Update on my husband, D

Portal Forums Lung/Thoracic Cancer Lung Cancer Member Updates Update on my husband, D

This topic contains 74 replies, has 27 voices, and was last updated by  slimer 3 years, 2 months ago.

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February 4, 2013 at 2:20 pm  #1253400    

double trouble

:-D :-D :-D Happy Dance! :-D :-D :-D

February 4, 2013 at 2:42 pm  #1253401    

gn21

How absolutely fantastic for you all. We are all cheering!

Gail

February 4, 2013 at 3:00 pm  #1253403    

certain spring

Great news. Worth holding your nerve for!


49-year-old non-smoker, dx stage IV NSCLC May 2010 (squamous tumour of the left lung with multiple brain metastases). Radiotherapy to chest and brain; progressed through two cycles carbo/gemcitabine. Repeated lung collapses; pneumonia in collapsed lung, Nov 2010; bronchial stent placed, Dec 2010. Declined second-line Taxotere. Mutation testing Feb 2011, surprise EGFR exon deletion 19. Started Tarceva (150mg), Feb 2011. Progression in liver and elsewhere, May 2013.

February 4, 2013 at 5:09 pm  #1253410    
Dr West
Dr West

I’m so very happy for you. I know it would be better if everyone had such good results, but his good scan doesn’t take away from anyone else’s chances, and it does remind us that people can do very well. Giving people hope is very valuable. You also give so much of yourself here that nobody would want anything but great news for both of you so that we can bask in your good fortune.

-Dr. West

February 4, 2013 at 6:16 pm  #1253415    

chebird

Janine,

I am SO HAPPY for you and D! It is exciting reading about how well D is doing.

Thanks for all your work here; you are a blessing!

Holly


- Husband: 7/11, 8+ cm Pancoast into T1, T2 and 3 ribs. – Fall 2011 chem/rads, partial response with tumor shrinking to 5.5 cm. – EGFR + Tarceva started 10/11 – 1/12- 4/13 Happy with NED – 4/13 intradural mets to spine and head. – 5/13-7/13 radiation to lower half of spine and 2 spots in head. Uncontrolled pain. – Mom: VATS for 1a 7/09. Mets to liver. stage 1V 7/13. Chemo. – Step-mom: dx 11/12 squamous stage 111. chem/rads.
9/27/13 Dx multiple LMC tumors throughout spine

February 4, 2013 at 8:07 pm  #1253417    

marisa93

Janine,

That’s wonderful news…so happy for you and D!!!!!!! Take care and enjoy life with NED!!!!!!!

Lisa


Nov 23, 2010 husband(49/smoker) dx IV NSLC mets to brain/liver, Nov-Dec, 2010 15 WBR tx, Jan’11 MRI much improved, Dec ’10-Mar’11 4 txs carbo/alimta/avastin w/good response, Apr ’11 MRI mets almost gone, Apr ’11 start maintenance alimta, Jul ’11 MRI still good, Jul ’11 carbo/taxol for new lung met and 2 liver mets, Oct ’11 MRI new brain mets and major progression in liver, Nov 2, ’11 GK, Nov 19, 2011 at peace
Since then: http://cancergrace.org/forums/index.php?topic=11426.0

February 4, 2013 at 10:20 pm  #1253436    

laya d.

YAHHHHHHHHHHHHHHHOOOOOOOOOOOOOO!!!! Absolutely totally made my day-week-month-year!!!!! Elated, My Sista’!

xoxoxo,
Laya


1/10 – My Mom (58) dx w/ NSCLC-Adeno 3a; 1 cycle of neoadjuvent Carbo/Alimta before finding out EGFR+ (Ex. 19), then switched to 7 wks of neoadjuvent Tarceva/150 mg (major shrinkage); 4/10 – right pneumonectomy; 6/10 started 3 rounds of adjuvent Cis/Alimta w/ concurrent chest radiation (7 wks); 8/10 – NED; 11/10 – small nodule in left lung; 1/11 – 3 small nodules in left lung, start Tarceva/100 mg; 4/11 – suspected sclerotic met to hip, continue w/ Tarceva, add XGEVA, brain MRI clear; 9/11 – solitary 3 cm met (adeno w/ T790m mutation) to cerebellum, surgery and gamma knife, up Tarceva to 150 mg; 11/11 – 2 left lung nodules growing, biopsy on 1 shows mutation from adeno to squamous (shocker!), brain MRI clear, continue Tarceva & Xgeva; 2/12 – brain MRI clear, CT scan, remaining nodule slightly bigger – – monitor for now, Tarceva (reduced to 100 mg) & Xgeva continued; 4/12 progression and rebiopsy (confirmed adeno), stop Tarceva, switch to Carbo/Alimta; 6/12 maintenanceAlimta; 8/12 back to Tarceva; 10/12 Gemzar; 11/16 difficulty breathing; 12/12 hospice initiated…my Mom passed away peacefully on 12/19/12. Heartbroken.

February 4, 2013 at 10:59 pm  #1253441    

delialolly1

That’s great news Janine. Very inspiring too and giving all the rest of us the hope we need. Take care!

Blessings,

Delia


17 July 2012: Husband 46, previous smoker, presented with huge plural effusion, hospitalised (stopped smoking about a week or two before dx) 23 July 2012: Drain fluid and do biopsy , 24 July 2012: Dx adeno nsclc, stage 3b, poorly differentiated tumor, , tx alimta four times, showed shrinkage, 31 Oct 2012: Start with tarceva 150mg, not sure whether EFGR was tested 15 Nov 2012: Stop Tarceva for 4\5 days due to severe facial rash. 20 November 2012: Back on Tarceva, more determined than before….

