Hi - I'm glad to have found this site today - there is so much information i'm finding useful to read even at this early stage. I will be re-reading and understanding more of the information on this site as I progress.
I wished I had started looking up all this info online earlier but haven't been able to bring myself to do this until the last few days :( Leaving it to my oncologist to make the calls at this stage, but still very thankful for finding this site so I can learn more in the meantime.
A little about me :
36 year old male. Diagnosed March 2014 with stage IV NSCLC Adenocarcinoma.
Pleural effusion right lung early Feb 2014. Thoracentesis (1L) twice in 3wks while testing. Diagnosis from pleural fluid. CT in late Feb 2014 showed right middle lobe collapse, large lung and mediastinal lymph nodes. No masses visible in lung, liver, adrenals.
Surgical Pleurodesis Mid March 2014. Numerous 2-3mm nodules found on pleural surface with discrete larger nodules on the diaphragm. EGFR and ALK results last week came back negative. Testing for KRAS and ROS now underway.
I haven't requested a PET scan since i guess i'm too frightened at what they might find, although my oncologist commented that it wouldn't change the treatment now at any rate.
We have both public (free) and private (self/insurance paid) healthcare. Public health will cover treatment using Paclitaxel with Carboplatin (I think).
My oncologist has recommended I go private since they will use Pemetrexed plus Cisplatin. His reasoning is less side effects with this combination and possibly slightly more time.
I've chosen Pemetrexed/Cisplatin and am due to start round 1 of 6 this coming Thursday.
I'm hopeful I will respond favourably. Lets see how this goes....