I am so confused. As you know, in November I had another singular brain met. It was treated with cyberknife. I had scans last week, with my brain MRI being Thursday. It showed a small lesion, first thought to be scar tissue, but definitely a new met. I am pretty unhappy about that. I feel that it's the beginning of the cancer invading my brain, and I'm feeling that my time is limited.
I've been complaining of headaches since September. They have not gotten worse, but I have a headache every day. First they were thought to be from a concussion. Then my PCP said they were cluster headaches. Some days they are bad enough to take Imetrex and other days I take Tylenol or nothing.
When I saw the radiation oncologist today to discuss what to do with the new met, he and his colleagues told me they were very concerned about the headaches and feel that they could be from Lepto. I was floored. So I am having a lumbar puncture on Monday. I asked about the rate of false negatives and they said there were other things they could read in the spinal fluid to give them a better result. I asked if anything showed on the MRI and they said no. So why are they thinking Lepto? I know that's a question I should've asked at the time, but truth be told, I don't think I heard much after they threw that one out there.
Is it possible to have headaches for 6 months to ultimately find they are from Lepto when no other symptoms are present? How long can a person have it and be undiagnosed? If I do have it, wouldn't I have SOMETHING else going on?
Thank you in advance.