Welcome New Grace Members

Portal Forums Q&A, Ask Us New Questions Welcome New Grace Members

This topic contains 46 replies, has 22 voices, and was last updated by JimC Forum Moderator JimC Forum Moderator 6 days, 14 hours ago.

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December 7, 2016 at 12:11 pm  #1289386    
catdander forum moderator
catdander forum moderator

Hi Nance,

I’m so sorry about the diagnosis. On a positive note it’s very possible to get a cure with treatment at this stage so cure is the assumption I’ll take for you while you move through this process. We have a lot written on the subject of limited stage sclc both in our forums section and in our blogs posts and video section (aka pushed info).
This is a good place to start, http://cancergrace.org/lung/2010/08/07/treatment-of-small-cell-lung-cancer/



edited to add one more, http://cancergrace.org/lung/2010/04/01/surgery-for-limited-sclc/
this is a search result from our website with the search term “limited sclc”, http://cancergrace.org/lung/2010/08/07/treatment-of-small-cell-lung-cancer/

Take a look around, do your own searches and don’t hesitate to ask questions.
It will help if you start another thread specific to your question so we see it and others with similar questions can reference it as well.

I hope you do very well,

December 8, 2016 at 5:40 am  #1289396    


Thanks for the reply Catdander, I am trying to reach out to Sherry, I havnt seen any cuurent post from her and was wondering if all is well

  • This reply was modified 1 year, 7 months ago by  rich4life.
  • This reply was modified 1 year, 7 months ago by  rich4life.
December 8, 2016 at 1:34 pm  #1289417    
catdander forum moderator
catdander forum moderator

Sorry for the plethera of choices Rich. Are any of these the sherri you’re looking for? If you’re not sure you can do a search for the one you think it is so to bring up a post.


or Sherry

Select sherry
Select sherry11116
Select SherryB
Select sherryb111
Select sherryc1965
Select sherrys
Sherry Stoll
Select sherryspa
Select sherrywitcher15
Select sherryyan

December 8, 2016 at 1:43 pm  #1289418    
catdander forum moderator
catdander forum moderator

Oh ok I just read your edit. Do you mean our dear Sherry Stoll (SherryS)? I’m so sorry to have to write this but we’ve lost Sherry to lung cancer. She was a good friend to so many of us who never met her in person but still provided so many with hope and love for the life we have.

December 8, 2016 at 5:49 pm  #1289427    


Her screen name is/was Sherry. No other letters.

  • This reply was modified 1 year, 7 months ago by  rich4life.
  • This reply was modified 1 year, 7 months ago by  rich4life.
December 9, 2016 at 10:00 am  #1289433    
catdander forum moderator
catdander forum moderator


That’s weird it does just have her first name on the user icon but she’s registered as sherrys. Unfortunately that is the Sherry Stoll I told you about in the previous post. To make sure this is her member page, http://cancergrace.org/users/sherrys
This is her facebook page still up, https://www.facebook.com/sherry.n.stoll
Let me know if this is her.

All best,

February 10, 2017 at 8:01 am  #1290038    


New member. Hoping to find information and support for my friend as her caregiver. D.C. 10/2016 with stage 3a lung cancer, anterior Right middle lobe, as well as, lymph node on right mediastinum. Having severe COPD, not a candidate for lobectomy or resection of lung. 11/2016: Received six weeks of radiation and chemo (carboplatin and taxol). 2/1/2017: 3 brain mets discovered. Currently receiving WBRT for 5 treatments. 2 down, 3 to go. Brain scan in Nov did not show any metastasis. The type of lung cancer is adenocarcinoma non-small lung cancer. The metastatic brain lesions seem to have appeared very quickly. My question is: How rapidly does a cancer cell multiply? I thought I read the cell division occurs within 6.4 days, but I haven’t been able to locate the article I read that in. Do you have any incite you could share?

