Post Date | Body | Has new content | Topic | Forum | Name |
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This is absolutely not a complaint. However I wondered if anyone else finds that some of the comments are getting elongated into a long vertical strip, eg: http://cancergrace.org/lung/2012/02/25/5takeawaystargetedrx/#comment-91… |
Elongated comments? - 1242238 | Full Archive | certain spring | ||
I am a graduate student at the University of West Florida’s Department of Communication Arts and would like to invite you to participate in a research study focusing on computer-mediated communication and chemotherapy. This study will assess the communication patterns involved in support group participation by gathering data through a private Facebook group, Chemo Chat. You may participate if you are currently undergoing chemotherapy. Please do not participate if you are no longer undergoing chemotherapy. As a participant, you will be asked to communicate within the Facebook group, Chemo Chat. Using Chemo Chat as a Facebook community provides me the opportunity to add a level of confidentiality by keeping the group closed, or private. This means that the only users who can view any of the group content are the Chemo Chat members. When reviewing the posts of other group members, you may not feel comfortable discussing personal health information. To minimize this risk and ensure confidentiality, Chemo Chat has been designed as an invitation-only, or closed group, which means that only the administrator, Emily Garber, and all other invited group members can view the posts. All other Chemo Chat group members are current chemotherapy patients. The data gathered for this capstone project will be used for a final project presentation to the graduate faculty and graduate students of the University of West Florida’s Department of Communication Arts. In order to participate, please log on to your Facebook profile and request to become a member of Chemo Chat, at http://www.facebook.com/groups/chemochat/ You must also sign the Informed Consent to Participate in Research Study form, which can be accessed at https://docs.google.com/document/d/1YC0XtvUtFKKD6AmzOWh0IK9UJzPwNs3-hmD… and e-mail the signed document to the administrator, at eag20@students.uwf.edu Thank you in advance for your participation! |
Facebook Chemotherapy Group Study - 1254686 | Full Archive | eag20 | ||
Forgive me if this has been discussed before and I have missed it. I am struggling to find recent threads - by which I mean since we moved to the new site. What's foxed me totally is the "replies" archive in the Profile section. I just want a list of the threads I have contributed to. I've looked and, although lots come up, this morning I couldn't find two I wanted from the last few days. One was started by ssflxl, and is called "This was reported in the NEJM"; the other I think was started by MarkG, and is about Tarceva resistance (although there are a lot of those). Update: Found both, but not through my Profile page - I posted in both, but neither seems to be logged in the list of topics I have posted in. |
finding recent threads - 1242796 | Full Archive | certain spring | ||
Hello Grace Members, We are happy to introduce a new partnership with Clinical Care Options to help people better understand treatment options for those just diagnosed with follicular lymphoma. This is the first of several such tools. Other cancer decision making tools CCO will produce in the coming year include decision making tools include early breast cancer and NSCLC. I hope you don't and won't need this. Take care, Janine
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Follicular Lymphoma Treatment Decision Making Tool | General Discussion! | JanineT GRACE … | ||
Where is the forum tab located now? |
Forum tab changed - 1242222 | Full Archive | ds | ||
If you'd like to stay informed about the latest GRACE developments, you can subscribe to our free GRACE Notes newsletter. Just fill in the form here and never miss another update! JimC |
Get the latest from GRACE! - 1294118 | Full Archive | JimC | ||
March 18, 2018 at 1:24 am #1294108 song1234 I understand that Tagrisso supposed to work for EGFR patients even without the T790M but I also saw some earlier studies that indicates the response rate in T790M-negative patients is only around 25% which makes this whole thing very confusing, I could be wrong but I think many studies and trials have shown that the first gen TKIs like Tarceva and Iressa have very high response rate in EGFR(exon 19 and 21)patients, something in the 60 to 70% range so my question is does it make any sense for someone to stop Tagrisso and go back to Tarceva if the condition continue to deteriorate and given the fact that he doesn’t have the T790M and was originally responding ok(tho not perfect)to Tarceva? Sorry for the long post, any advice will be greatly appreciated! March 18, 2018 at 8:04 am #1294110 Welcome to GRACE. I’m sorry to hear that despite the good aspects of your father’s response to therapy (stable disease in the lung and brain), he is feeling worse than when he was taking Tarceva. It’s difficult to say whether that is because of Tagrisso, progressing disease or some other factor. It’s certainly possible to return to Tarceva to see if that is the difference, but that doesn’t address the issue of progression in the bone metastases. Progression in the bones is a bit difficult to judge, because the presence of the cancer deteriorates the surrounding bone and some of what is seen is that damage. If there are new bone mets, however, that makes it clear that the cancer is progressing. If there is clear progression, then your father’s doctor may wish to change to standard chemotherapy, assuming your father feels well enough to tolerate it. Another option would be to consider radiation to the brain and/or bones, while continuing an EGFR inhibitor. It’s a complex set of circumstances, requiring a thorough discussion of options with his oncologist. In addition, when a patient is at a significant treatment decision point, a second opinion also can be valuable. JimC Jul 2008 Wife Liz (51/never smoker) Dx Stage IV NSCLC EGFR exon 19 March 18, 2018 at 9:53 pm #1294115 song1234 I also brought up the idea about the possibility for the combination of two different EGFR TKI, but his oncologist’s response was they won’t do that outside of a clinical trial and she seems to think even that probably won’t help much other than just adding more toxic to the patient’s body and going back to Tarceva is not going to help either, now this is where I’m not so sure I agree 100% with her. I can totally understand the combination might not work at all, but I just couldn’t agree on giving up something especially someone’s life without even giving it a try. I think his oncologist was acting in good faith and just doesn’t want him to suffer more side effect from those drugs, but I think we really should get a second opinion about this. Thank you very much for your advice and thoughts |
Going back to Tarceva from Tagrisso? | General NSCLC | Anonymous (not verified) | ||
I just noticed my signature is gone. I hope you can restore it because I didn't keep a copy. |
Gone - 1242934 | Full Archive | double trouble | ||
Kath reports: Thanks for your help, CertainSpring. I’ve been noticing that the new Grace site doesn’t want to remember my login. Need to log in each time. Just reporting a glitch. I have had the same experience today. |
GRACE site dropping log on info - 1242442 | Full Archive | blue skies | ||
We have recently posted a new video on the GRACE YouTube channel, in which a panel of GRACE faculty oncologists discuss the steps involved in staging a suspicious lung nodule, from initial CT scan to biopsy and PET and brain MRI scans.
You can watch the video here: https://youtu.be/-5b7SUu22_M
If you have any questions about the information in this video, please reply and we'll be happy to help you.
Jim C GRACE Community Outreach Team
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GRACE Video - Staging Lung Cancer | General Lung/Thoracic Cancer | Jim C GRACE Co… |