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This topic contains 46 replies, has 22 voices, and was last updated by JimC Forum Moderator JimC Forum Moderator 1 month ago.

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February 9, 2018 at 5:36 pm  #1293948    

markstoinis

Hello I am newbie here. Please accept me guys. Thanks!

February 10, 2018 at 7:09 am  #1293951    
JimC Forum Moderator
JimC Forum Moderator

Hi Mark,

Welcome to GRACE. Please let us know if you have any questions, and we’ll be happy to provide answers. It’s good to have you as a member of the GRACE family!

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

February 11, 2018 at 2:42 am  #1293952    

markstoinis

Thank you so much JimC for your kind words. Glad to be a part into this community. lol

May 3, 2018 at 1:07 pm  #1294370    

atrooper

Hello, I’m new here. I had a VATs resection for a 2.6 cm Squamous, poorly-differentiated nsclc, in December of 2017. I’m coming up on my first CT follow-up, and am a nervous wreck.

A month ago I printed out the pathology reports which showed a strong positivity for p.16, and AE1/AE3. CD56 was negative. A Ml/B1 marker is positive in 70% of the nuclei. It was negative for TTF1, and there was a mention of the possibility of a metastasis from the nasopharynx. The margins were clear. I don’t think they do mutation testing until the cancer progresses past 1A. I don’t think they do much if it is Squamous. I did wonder about the metastasis from the nasopharynx. There was no follow-up regarding that. I’d had an Adenoid nodule biopsied a few years ago, but it was negative for cancer.

The surgeon removed 1/3 of my RLL, but found quite a number of pulmonary adhesions. In order to get to the tumor, the surgeon had to pull my lung away from the ribs it was adhered to. I had been hit by a bicyclist over 7 years ago while I crossed the street. The chest injury was severe with 8 rib fractures (multiple places), a lung contusion, and fractured scapula. The surgeon had to remove the adhesions so he could get to the tumor. I have a separate line of sutures just from that procedure.

So in my uneducated mind I keep thinking I have a cancer that started in my nose, and it wouldn’t have even started growing if the idiot that hit me with her bicycle hadn’t done so.

Thanks for letting me ramble. Five more days until the 4-month CT!

May 4, 2018 at 7:14 am  #1294375    

cards7up

The path is listing the stains and any markers found at the time (see link). If this had been cancer from 7 years ago, it would likely have reared it’s ugly head long before now and not be stage I. I can’t answer anything pertaining to the remark about the nasopharynx, but you should discuss that with your surgeon.
Good that it was caught early and it’s a smaller tumor, so no further treatment should be needed.
Take care Judy
http://www.pathologyoutlines.com/stains.html


Stage IIIA adeno, dx 7/2010. SRS then chemo carbo/alimta 4x. NED as of 10/2011.
Local recurrence, surgery to remove LRL 8/29/13. 5.2cm involved pleura. Chemo carbo/alimta x3. NED

July 11, 2018 at 7:24 pm  #1294870    

atrooper

So the CT scan showed no signs of cancer. I ended up in the hospital the day after the above post with afib. That lead to a stress test that showed a blockage requiring a stent. Forget any lung biopsy, or surgery until I’m off the stent medications in a year. The afib just stopped the afternoon after I had the CT scan. I told them it was stress that brought it on. They said stress couldn’t bring on afib, but my blood pressure has always been low, along with cholesterol. I think people here might agree that the stress associated with lung cancer is unreal. Another CT scan in September. I have been very lucky to be dodging bullets recently. I’m gonna pay for it later I bet.

July 12, 2018 at 6:23 am  #1294874    
JimC Forum Moderator
JimC Forum Moderator

Hi atrooper,

Congratulations on the excellent scan report! We’ll hope that the afib was a one-time phenomenon, and that future scans will not be quite as stressful. Having said that, many of us have experienced “scanxiety” and we realize it’s not that easy to approach a scan without it.

Wishing you continued great results!

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

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