Where in the world? ..ALK gene sequencing outside NA. Seeking links & contacts

Portal Forums Lung/Thoracic Cancer ALK Inhibitors Where in the world? ..ALK gene sequencing outside NA. Seeking links & contacts

This topic contains 2 replies, has 2 voices, and was last updated by kronk kronk 3 months, 1 week ago.

Viewing 3 posts - 1 through 3 (of 3 total)
Author Posts   
Author Posts
March 31, 2018 at 5:53 am  #1294158    
kronk
kronk

As international teachers our contracts take us to countries outside of NA, Aus, Europe and we are usually left to try to source and resource for ourselves. Luckily, as my wife being a 5yr veteran of ALK wars, we needed and found some quick and inexpensive (self funded, no insurance) Cyberknife and Truebeam in Istanbul Turkey (Medipol). .
Recommendation
5 Hospitals in Istanbul have excellent options for radiation treatments with full package plans. Very inexpensive and good international departments with state of the art technical devices and training.

Questions
1.We are hoping to use our wide web of you interested, knowledgeable and supportive members to find a location other than US for the new test that is able to identify and isolate changes to the ALK mutation?
2.Further, as Saule is beyond 2nd generation (Ceritinib and Alectinib), any suggestions/information on status and efficacy of Lorlatinib and other 3rd gen options would be much appreciated?


International ALK from Kazakstan living and fighting in Dubai … Never, never, never, never give up! -Winston Churchill and us.

March 31, 2018 at 7:42 am  #1294160    
JimC Forum Moderator
JimC Forum Moderator

Hi kronk,

Dr. West and colleagues discuss new options, including Lorlatinib, in this discussion.

In addition, you may be able to find clinical trials for your particular location at clinicaltrials.gov, which covers the entire world.

JimC
Forum moderator


Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19
4 cycles Carbo/alimta, 65% shrinkage
Tarceva maintenance
Mar 2010 progression, added Alimta, stable
Sep 2010 multiple brain mets, WBR
Oct 2010 large pericardial effusion, tamponade
Jan 2011 progression, start abraxane
Jun 2011-New liver, brain mets, add Tarceva
Oct 2011-Dx Leptomeningeal carcinomatosis; pulsed Tarceva
At rest Nov 4 2011
Since then: http://cancergrace.org/blog/jim-and-lisa

April 3, 2018 at 5:17 am  #1294178    
kronk
kronk

thank you for the prompt reply Jim… great place to start. Im on it.


International ALK from Kazakstan living and fighting in Dubai … Never, never, never, never give up! -Winston Churchill and us.

Viewing 3 posts - 1 through 3 (of 3 total)

You must be logged in to reply to this topic.