First things first, a brief history. Two years ago my mum was diagnosed with liver cancer after an MRI. As it turns out, after a biopsy came back negative, a good course of IV antibiotics cleaned things right up. She had investigative surgery and they removed her appendix. They obviously tested it in a lab because it came back as 'goblet cell' cancer. She had chemotherapy, and biopsies on her liver and lung that came back negative.
Two years down the line, she started having debilitating back pain (which she had a history of), numbness of the saddle area, and a few other symptoms consistent with CES (caudal equine syndrome) - after an MRI she was told she didn't have anything and there was nothing suspicious but that she had a bad UTI. Again, she had IV antibiotics and things steadied out for a few days, then it was back with a vengeance. Rince, wash, repeat, diagnosed with a UTI, MRIs say nothing suspicious whatsoever. After a while, and another couple of weeks in agonising pain, more antibiotics, and two more MRIs, they sent a fourth or fifth MRI away to another hospital and all of a sudden we got a phone call saying they wanted her in for radiotherapy as there were lesions on her spine. That same day she upped her morphine and the pain was greatly reduced but her walking was terrible. She went in, had it done, came out with her full mental faculties in tact but with arm pain and a prescription for gabapentin to control it (this only started since the radiotherapy).
Over the next week she became incredibly confused, barely new her own name, was taken in to hospital and given antibiotics and had a miracle recovery. That happened three times. Getting worse each time. I'm meeting her oncologist tomorrow and I'm suspicious of the diagnosis. No CSF tests, when I asked how far along it was (in the beginning) he said he hadn't seen the scans. What questions do I need to ask him to help her out? She gets better with antibiotics! It's been a hard 6 months.