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What is the Global Resource for Advancing Cancer Education (GRACE)?
The Global Resource for Advancing Cancer Education (GRACE) provides expert-mediated information on current and emerging cancer management options in order to empower patients, caregivers, and health professionals to become direct partners in cancer care
GRACE is a nonprofit organization that was developed as a means of improving the overall medical care for cancer patients by democratizing cutting edge information on optimal cancer management and providing it directly to patients. We recognized that while there is an overwhelming amount of new information available to physicians, actually more than they could integrate, patients and their families often have a deep interest in their own care and often have the time and motivation to ensure that they are receiving the best treatment possible.
There are already many websites and other resources that provide some information for patients from health care professionals, but we find that they often provide very bland, nonspecific information that says little beyond extreme generalities (i.e., “Chemotherapy is the main treatment for advanced lung cancer. Your doctor may talk with you about this approach.”). And while there are often discussions of specific treatments on patient and caregiver-moderated websites and other resources, the quality of the information is variable: sometimes great, and sometimes suspect. The potential for misinformation to be perpetuated by people not qualified to discuss medical details is a significant problem.
GRACE is the larger nonprofit entity borne of the website OncTalk, which was started in late 2006 by Dr. West as a means of providing detailed information about best practices in lung cancer directly to the general public in an interactive format, from a known source. Since that time, several thousand unique visitors have sought information from the growing collection of posts on a variety of topics in lung cancer and oncology in general. But the idea behind OncTalk was always to scale beyond one physician and a narrow topic. Proving the principle that the barriers between information for physicians and education for patients could be overcome, OncTalk transitioned into the nonprofit company GRACE in order to expand into a broader range of cancer topics while also providing a greater depth of formats for providing educational materials to members. In addition to blog-format interactive software for online information and discussion, GRACE is introducing audio interviews, web-based lecture materials, live programs, podcasts, and live and on-demand, interactive webinars.
The Global Resource for Advancing Cancer Education (GRACE) is a nonprofit organization that has been granted tax-exempt status from the IRS under section 501(c)(3) of the US tax code. Donations are tax-deductible according to current tax law for 501(c)(3) organizations. Our Tax ID is 56-2676328.
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We are excited to launch our third year of this program; tell your story and help us help others! Apply Online Now! GRACE Patient Perspectives: Clinical Trials Experiences Storytelling Program Overview The goal of this Patient Perspectives program is to give a voice to those who have experience in participating in a clinical trial for a cancer diagnosis. By telling your story, you can educate others on the process, discuss your difficulties and share your accomplishments. Your voice helps to...
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Don't Miss Out! the newest GRACE Newsletter is out now! Keep Moving Forward - GRACE in January is full of the newest information about the Global Resource for Advancing Cancer Education. Read our newest newsletter here! To subscribe to our monthly newsletter, sign up here now!
Our mission has always been focused on health equity, patient education, and patient empowerment as a means to break down barriers and create partnerships between patients, caregivers and health care providers. That mission remains extremely important as we continue to grow and innovate in our delivery of content to reach the widest audience. Your DONATION helps us to continue helping others! Your Donation to GRACE makes a huge impact. Your generosity is helping thousands of people living with...
In recent discussions, and in honor of our 15 year anniversary, some of our board members and staff came up with a list of their favorite patient education pieces. Our dear Ned was a stalwart supporter of GRACE, and had a huge part of us becoming the amazing community that we have been. We sadly lost Ned in 2011, but his humor, goodwill, and kindness lives on. We at GRACE will always remember him as a founding member of our community. Ned developed the below BVSEV chart, tracking his treatment...
Hi Caregiver and welcome to Grace. I'm sorry that you need to be here and hope we can help. Osimertinib has better efficacy than gefitinib (including OS and reaching the brain)...
Hi Bob, Welcome to Grace. I'm sorry about your sil. Unfortunately, cancer becomes resistant to TKIs like tagrisso. Sometimes all of the cancer becomes resistant at once and sometimes just parts...