March 20, 2017 at 11:03 am  #1290408    
catdander forum moderator
catdander forum moderator

aford8647, I’m so sorry I didn’t see your post. As a sticky thread I should have seen it first but I just didn’t notice a new post. Your question is probably a moot point now. I hope your friend is doing well after wbr. I know he/she could be experiencing side effects and hope they aren’t debilitating. If so you should know side effects like fatigue can seem like they won’t end but they do.

The growth rate of cancer even specifically nsclc is extremely variable and any number you find would at best be the median figure of 1000s of people’s nsclc.

A next step most oncologists would take would be to watch and wait without further treatment. It’s possible that the cancer is still completely gone with the treatment you’ve mentioned. The only way to know someone is cured is to wait to see what happens. This is done with regular scans and in person onc checkups.

Please know you can ask other questions if you have them. You may start a new thread that one of the moderators will surely see.

All best,

July 7, 2017 at 12:51 pm  #1291026    


Hello to All! I have recently been diagnosed with mucosal melanoma in the paranasal area and would like any info that I can obtain about it including experiences from other with MM patients. I have had 2 surgeries and the second had clear margins. I know that this is rare and highly aggressive and I am seeking any info such as the staging process of it and any future methods of determining any further progression of it. Thank you!

July 16, 2017 at 1:06 pm  #1291083    
catdander forum moderator
catdander forum moderator

Hi Pattiahome,

Welcome to Grace. I’m sorry it took me so long to respond. I’m remiss in checking the sticky threads sitting right on top of the forum pages, supposedly making it easy to see. I’m sorry you’re going through this but hope you are done with it, it stays away and can become a memory. Unfortunately we don’t have information on melanoma but melanoma.org appears to have a complex array of information and useful tools for those who have a melanoma diagnosis including a forum. Following is a link to their melanoma forum search results of “mucosal posted on or before 11-1-2016″. I would further investigate this site. https://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/search?keys=mucosal&created=11%2F01%2F2016&created_1=

Hoping for the best!

July 31, 2017 at 8:33 pm  #1291160    

Just a newcomer here dropping by to say “Hi.”
My name is Joyce and I am from Florida.
I am looking forward to having great interactions with you in the future. I guess that’s it for now, you guys have a good day!

July 31, 2017 at 8:43 pm  #1291161    
JimC Forum Moderator
JimC Forum Moderator

Hi Joyce,

Welcome to GRACE. I’m sorry that you need to be here, but please let us know if you have any questions, and we’ll be happy to help.

Forum moderator

Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

August 9, 2017 at 4:22 pm  #1291224    


Hi. I have been dying to ask a question, but do not seem to be able to figure out how??????

My question is this…….can a new pure ground glass opacity show up after never having any before and last CT of October 28, 2015 showed nothing pop up at 2 cms X 2.2 cms on July 26, 2017 scan.

I had an incidental one found on lower scan dated 4.25.17 that went away on this one but now it shows I have a large on in upper left lobe and two smaller ones in left lingual .6 X .8 mm and in lower left lobe of the same size.

I was put on antibiotics after one in April that went away and now have been put on antibiotics again (completed ) to rescan in 6 weeks.

In October 26, 2015 scan they did find for the first time mild bronchiectasis in upper left lobe and some atelectasis in bottom left ( the later has gone away).

Can a huge one pop up after 639 days when there were none evident?

Freaking out Is an understatement!

Thanks so much for any help!

Marcy Roney

August 10, 2017 at 5:23 pm  #1291234    
catdander forum moderator
catdander forum moderator

Hi Marcy,

I’m sorry you’re having a difficult time. Since we’re a cancer education site we don’t have specific info on bronchiectasis but it appears bronchiectasis causes a lot of infections. Though on the large size for infection 2.2 cm isn’t so unusual to think it can’t be infection, especially with bronchiectasis. Even if it is cancer and took 2 years to grow to that size it would be considered quite slow growing (indolent) and at 2.2 cm still fairly small. It sounds like your doctors are on the right path of treating it with antibiotics and like the infection it probably is. Watching and waiting is the right thing to do no matter what it turns out to be.

The following link is to a discussion on ground glass opacities (ggo) that may be of help.


