For what its worth, I'd like to share my experiences with my husband's nsclc dx in July of 2013. Maybe it will mean something to caregivers whose loved ones were just recently diagnosed. I'm sharing because I remember feeling totally beaten and completely lost at the time of diagnoses..what with all these new terms, treatments, side effect management etc etc!
Its been ten months since my husband's diagnosis and, according to the last PET scan, there has been no progression. I know that my husband is not cured, that cancer is totally unpredictable. However, there are a few lessons I have learned:
1. A lung cancer diagnosis is not necessarily a death sentence. You need to know this in order to remain focussed, learn the facts and avoid the paranoia as I experienced it. My paranoia (often based on half read information) drained me emotionally - a total waste of energy which, in hindsight, could be better used.
2. Learn as much as you can about the disease and treatment options. Grace is a wonderful resource and has provided us with enough information to discuss with our doctors and also to make informed decisions.
3. We are advised by Grace to go for second opinions. It doesn't do any harm to anyone...go for that second opinion!
4. Try not to spend many sleepless hours worrying about aches and pains that 'might be progressing cancer'. Refer to 2 above and if not satisfied, just ask your doctor.
Thank you Grace doctors, moderators and the rest of the helpful and supporting Grace community.