Here is my background: Diagnosed Sept 28 2011, stage 3B Adeno (pancoast turmor, no mutations) - Treatment began October 2011: 6 cycles of Cisplatin/Etoposide with 6 weeks concurrent radiation. July 2012: Rib and sub pectoral met discovered. Cyberknife on pec met (I thought it was the rib but miscommunication) and then more chemo 2 cycles of carbo/alipmta (did nothing) switched to 4 cycles of carbo/avastin. Continued on avastin as maintenance for a long time – into 2014. Cyberknife to the rib. More chemo: Taxol and Avastin, 6 cycles. Tarceva for one month (no mutations so it was a gamble). Taxotere/Cryamza 5 cycles
(some dates may be off but generally accurate)
The count is correct: 12 cycles (not infusions) of platin based chemo!
I am scheduled for my sixth infusion next week of the Taxotere/Cyramza combo and a scan to follow shortly after. I am fairly good at being able to tell if treatment is working and I believe I have hit the end of the road for the taxotere/cryamza effectiveness. I am also feeling the toxicity of all the treatments now. Until recently, I have felt pretty well but have been on a slow and steady decline for the last six months. I know that I have had a really good run, I am still working at this point (thinking about going on leave tho). My oncologist has been wonderful, I have gone for second and third opinions. Checked into clinical trials and every one I tried for I did not qualify for. I am a realist and know that there are not many more treatment options out there but still have to ask the experts.....what is left for me to try?
I will also be asking that question of my oncologist.
I am trying to answer my own question of when to say when (meaning stopping treatment). At what point do I just want to sit back and enjoy the time I have left. I'm not ready to call it yet and know it is completely up to me.
Thank you for the any input.
I have had two biopsies done - same results