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This topic contains 34 replies, has 17 voices, and was last updated by  sensitivesoul 3 months, 4 weeks ago.

Viewing 15 posts - 21 through 35 (of 35 total)
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December 7, 2016 at 12:11 pm  #1289386    
catdander forum moderator
catdander forum moderator

Hi Nance,

I’m so sorry about the diagnosis. On a positive note it’s very possible to get a cure with treatment at this stage so cure is the assumption I’ll take for you while you move through this process. We have a lot written on the subject of limited stage sclc both in our forums section and in our blogs posts and video section (aka pushed info).
This is a good place to start, http://cancergrace.org/lung/2010/08/07/treatment-of-small-cell-lung-cancer/

http://cancergrace.org/lung/2015/10/14/gcvl_lu-ga04_radiation_management_limited_stage_sclc/

http://cancergrace.org/lung/2015/10/09/gcvl_lu-ga02_pci_limited_stage_sclc/

edited to add one more, http://cancergrace.org/lung/2010/04/01/surgery-for-limited-sclc/
this is a search result from our website with the search term “limited sclc”, http://cancergrace.org/lung/2010/08/07/treatment-of-small-cell-lung-cancer/

Take a look around, do your own searches and don’t hesitate to ask questions.
It will help if you start another thread specific to your question so we see it and others with similar questions can reference it as well.

I hope you do very well,
Janine

December 8, 2016 at 5:40 am  #1289396    

rich4life

Thanks for the reply Catdander, I am trying to reach out to Sherry, I havnt seen any cuurent post from her and was wondering if all is well

  • This reply was modified 1 year ago by  rich4life.
  • This reply was modified 1 year ago by  rich4life.
December 8, 2016 at 1:34 pm  #1289417    
catdander forum moderator
catdander forum moderator

Sorry for the plethera of choices Rich. Are any of these the sherri you’re looking for? If you’re not sure you can do a search for the one you think it is so to bring up a post.

eyhsherri74809
naevesherri
sherrieblackwell
sherriem69
sherriemcalliste
sherrieupchurch
Sherrik
Sherripii

or Sherry

azsherry
Select sherry
Select sherry11116
Select SherryB
Select sherryb111
Select sherryc1965
Select sherrys
Sherry Stoll
Select sherryspa
Select sherrywitcher15
Select sherryyan

December 8, 2016 at 1:43 pm  #1289418    
catdander forum moderator
catdander forum moderator

Oh ok I just read your edit. Do you mean our dear Sherry Stoll (SherryS)? I’m so sorry to have to write this but we’ve lost Sherry to lung cancer. She was a good friend to so many of us who never met her in person but still provided so many with hope and love for the life we have.

December 8, 2016 at 5:49 pm  #1289427    

rich4life

Her screen name is/was Sherry. No other letters.

  • This reply was modified 1 year ago by  rich4life.
  • This reply was modified 1 year ago by  rich4life.
December 9, 2016 at 10:00 am  #1289433    
catdander forum moderator
catdander forum moderator

Rich,

That’s weird it does just have her first name on the user icon but she’s registered as sherrys. Unfortunately that is the Sherry Stoll I told you about in the previous post. To make sure this is her member page, http://cancergrace.org/users/sherrys
This is her facebook page still up, https://www.facebook.com/sherry.n.stoll
Let me know if this is her.

All best,
Janine

February 10, 2017 at 8:01 am  #1290038    

aford8647

New member. Hoping to find information and support for my friend as her caregiver. D.C. 10/2016 with stage 3a lung cancer, anterior Right middle lobe, as well as, lymph node on right mediastinum. Having severe COPD, not a candidate for lobectomy or resection of lung. 11/2016: Received six weeks of radiation and chemo (carboplatin and taxol). 2/1/2017: 3 brain mets discovered. Currently receiving WBRT for 5 treatments. 2 down, 3 to go. Brain scan in Nov did not show any metastasis. The type of lung cancer is adenocarcinoma non-small lung cancer. The metastatic brain lesions seem to have appeared very quickly. My question is: How rapidly does a cancer cell multiply? I thought I read the cell division occurs within 6.4 days, but I haven’t been able to locate the article I read that in. Do you have any incite you could share?

March 20, 2017 at 11:03 am  #1290408    
catdander forum moderator
catdander forum moderator

aford8647, I’m so sorry I didn’t see your post. As a sticky thread I should have seen it first but I just didn’t notice a new post. Your question is probably a moot point now. I hope your friend is doing well after wbr. I know he/she could be experiencing side effects and hope they aren’t debilitating. If so you should know side effects like fatigue can seem like they won’t end but they do.

The growth rate of cancer even specifically nsclc is extremely variable and any number you find would at best be the median figure of 1000s of people’s nsclc.

