Right flank pain

Tue, 10/18/2022 - 09:41
PompeyPete
Posts:4

Diagnosed 2018 with a malignant pleural effusion - no solid tumour. EGFR Mutation and have been on Osimertinib since.
The last week I have right side discomfort and the past day or so pain mid/lower back (right side) mainly at night.
Breathing is OK.
Waiting for consultant and scan but I'm thinking the worst. These symptoms are different from when diagnosed (chest discomfort and breathlessness) so typically how does a MPE progress as this seems different to previously and what could it be? I appreciate there are many variables here and I won't really know until the scan results. I just want to be armed with some knowledge please.

JanineT Forum …
Posts: 459
Forum Moderator and former caregiver

Hey PompeyPete,

 

Welcome to Grace.  I'm sorry you're going through this scare.  I wish you wouldn't worry until you have more info but of course, you worry it's what people with cancer do even though it could be anything else.  You already have cancer that behaves unusually with no primary so it's not a stretch to know that progression would likely move out of the pleural space and possibly into the lung lobes or lymph nodes.  I hope it's nothing much to worry about and easily solved.  Call in your support system to keep your mind busy.  As Tom Petty said, "The waiting is the hardest part". 

 

From Moffit, "When lung cancer spreads or metastasizes, it can move to nearby tissues or to more distant areas in the body. While it’s possible for lung cancer to spread virtually anywhere, it most commonly metastasizes in the liver, brain, bones or adrenal glands."

 

Hoping to the best,

Janine

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

JanineT Forum …
Posts: 459
Forum Moderator and former caregiver

I know :I   Keep us posted. :)

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.

scruboak
Posts: 3

In 2020 I had left lower lobectomy for a single nodule 17 mm x11 mm with diagnosis of Invasive mucinous adenocarcinoma carcinoma. No lymph involvement but STAS was present according to pathology report. Subsequent scan have shown a very small nodule in upper left lobe which is “slightly more conspicuous”. My surgeon has ordered Ct with contrast for my next scan in December. I had a repeat VATS two weeks after the first surgery due to a rather large hemothorax 1.8 liters. I” m wondering, of course, what the CT with contrast will be able to clarify and also have heard that major pulmonary complications post lobectomy can somehow increase the incidence of recurrence. It’s getting close to scan time and it’s always in the back of mind.

PompeyPete
Posts: 4

So a quick update. Firstly thank you everyone who commented. Spoke with my consultant yesterday. Scan results were good bar a small lymph node in my armpit. He wants to get that checked out. If cancerous he has suggested the Halt trial for oligo-progression plus Guardant blood test.Hopefully the lymph isn't an issue but good to know he has a plan in place.That hasn't solved the right flank pain/discomfort but I was expecting so much worse. He did say that becuase my lung is collapsed it may be related to changes there in that 'empty space'.

JanineT Forum …
Posts: 459
Forum Moderator and former caregiver

Well I'm a huge fan of the idea to treat oligo-progression. My husband may have had progression in his spine after being treated for an unresectable pancoast tumor in 09.  Back in dim olden days ;) there weren't many people willing to treat a met of lung cancer.  Since it was bone it wasn't biopsied and it just so happened that about 6 assorted oncolgists; surgeons, radiation oncs, and his med onc all assumed it was a met (you know it looked like a duck and quacked like a duck so it must be a...met).  As his advocate I was always looking for a reason not to have to suggest options so when it was suggested to radiate it to keep it stable I was all for it.  So we'll never know if it was an oligo progression or not even cancer but he's here today no signs of cancer and 10 years from his "treatment break".   Sometimes I feel it's all about me and mine. 

 

I'm going to look up the halt trial, good name.  I hope the lymph node is nothing but a short term infection.  And changes can happen for a long time in the chest.  I hope it straighten's out and resolves the pain.  

Here's a link to scruboak"s discussion.  Glad to see you over here scruboak.

 

All the best to you both,

Janine

I joined GRACE as a caregiver for my husband who had a Pancoast tumor, NSCLC stage III in 2009. He had curative chemo/rads then it was believed he had a recurrence in the spine/oligometastasis that was radiated. He's 10 years out from treatment.