New primary after 16 years

mak
Posts:5
Diagnosed with RCC 2001, then nsclc in 2007 when I found this terrific forum. I’ve Been in remission post thoractomy with LLL resection. Follow up CT revealed an unexpected 1.9 cm partially solid , spiculated lesion, w 5mm satellite lesion

Initial dx BAC 2007. New 1.9cm lesion with 5 mm satilite lesion. PET uptake SUV max 10.5 and lymph node L10 suv max5.5. Just had a robotic assisted Bronch. 2 lymph nodes prepared following ROSE, showed lymocytes.
Lesion biopsy pending pathology.

Is there any likelihood that the nodes could show cancer cells?
I do have a nursing background so probably know enough to make me dangerous. My major coping skills are met with humor, so I hope I don’t offend anyone.

Waiting to hear if I will need a completion pneumonectomy.

Would appreciate thoughts.

MAK

JanineT GRACE …
Posts: 606
GRACE Community Outreach Team

Hi MAK,  Welcome!  Glad not glad to have you back.  Coping through humor is one of my major skills, so you will be hard-pressed to offend me.  I became a member of Grace in 09 when my husband was diagnosed my username was catdander. 

Yes, if the biopsy picked up cancer cells in the lymph node then they will show themselves.  

If this is cancer it would likely be treated the same as a new primary cancer whether or not it is from the same process as the BAC back in 07.  It's got solid components and the SUV is higher than what you would expect from BAC.  Even though it wouldn't hurt to get a consult (even virtual or phone) from a lung cancer specialist.  While we are at it, if you have surgery use a dedicated thoracic surgeon not a cardio/thoracic surgeon who does mostly heart surgery.  SBRT is an alternative if it's considered unresectable. 

Mutation and PDL-1 testing are also important factors during curative treatment planning.  Things have changed since last you were here.  I'm hoping for some unforeseen noncancer reason.  Keep us posted.

Janine

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

mak
Posts: 5
Diagnosed with RCC 2001, then nsclc in 2007 when I found this terrific forum. I’ve Been in remission post thoractomy with LLL resection. Follow up CT revealed an unexpected 1.9 cm partially solid , spiculated lesion, w 5mm satellite lesion

Hi Janine!
I do have a dedicated surgeon. That’s why I came back to MN. We moved to TN a year and a half ago. He’s the best! Having worked in the OR I have onsite.
I had the Robotic assisted bronch with biopsies.
Turns ou I got lucky in one sense. I had a 1% chance it was cancer and I hit the jackpot.
Dx was non necrotizing granulomatous tissue in the nodes , but necrotizing in the lesion. My head was spinning at that point. Waiting for microbiology results for the next step.
Guess I just need to get to the root cause.
I’m grateful beyond belief I received the news I did.

I’ll be back to see my thoracic surgeon in a year. Not many docs fit the bill but my docs here in MN are the best!
Take care, thanks for this wonderful site!
MAK

MAK

mak
Posts: 5
Diagnosed with RCC 2001, then nsclc in 2007 when I found this terrific forum. I’ve Been in remission post thoractomy with LLL resection. Follow up CT revealed an unexpected 1.9 cm partially solid , spiculated lesion, w 5mm satellite lesion

Hi Janine!
I do have a dedicated surgeon. That’s why I came back to MN. We moved to TN a year and a half ago. He’s the best! Having worked in the OR I have onsite.
I had the Robotic assisted bronch with biopsies.
Turns ou I got lucky in one sense. I had a 1% chance it was cancer and I hit the jackpot.
Dx was non necrotizing granulomatous tissue in the nodes , but necrotizing in the lesion. My head was spinning at that point. Waiting for microbiology results for the next step.
Guess I just need to get to the root cause.
I’m grateful beyond belief I received the news I did.

I’ll be back to see my thoracic surgeon in a year. Not many docs fit the bill but my docs here in MN are the best!
Take care, thanks for this wonderful site!
MAK

MAK

JanineT GRACE …
Posts: 606
GRACE Community Outreach Team

That is amazing news!  Congratulations, any diagnosis here is going ti be managed easier than cancer.  I hope it stays put or goes away completely. 

 

My husband has been experiencing similar this past year after 10 years of following-CTs post treatment.  SUVs of 8 and 10 biopsied tissue found necrosis and inflammation.  Hopefully, the move back to every 3 months will flow into yearly without further incidence. 

 

You certainly have an advantage over most patient advocates as an RN and in OR. I know there's a lot to see over time in an or, 

 

Take care,

Janine

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

mak
Posts: 5
Diagnosed with RCC 2001, then nsclc in 2007 when I found this terrific forum. I’ve Been in remission post thoractomy with LLL resection. Follow up CT revealed an unexpected 1.9 cm partially solid , spiculated lesion, w 5mm satellite lesion

Janine,
My research has indicated necrotizing granulomatous tissue is not necessarily uncommon following resection. Would love to know what causes it if it’s neither bacterial or fungal. It’s that control thing. Looks like anaerobic cultures are normal, waiting on fugal.
It was really stressful as always but we just moved to TN, lived in a travel trailer while building a house that turned into a nightmare for 17.5 months. That didn’t help my immune system much. At least now I know I can transition to a new place. Thanks for your replies. Hope your husband continues to do well.
Take care!
Mary Ann

MAK