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What is the Global Resource for Advancing Cancer Education (GRACE)?
The Global Resource for Advancing Cancer Education (GRACE) provides expert-mediated information on current and emerging cancer management options in order to empower patients, caregivers, and health professionals to become direct partners in cancer care
GRACE is a nonprofit organization that was developed as a means of improving the overall medical care for cancer patients by democratizing cutting edge information on optimal cancer management and providing it directly to patients. We recognized that while there is an overwhelming amount of new information available to physicians, actually more than they could integrate, patients and their families often have a deep interest in their own care and often have the time and motivation to ensure that they are receiving the best treatment possible.
There are already many websites and other resources that provide some information for patients from health care professionals, but we find that they often provide very bland, nonspecific information that says little beyond extreme generalities (i.e., “Chemotherapy is the main treatment for advanced lung cancer. Your doctor may talk with you about this approach.”). And while there are often discussions of specific treatments on patient and caregiver-moderated websites and other resources, the quality of the information is variable: sometimes great, and sometimes suspect. The potential for misinformation to be perpetuated by people not qualified to discuss medical details is a significant problem.
GRACE is the larger nonprofit entity borne of the website OncTalk, which was started in late 2006 by Dr. West as a means of providing detailed information about best practices in lung cancer directly to the general public in an interactive format, from a known source. Since that time, several thousand unique visitors have sought information from the growing collection of posts on a variety of topics in lung cancer and oncology in general. But the idea behind OncTalk was always to scale beyond one physician and a narrow topic. Proving the principle that the barriers between information for physicians and education for patients could be overcome, OncTalk transitioned into the nonprofit company GRACE in order to expand into a broader range of cancer topics while also providing a greater depth of formats for providing educational materials to members. In addition to blog-format interactive software for online information and discussion, GRACE is introducing audio interviews, web-based lecture materials, live programs, podcasts, and live and on-demand, interactive webinars.
The Global Resource for Advancing Cancer Education (GRACE) is a nonprofit organization that has been granted tax-exempt status from the IRS under section 501(c)(3) of the US tax code. Donations are tax-deductible according to current tax law for 501(c)(3) organizations. Our Tax ID is 56-2676328.
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In recent discussions, and in honor of our 15 year anniversary, some of our board members and staff came up with a list of their favorite patient education pieces. Our dear Ned was a stalwart supporter of GRACE, and had a huge part of us becoming the amazing community that we have been. We sadly lost Ned in 2011, but his humor, goodwill, and kindness lives on. We at GRACE will always remember him as a founding member of our community. Ned developed the below BVSEV chart, tracking his treatment...
We are excited to launch our second year of this program - Patient Perspectives - Clinical Trials Experiences Through Storytelling GRACE’s mission is to provide expert-mediated information directly to cancer patients and their caregivers to empower them to become direct partners in their cancer treatment. The Clinical Trials Experiences Through Storytelling program helps patients to become educators and to help others learn about the journey they may be beginning or continuing on. To apply...
Have you received a diagnosis of ovarian cancer?GRACE is excited to have again partnered with Clinical Care Options to develop an Interactive Decision Support Tool and downloadable resource to help you understand more about your disease and treatment options, so you can become partners with your oncology team in your cancer care. By answering multiple choice questions about your diagnosis, you will be able to review treatment options from five ovarian cancer experts listed below. Robert L...
There is still time! Register for the Targeted Therapies Patient Forum this Saturday, September 12, 2020! Register Now!
GRACE is pleased to announce the acceptance of four rising stars in to the second year of the GRACE Patient Education Ambassador Program for the 2020-2021 Program Year!All four candidates have shown a genuine passion for patient education and innovation in connecting with the patient community. The program will encompass the participants creating content which will be featured on the GRACE website, working alongside GRACE faculty, Board and staff, and learning the most current and effective...
Hi and welcome to Grace. I'm so sorry you're having this pain. Just to let you know I see this post and will respond ASAP.
Hi cancersurvivour welcome to Grace. Congrats on the "previous" aspect of your blood cancer. A haematologist is just the person to keep an eye on you with CT scans. Your CT...
Thank you for your comments Janine. Makes sense.
You have been through a lot already at such a young age, probably too much for someone online to say much. Perhaps your haemotologist and pulmonologist consult to...