GRACE :: Treatments & Symptom Management

Hospice is HELP: Avoid it at Your Peril

I’m on call for my oncology group this weekend, and I’ve had the situation come up twice in less than 24 hours that a patient is in dire need of home-based symptom management, with plans for hospice just getting initiated in a mad scramble on a Saturday or Sunday.  In both cases, the patient is sick enough and far enough from the hospital that just evacuating them with a 911 call isn’t an effective way to solve the problem.  And so what could otherwise be a legal urgent delivery of pain medications to a hospice patient is a difficult night of toil and unnecessary suffering because there isn’t a mechanism to get medications or support for someone who will be enrolling on hospice tomorrow, after weeks of the patient and/or family resisting an appropriate and well-meaning recommendation to enroll earlier.

It’s a terrible shame that, in the US at least, hospice care is usually initiated at a point when death is just a few days or even hours away.  Too often it’s a race for hospice nurses to get to the patient in time to provide needed comfort and support in the last moments of a person’s life, after the patient and their family and friends have already struggled through the rapid changes and symptoms of dying.  If it isn’t “too little, too late”, it’s close.   But hospice teams can provide critical value and support if referrals are made long enough for the patients and families to develop a good relationship with the folks from hospice.

This seems to stem from a tendency to want to deny, to wish away, any acknowledgement that a person’s disease is terminal (sometimes by doctors, sometimes by families, sometimes by the patient himself or herself), as if avoiding the subject and the needed action will keep it from happening.  But a person will continue to decline, death will unfortunately ensue, and the only consequence of postponing to the point of critical distress and unavoidable recognition of the reality is that everyone experiences far, far more suffering and chaos than they would have otherwise.

It’s understandable that people don’t want to embrace a sad reality when death is becoming close enough to anticipate and plan for. In truth, death is rarely a beautiful experience, but it can often go from being terribly challenging and unpleasant to minimally so when there are people nearby who are equipped and motivated to help, and who have the experience to guide people.  I think it’s a very sad, regrettable mistake to not avail themselves of that help until it’s an absolute crisis.  


Dr. Harman on Depression and Cancer-Related Fatigue

 

 

Here is the last of four podcasts from Dr. Stephanie Harman’s terrific presentation on common cancer-related symptoms.  This one focuses on the common issues of depression and cancer-related fatigue.  Below you’ll find the audio and video versions of her presentation, along with the associated transcript and figures.

 

 

Dr. Harman Depression and Fatigue Audio Podcast

Dr. Harman Depression and Fatigue Figs 

Dr. Harman Depression and Fatigue Transcript 

Continue reading


Dr. Stephanie Harman on Nausea and Management Options

 

The third installment from Dr. Harman covers nausea and options to manage it.  She discusses both chemotherapy-induced nausea and some other potential causes.  

Here is her talk in both video and audio podcast versions, along with the transcript and figures.

Dr. Harman Nausea Audio Podcast

Dr. Harman Nausea Transcript

Dr. Harman Nausea Figs

Continue reading


Dr. Harman on Cancer Pain Management

Here’s the second part of Dr. Harman’s webinar on managing common cancer symptoms, in which she discusses the basic tenets of cancer pain management.  

Dr. Harman Pain Management Audio Podcast

Dr. Harman Pain Management Transcript

Dr. Harman Pain Management Figs

Continue reading


What is Palliative Care?

Here is the first portion of a podcast by Dr. Stephanie Harman, GRACE faculty member and Director of the Palliative Care Program at Stanford University in Palo Alto, CA.   Before embarking on a discussion of several integral symptoms and how best to manage them, Dr. Harman began with a step back and brief discussion of the distinctions between palliative care and hospice/end of life care, as well as the growing attention palliative care is now receiving from many professional societies.  

Dr. Harman What is Palliative Care Audio Podcast

Dr. Harman What is Palliative Care Transcript

Dr. Harman What is Palliative Care Figs

Continue reading


Ask Us, Q&A
Cancer Treatments / Symptom Management Expert Content

Archives

Lung/Thoracic Cancer Blog
Breast Cancer Blog
Pancreatic Cancer Blog
Kidney Cancer Blog
Bladder Cancer Blog
Head/Neck Cancer Blog

Other Resources