Hi. I have NSCLC adenocarcinoma, diagnosed 2013 with 3.5cm tumour upper right lung. I am female aged 60’s, never smoker, previously well and fit. Right upper lobectomy, chemo (cisplatin/vinorelbine). 12 months later had recurrence in hilar lymph node. Radiation therapy. 4 months later spread to dozens of nodules in right pleura, hilar lymph node increased again, and it had spread down into diaphragm. Tested and found to be EGFR positive, exon 19 del. Started clinical trial (FLAURA study) July 2015. Great response. After about 6-8 months was getting “no measurable disease”. No changes, stable ever since then. But latest CT scan reports “sclerotic lesions in left lateral aspect of T4 and T5 vertebral bodies that have increased in size since scans in July and September 2017. No significant change since CT dated 21 December 2017. No cortical break, compression collapse or any associated soft tissue component.”
My clinician read this out to me as though it was unimportant, and continued straight past it. I asked what these sclerotic lesions mean. He said “possibly some small secondaries that have responded to treatment”. But it is the first time since I was diagnosed in 2013 there has ever been any mention of anything in my spine. I was so shocked I couldn’t speak, couldn’t think of a follow up question. Clinician said all good, scan shows still stable, and he was in a hurry so appointment ended before I could even collect my thoughts. Later that day I rang the nurse coordinator and asked for her help as I was quite distressed. She is going to check and get back to me. Now 4 days later no answer yet. I’m struggling a bit.
Are you able to shed any light on this kind of finding please? I hope this is ok to ask here. I don’t have copies of the ct scan reports mentioned above, except for latest one mentioning sclerotic lesions. Thanks in advance.