Yoga for All

I'm happy to post this article because it can get buried in our newer content yet is one of a kind and such a good resource. Raquel's youtube channel is filled with yoga routines. I found a method I still use to loosen my neck by massaging my ears and hands. There's something for everyone patient and caregiver alike.

 

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

Brain cancer report - second opinions

Hello,
One of my close relatives recently had a seizure and was rushed to the hospital. They did a MRI and the doctor informed that they found traces of brain cancer in the scan. The doctor also confirmed with other tests that the cancer was also detected on bones and liver.

On Monday they will perform radiation therapy - gamma knife, to target the cancer in the brain.

I have shared the translated report in the link below. Original report is in french.

(link has been removed by moderator)

Better Communication Leads to Better Outcomes for Cancer Patients

How easy or difficult do you find communicating with your care team?

I came across this discussion by Dr. West, Better Communication Leads to Better Outcomes for Cancer Patients

I would say if you find yourself in a situation where your "communication" isn't taken as a serious piece of your cancer management remind your onc of this study...have the study especially the conclusion bookmarked or printed out to share.

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

Sexual Health During Cancer Treatment--- La Salud Sexual Durante el Tratamiento del Cáncer

Sex is almost always a neglected subject in cancer care.  I'm so glad and proud of our staff that we have this excellent article in both Spanish and  English

Wishing all well,

Janine

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

Navigating GRACE's Video Series

If you're like me finding specific info isn't always straightforward online. Denise has written a post on the subject here.  I hope this is helpful :)

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

Worried I have pancoast tumor.

Hello. I am here to see if anyone can share symptoms of pancoast. And if you can, please, answer some questions. My story: About a month-ish ago, I all of a sudden got this aching pain in my right shoulder blade. It was annoying, and bothersome. It would come and go, and a variety of pain levels, and woke me up at night. In the meantime before this, I felt something "Off" with my throat when I swallowed, like it felt as if "Something" was there. Then I would burp. Very unusual for me. So I have this "Off" feeling in my throat, and now this pain in my right shoulder blade.

HPV transmission risk

This is regarding french kissing for about 5 min.

The woman had radiation for cervical cancer at 20, and a hysterectomy for reoccurance, recently at 35.
She said the cancer tested positive for all 13 high risk strains. The 15 year reoccurance tells me that she never cleared the virus. I have read that approximately 33% of women with cervical hpv, also have it orally.

I am now panicked that the chances of contracting oral hpv that may lead to head and neck cancer are astronomically high for me. My great grandmother died of throat cancer.

T790M finally detected

Patient diagnosed with NSCLC EGFR+ Exon 19Del and treated with Erlotinib 150mg for 10 months until progression. Liquid biopsy was T790M negative and the subsequent tissue biopsy was 790M negative as well. Carboplatin Pemetrexed chemo for 4 cycles and progression detected and liquid biopsy was T790M negative as well. Docetaxel for 4 cycles and disease progression continued. Liquid NGS ordered and T790M (less than 1% SNV) detected along with PIK3CA and TP53. Patient started on Tagrisso 80mg on March 1, 2022. Any insight as to why to took so long for 790M to show up?

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