I hope you do well.
All best,

August 21, 2017 at 10:19 am  #1291278    


Hi, I am a new member though 1.5 years out from diagnosis of NSCLC, EGFR. I am 62 female never-smoker.from LI, NY. Originally diagnosed in my lumbar due to severe pain, primary found in lung, mets to bone & brain. Two biopsies, two Cyberknifes: lumbar spine and brain. Radiation to spine and left iliac crest. 9 months on Tarceva; had every side effect with no benefit. I have been on IV chemo for 5 rounds (every three weeks) with Avastin, Carboplatin & Alimta. Avastin was removed after 3 sessions due to severe constant headache (still have). Nausea and bloating. My Onc will now put me back on Tarceva or member of same family. I am not a candidate for Tagresso; my mutation did not change. If Tarceva was ineffective for 9 months why would it be considered again now? Would a re-challenge of Tarceva possibly work? Cyberknife worked well on lumbar and brain; they continue to monitor MRI every three mos. Tumors in right lung are staple, no shrinkage, no new ones after IV chemo. Are there any others Chemo pills to be recommended at this time?

January 11, 2018 at 10:59 pm  #1293769    


My name is Lee-anne im 41 and have just this week found to have a suspect mas on my lung am awaiting PET scan and biopsy to see what we are dealing with.
So far all other ct’s show no other lesion’s.
Scared is an understatment.

January 12, 2018 at 10:46 am  #1293772    
catdander forum moderator
catdander forum moderator

Hi Lee-anne,

I’m so sorry you have this scare. I hope it’s not cancer. Please keep us posted and in the off chance it is cancer please know that we are here to help.

Best hopes,

January 22, 2018 at 4:34 am  #1293846    


My wife started experiencing generalized upper thoracic pains 3 months ago. We visited no less than 7 local practitioners, she spent a month on physio with Tens treatment without relief. Pain increasing almost on daily basis. Met with an irresponsible chiropractor that probably should only practice on Sear’s lifeless mannequins, not humans with extreme pain.
Eventually, by presenting ourselves at hospital Emergency and not accepting generalized diagnostics, we came to learn of “abnormality at T7 with pathological fracture and compression and lytic destruction of much of the vertebral body, consistent with metastatic lesion”.
At this finding, she was given morphine for pain. The morphine provides some short-term relief and now we are going on to learn more ab this condition.
Now we seem to have something on which to focus.
I find extreme difficulty in accepting that she had to continually accept inconclusive diagnoses from so many practitioners. It seems her visits were scripted: questions asked, answers typed into a computer and little local or practical options considered.
In one situation, a triage nurse apparently disagreed with the software diagnosis. She enquired from a colleague, who indicated to accept the software qualification.
I hope with support and information through Grace, we will achieve comfort in the short-term and curative results.

January 22, 2018 at 6:34 am  #1293848    


pondman, was she diagnosed with cancer of any kind? I can’t imagine any PT or chiropractor treating anyone who hasn’t had a current xray. I known they didn’t with me when I had a compression fracture of the T11. They did do a biopsy and thankfully mine wasn’t cancer related but osteoporosis. Another whole can of worms! Are you located in the US? Sometimes we need to advocate for ourselves or our loved ones and push to get what we feel we need. Wishing you all the best. Take care, Judy

Stage IIIA adeno, dx 7/2010. SRS then chemo carbo/alimta 4x. NED as of 10/2011.
Local recurrence, surgery to remove LRL 8/29/13. 5.2cm involved pleura. Chemo carbo/alimta x3. NED

January 22, 2018 at 10:09 am  #1293850    


Hi Judy,
Fortunately, the diagnosis is NOT cancer at this point. The suspicion seems to support cancer on the basis of uterine cancer nearly 20 years ago. We are in Ontario Canada with socialized medicine. I assure you that this is the kind of “benefit” I would wish for everyone.
We are now scheduled for a needle biopsy tomorrow. From this extraction, we will know if it’s cancer and presumably the exact source or cause of it.
From that our oncologist will then provide the strategy and aspiration.
We have our fingers crossed for a good outcome.

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