A next step most oncologists would take would be to watch and wait without further treatment. It’s possible that the cancer is still completely gone with the treatment you’ve mentioned. The only way to know someone is cured is to wait to see what happens. This is done with regular scans and in person onc checkups.

Please know you can ask other questions if you have them. You may start a new thread that one of the moderators will surely see.

All best,
Janine

July 7, 2017 at 12:51 pm  #1291026    

pattiathome

Hello to All! I have recently been diagnosed with mucosal melanoma in the paranasal area and would like any info that I can obtain about it including experiences from other with MM patients. I have had 2 surgeries and the second had clear margins. I know that this is rare and highly aggressive and I am seeking any info such as the staging process of it and any future methods of determining any further progression of it. Thank you!

July 16, 2017 at 1:06 pm  #1291083    
catdander forum moderator
catdander forum moderator

Hi Pattiahome,

Welcome to Grace. I’m sorry it took me so long to respond. I’m remiss in checking the sticky threads sitting right on top of the forum pages, supposedly making it easy to see. I’m sorry you’re going through this but hope you are done with it, it stays away and can become a memory. Unfortunately we don’t have information on melanoma but melanoma.org appears to have a complex array of information and useful tools for those who have a melanoma diagnosis including a forum. Following is a link to their melanoma forum search results of “mucosal posted on or before 11-1-2016″. I would further investigate this site. https://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/search?keys=mucosal&created=11%2F01%2F2016&created_1=

Hoping for the best!
Janine

July 31, 2017 at 8:33 pm  #1291160    
dearjoyce
dearjoyce

Just a newcomer here dropping by to say “Hi.”
My name is Joyce and I am from Florida.
I am looking forward to having great interactions with you in the future. I guess that’s it for now, you guys have a good day!

July 31, 2017 at 8:43 pm  #1291161    
JimC Forum Moderator
JimC Forum Moderator

Hi Joyce,

Welcome to GRACE. I’m sorry that you need to be here, but please let us know if you have any questions, and we’ll be happy to help.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

August 9, 2017 at 4:22 pm  #1291224    

marcy222

Hi. I have been dying to ask a question, but do not seem to be able to figure out how??????

My question is this…….can a new pure ground glass opacity show up after never having any before and last CT of October 28, 2015 showed nothing pop up at 2 cms X 2.2 cms on July 26, 2017 scan.

I had an incidental one found on lower scan dated 4.25.17 that went away on this one but now it shows I have a large on in upper left lobe and two smaller ones in left lingual .6 X .8 mm and in lower left lobe of the same size.

I was put on antibiotics after one in April that went away and now have been put on antibiotics again (completed ) to rescan in 6 weeks.

In October 26, 2015 scan they did find for the first time mild bronchiectasis in upper left lobe and some atelectasis in bottom left ( the later has gone away).

Can a huge one pop up after 639 days when there were none evident?

Freaking out Is an understatement!

Thanks so much for any help!

Marcy Roney

August 10, 2017 at 5:23 pm  #1291234    
catdander forum moderator
catdander forum moderator

Hi Marcy,

I’m sorry you’re having a difficult time. Since we’re a cancer education site we don’t have specific info on bronchiectasis but it appears bronchiectasis causes a lot of infections. Though on the large size for infection 2.2 cm isn’t so unusual to think it can’t be infection, especially with bronchiectasis. Even if it is cancer and took 2 years to grow to that size it would be considered quite slow growing (indolent) and at 2.2 cm still fairly small. It sounds like your doctors are on the right path of treating it with antibiotics and like the infection it probably is. Watching and waiting is the right thing to do no matter what it turns out to be.

The following link is to a discussion on ground glass opacities (ggo) that may be of help.

http://cancergrace.org/lung/2013/04/13/follow-up-duration-for-ground-glass-opacities-ggos/#more-13254

I hope you do well.
All best,
Janine

August 21, 2017 at 10:19 am  #1291278    

sensitivesoul

Hi, I am a new member though 1.5 years out from diagnosis of NSCLC, EGFR. I am 62 female never-smoker.from LI, NY. Originally diagnosed in my lumbar due to severe pain, primary found in lung, mets to bone & brain. Two biopsies, two Cyberknifes: lumbar spine and brain. Radiation to spine and left iliac crest. 9 months on Tarceva; had every side effect with no benefit. I have been on IV chemo for 5 rounds (every three weeks) with Avastin, Carboplatin & Alimta. Avastin was removed after 3 sessions due to severe constant headache (still have). Nausea and bloating. My Onc will now put me back on Tarceva or member of same family. I am not a candidate for Tagresso; my mutation did not change. If Tarceva was ineffective for 9 months why would it be considered again now? Would a re-challenge of Tarceva possibly work? Cyberknife worked well on lumbar and brain; they continue to monitor MRI every three mos. Tumors in right lung are staple, no shrinkage, no new ones after IV chemo. Are there any others Chemo pills to be recommended at this time?

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