February 4, 2013 at 11:25 pm  #1253442    

Jazz

Janine,
So very, very, very HAPPY for you and D!! May NED keep you both for a long, loooooonnngggg time! Thrilled! I join everyone here in the happy dance!!

Joyously,
Jazz


Non-smoker, Dx 6/06 Stage IV Adeno. EGFR+ (exon 19 del), T790m+. Trial: 2cyc Carbo/Doce/Avastin + 2 w/Gem 8 – 12/06; Avastin maint. 1 – 4/07. Alimta + Tarceva 5/07 – 2/09. NED to 8/09. Tarceva 150 9/09-5/11, SBRT/XRS to lung & spine met 2/11. Trial MK2206 (AKT inhibitor) + Tarceva 5 – 12/11. Afatinib+cetuximab trial 2/12 -2/13. LL collapsed. 1/13 PET – new bone & adrenal mets. 4 cyc Carbo-Gem-Tarceva 5/13. Brain MRI 10/13 – clear. Lost Dad to LC 5/13.Anti-PDL1@Angeles Clinic?

February 5, 2013 at 12:16 pm  #1253447    

cards7up

Congrats to you both and put on those dancing shoes!
Take care, Judy


Stage IIIA adeno, dx 7/2010. SRS then chemo carbo/alimta 4x. NED as of 10/2011.
Local recurrence, surgery to remove LRL 8/29/13. 5.2cm involved pleura. Chemo carbo/alimta x3. NED

February 5, 2013 at 12:35 pm  #1253448    
catdander forum moderator
catdander forum moderator

Thanks everyone!Thanks I slept last night and D’s shock is wearing off and is showing less stress too.
Hopes for use all to have many happy light moments moving forward,
Janine

February 5, 2013 at 7:22 pm  #1253465    

heartspy

Dearest CatD: When one of us gets good news regarding cancer, we all get good news! This makes my heart overflow with happy for you and D. Many continued blessings to both of you and all of us! xxoo


My Beloved,43 year old husband passed away on 4/17/13 from NSCLC w/ EGFR+ mutation. My heart hurts with grief, but remains full of gratitude to GRACE .

May 2, 2013 at 8:00 pm  #1256135    
catdander forum moderator
catdander forum moderator

My husband had scan results today and it came back NED. That’s no evidence of disease for a year, the last 9 months of which have been off treatment. We are shocked, happy, and still in the running for winning some good luck charm.

As before it would be sweeter if we all could be given this news.
All my love,
Janine

May 2, 2013 at 8:02 pm  #1256136    

gn21

Janine,this is just such fantastic news. We are all dancing!

Gail

May 2, 2013 at 8:24 pm  #1256137    

slimer

Janine,

Was sort of down tonight facing yet another infusion tomorrow and thinking just how much more of this poison (gemcitabine) can I put through my bloodstream, and what the hell will I do when it stops, and then came your news and hope for myself was restored. D’s story is so unique, and when I read your signature again, I was reminded of how much D has been through to arrive at NED. Told myself, you’ve had easy, buck up and go into that infusion room (which always looks to me like a shabby beauty parlor) with a smile on your face. Celebrate another NED with no chemo by buying some lotto quick picks – you guys just might hit!!

May 2, 2013 at 8:43 pm  #1256138    

heartspy

Well, now that’s what it’s all about! Doing the Hokey-Pokey for ya’s! Makes my heart happy to hear this good news. I needed some happy- thanks, Janine. Many Continued Blessings for D and You. :-P


My Beloved,43 year old husband passed away on 4/17/13 from NSCLC w/ EGFR+ mutation. My heart hurts with grief, but remains full of gratitude to GRACE .

May 2, 2013 at 8:43 pm  #1256139    

marisa93

That’s wonderful news Janine! How great that D and you are able to continue celebrating life w/NED!!!!!

Lisa


Nov 23, 2010 husband(49/smoker) dx IV NSLC mets to brain/liver, Nov-Dec, 2010 15 WBR tx, Jan’11 MRI much improved, Dec ’10-Mar’11 4 txs carbo/alimta/avastin w/good response, Apr ’11 MRI mets almost gone, Apr ’11 start maintenance alimta, Jul ’11 MRI still good, Jul ’11 carbo/taxol for new lung met and 2 liver mets, Oct ’11 MRI new brain mets and major progression in liver, Nov 2, ’11 GK, Nov 19, 2011 at peace
Since then: http://cancergrace.org/forums/index.php?topic=11426.0

May 2, 2013 at 8:45 pm  #1256141    
JimC Forum Moderator
JimC Forum Moderator

Janine,

Such wonderful news! I am so happy for both of you, I am just speechless!

I’m sure you both suffered plenty of scanxiety recently, so I hope you can relax now and enjoy the good news and each other.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

May 2, 2013 at 9:00 pm  #1256144    

double trouble

:-D :-D :-D HAPPY DANCE! :-D :-D :-D

May 2, 2013 at 9:33 pm  #1256148    
catdander forum moderator
catdander forum moderator

Thanks all,
Jim I’m pretty speechless too…shocked, I think. We just got in from a walk with the dogs and I realized how light and easy I felt. I thought I was holding the scanxiety at bay but realized maybe not so much when I found myself having little tearful moments during yoga. 2 Days ago I woke up with the biggest fever blister I’ve had in years and it didn’t stop growing for a couple of days.

Dear Heartspy, I’m honored to bring a little hokey pokey to your day cause that’s what it’s all about. :-P

Debra and Gail, I have danced and plan to continue everyday.

Lisa, to continue with NED would be the greatest hope realized. I hold that hope lightly but never far.

Slimer, glad to have your back tomorrow. Will be there with, virtually.

My deepest gratitude to my Grace family
Janine

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