really are celebrating with us. I know how lucky D and I are to be without evidence of disease for the first time in the 3 years since dx and only wish everyone had this chance. Good luck on your next treatment and scan.

November 8, 2012 at 10:25 am  #1249974    


Congratulations, Janine, so happy for you and your husband!

77 yr old mom, never smoker, ER on 9/1/11 for breathlessness, diagnosed with malignant pleural effusion 9/8/11, stage 1V bronchiogenic adenocarcinoma of the lung. Tarceva 9/24/11; 4th thoracentesis on 9/26; diarrhea & nausea on 10/5 with rashes EGFR & ALK tests negative 10/7, stop tarceva 10/8, ER – 10/13, 5th thoracentesis, renal failure 10/15 – blood transfusion 10/27; Alimta, well tolerated; 11/9 stroke – lost right side and speech, 4/3 – hospitalized sugars of 803 due to decadron, 4/7 seventh round of Alimta with ongoing rehab for stroke. CT of 6/24/13 showed recurrence, re-start Alimta 7/11/13.On and off Alimta since 2013, usually NED and off chemo for periods of no less than 8 months to 14 months. Recent re-occurrence- Jan 2016, Alimta from Jan thru April 2016, NED April 2016. Re-occurrence of cancer Jan 2017, re-started Alimta. Tested positive for ROS1 June 2017, appt with onc to discuss future tx plans.

February 4, 2013 at 1:39 pm  #1253398    
catdander forum moderator
catdander forum moderator

We just received results that my husband had another NED pet scan. I am so humbled by his luck, our luck. I just don’t think there is anything to say except this would be infinitely sweeter if everyone got to enjoy such results.

February 4, 2013 at 2:01 pm  #1253399    



So happy for you and D!!!! I hope to continue to water ski behind your wake.

Just had my 50th!! Gemzar infusion last Friday. Four more infusions to go until next CT, Finally had to have a Power Port put in because my once beautiful arm and hand veins can’t take anymore. Still healing from the insertion and trying to get used to having this “Alien” in my body, with a catheter into my jugular vein yet. Oh vey!

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