I have been on Avastin maintenance since February of this year - only three infusions so far. I just had a scan and there is some very slight progression. Radiologist says stable but when I see precarinal node changes from 0.9 x 1.6 to 1.0 x 1.8 (Mediastinum/hila). There are other millimeter changes some good, some bad. I have been very over treated (see my bio). I have sought second and third options, have been called a miracle patient as I have handled everything very well. I still work full time. I tried for an PDL-1 trial in my area and was told to come back if/when there was progression . His decision might have been influenced by his call to my onc, not sure.
I do have an appointment with my oncologist next week to go over my results. I just wanted to get some general opinions of when to say enough with Avastin. To me it seems very expensive and the results are questionable at this point.
ps. I had to create a new account because I lost all my login information from my old one.
Been fighting since September 2011 - NSCL Adenocarcinoma Pancoast Turmor, right apex of the lung, Horners Syndrome. Mutation testing done - none found. Had a total of 16 platin based chemo cycles (yes 16 - not a typo) starting with Cisplatin/Etoposide - 6cycles, Carbo/Taxol/Alimta - 2 cycles, Carbo/Taxol/Avastin total of 8 cycles. . Had six weeks radiation in conjunction with the original chemo cycles. Most recent chemo was Carbo/Taxol/Avastin, last infusion was in Dec 2013. Had two different Cyber knife sessions (sub pectoral met, rib met) done is 2013. Avastin maintenance since February 2014.