I tried to reply on my previous thread but managed to keep getting a technical error when I tried to update it. Originally I was diagnosed through bronchial washing and no evidence at CT scan.
I completed my treatment in the summer and did feel much better, suggesting we were on the right path. Recently I have started to experience tiredness and symptoms that I had prior to diagnosis. I did have a CT scan that was clear, but nothing showed on CT at diagnosis. The doctors can't do the bronchial washings this time, but have suggested that I could fund a PET scan if I am concerned. I have read everything and it is hard to see what a PET scan could offer when nothing is showing on CT. I know PETs are not a good idea for follow up in normal circumstances, but I do seem to have exceptional circumstances. I did find a report on line that looked like it was saying that PETs could offer more in certain scenarios
I can't find anything to help me make up my mind, do you know of any situations where PET has been more beneficial than CT in identifying lung cancer? It seems such a rare situation that I am in that there is no guidance? The report I found did seem to suggest that a PET scan can find tumors that are not picked up by CT.
Thank you for all the information.